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Please check out events below in the PA area
Filed under: Blogging, Lyme Disease, News | Tagged: lyme awareness, Lyme Disease, lyme disease awareness month | 3 Comments »
Please check out events below in the PA area
Filed under: Blogging, Lyme Disease, News | Tagged: lyme awareness, Lyme Disease, lyme disease awareness month | 3 Comments »
May 16th: North Wales Day from 10-2pm, St. Peter's Evangelical Lutheran Church
211 Main St., North Wales, PA 19454 We will be handing out information on Lyme Disease and answering any questions you might have.
May 17th, 3:30pm — Under Our Skin and Q&A at The Ambler Theater, 108 East Butler Avenue, Ambler, PA http://www.amblertheater.org Q&A with Guest Speakers: Dr. Ann Corson, MD, Douglas Fearn, President LDA-SEPA, and possible guest politician. Dr. Corson is one of the few family physicians treating children with Lyme; she will be able to share her experiences with treating the children affected by Lyme. Many Lyme kids are mis-diagnosed with ADD/ADHD, Autistic Spectrum, Rheumotoid Arthritis, Parkinson's, Chronic Fatigue and numerous other ailments, and treated symptomatically without addressing the underlying causes, and left to deteriorate. If you, or anyone you know, has a child affected by learning disabilities, dyslexia, ADD, autistic spectrum or other neuropsychiatric/cognitive issues, come to this special forum to learn about the "many faces of Lyme disease". This will be the LAST FREE Community screening of Under Our Skin in the Greater Philadelphia Area. This film has been picked up for commercial release, and the Philadelphia marketplace is a target market; therefore all free screenings have been put on hold until future notice. All details are below.
This screening is co-hosted by MontCoLyme and the Ford Family. The Ford family has an 8-year old son who has been severely affected by Lyme disease. He is now under the care of Dr. Ray Jones who is featured in this film. Under Dr. Jones' care and treatment for Lyme disease, their son has steadily improved. We are especially pleased to have with us for the Q&A, Dr. Ann Corson, MD, one of very few Lyme-literate Board-Certified Family Practice physicians treating children. Additional panelists include: Douglas Fearn, President of the Lyme Disease Association of Southeastern PA, and tentatively PA Representative Josh Shapiro. There will be lots of informational materials and resources available at the screening as well. For more information on the film, see http://www.underourskin.com, and regarding Lyme disease, see http://www.ilads.org, http://www.lymepa.org, or http://www.lymedisease.org. See you there!
Filed under: Health, Lyme Disease, News | Tagged: community events, Local News, Lyme, Lyme Disease, Lyme Disease Events, Pennsylvania | 4 Comments »
Filed under: Blogging, Life, Lyme Disease | Tagged: IV treatment, Lyme Disease | 2 Comments »
I'm so excited!! Come April 4th I will be speaking at a Under Our Skin Screening about my story with Lyme. This will be held in Lansdale, PA at 'Trinity Evangelical Lutheran Church' at 10:30am-1:30pm. Address to get there is: 1000 West Main Street, Lansdale Pa, 19446.
For the trailer of the movie go to www.underourskin.com
A dramatic tale of microbes, medicine & money, this eye-opening film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, told that their symptoms are "all in their head." Following the stories of patients and physicians as they battle for their lives and livelihoods, the film brings into focus a haunting picture of our health care system and its inability to cope with a silent terror under our skin.
Filed under: Blogging, Health, Lyme Disease, News | Tagged: documentary, Lyme, Lyme Disease, Lyme News, ticks, Under Our Skin | 2 Comments »
Avril Lavigne : Keep Holding On
I saw my lyme doctor on Tuesday…advice for some lyme patients, don't take a narcotic before entering doctors office! I was so loopy that it was hard to even give a update…LOL. It was so funny.. My mom took over for me on things I had had written down for my doctor, thank god!
She's very happy with my blood work, liver looks great, Lymeblood work is getting better. She was quite impressed how well I'm doing on my stomach considering how high she's put me up to (1,250mg of Recephon + Oral meds). I told her its the vitamins!! She's been handing out my cards to many patients of hers, its been very rewarding to see how many people I am helping out.
