Face to face: A face to face substudy will be completed at time of diagnosis or base line and 3 months if able to complete. And again at 6 and 12 months post diagnosis. For the sub study in person study, children will undergo several outcomes measures highlighting physical mobility. These outcomes will be completed at their regularly scheduled follow up visit. There may be a case of a family electing to come to clinic as a research participant only. Those rare cases will undergo the same online questionnaire and come to the Neurology clinic at Children's Medical Center Dallas.