If your interested shoot me an email and I'll let you know what I'm on. They help with so many side effects of Lyme and IV treatment. My website if interested to take a look at is www.marketamercia.com/alismall
Her biggest concern after seeing her on Tuesday was how my new drugs for my emotional stability has been and my weight loss. I told her how well I'm doing but that my heart palps and migraines have gotten a bit more intense when I've had them from going off of the Cymbalta. That stuff is wicked!! I was on it for five years for everything from my fibromyalgia, too my heart palpitations that I get badly, and to help my migraines and depression. It really helped for the past 4 years but def time to switch. She's putting me on Paxil..with all the years of being ill I can't honestly remember if Paxil was one I was put on. We'll see how I do. Emotionally considering the stress and circumstances in my house lately I'm dong soooo much better since coming off of the Cymbalta. She's still thinks its 50/50 between my Lyme symptoms (which can cause many psychological symptoms) and the medication. I've already spoke to several people and have heard horror stories. I honestly think its a combination of things…21 yrs of illness, my grandfather being sick with cancer, me being sick of not starting my life and marriage, plus the Lyme and meds. Anyone who is human would have a meltdown.
So I have already started the high dose, definitely feeling the herx! which is why I'm up at 6:30am, sitting here with my pain pop. I shouldn't say it but I Iove these things I get at least a couple hrs of numbness, not that I'm promoting drugs! But, when you need them you need them…lol. Her plan now for me is to get a Cat Scan & MRI of my chest, abdomen, and brain. She's concerned since all the weight I've lost and how weak I've become along with my lymph nodes being huge. She's looking for Lymphoma or anything out of the ordinary. I'm not to worried, its standard procedure with most patients in my condition. Honestly my biggest concern right now is gaining weight, I'm 108 pounds and I'm 5'6..yeah not your average weight for my height. Which a lot of this could be do to the Lyme/Babesia I have. A symptom of many patients, my eczema has gotten out of control again too. On my eyes and face and hands really bad, which obviously all immune. Her plan is to fatten me up with with Protein shakes, healthy ones and I'm thinking of going to the YMCA near my house to just relax in the warm weather for my muscles and pain. My weakness is at the lowest it could be which honestly upsets me the most. I started out last yr at this time at a '9' which now I can barely get past the '0' on the strengh test. It concerns because I'm laying in bed all day, you don't move your body you get get weak, its just that simple. But, up until now I wasn't allowed to do the slightest of exercise or PT.
Well I'll tune back in soon, I just got a web cam so I'll be using that on here and if anyone would like to get in contact with me on that my name is Lymeaway77 on SKYPE
Hope Everyone had a wonderful Thanksgiving and Safe Holiday:-)
Filed under: Blogging, Lyme Disease | Tagged: Blogging, IV treatment, Lyme, Lyme Disease | 6 Comments »
***I apologize for not returning some of your comments and emails for my loyal friends of my blog. This has been an extremely rough month or so for my family and I..between my Grandfather being quite ill, and myself having nearly a mental breakdown this month; I have not had enough physical energy to get out of my bed.
Lots have things have gotten better with my antibiotic treatment since they upped me to 750mg of Recephon and now 1gram. My knees aren't as swollen anymore, muscle spasms in legs, arms, and back are much better. Migraines are starting to be less severe and frequent. Sweating and fevers though come and go and my weakness just seems to be getting worse, I'm little concerned as well cause chest pain and stabbing pains near my ribs and heart have gotten worse along with my palpitations. I've had better days were I was able to get out of my house and the bed for the first time in a several months. Once a wedding, where I didn't use my cane nor wheelchair!! I even danced a little too:-) The second I went to the mall, in my wheelchair but I didn't care it was nice to feel like I was in the real world again. I must say I feel for anyone who is a paraplegic due to illness or accidental. Its been physically hard for my parents and husband to push me everywhere and very frustrating for me to get around, especially when doing normal things such as going to the mall and shopping.
My emotional state has been what I've been struggling with. My moods have been all over the place,one minute so happy, next minute extremely emotional and suicidal. I was even throwing tempers like a 5yr old kid. This is SO NOT ME!! I'm usually very laid back and a happy person. People have told me I'm one of the strongest people they know. Which now makes me feel so much worse, just really struggling with all these feelings. After speaking with my family, I do feel much of this has to do with a combination of things…my Grandfather being ill for one. Not many people know, but he lived with my family and I for 12yrs along with my grandmother who is now deceased. This makes it so much harder, although I wouldn't take back any of the memories I've gained from that experience. Not having a home with my Husband for 2yrs now, basically not feeling married nor a wife. Being in bed all the time due to pain and too much weakness just to do the simplest of things.
I really got scared though and asked for an emergency visit with my doctor, realizing this is not 'ME', I don't ever react this way, its not in my personality to act like this. Some other factors after speaking with my doctor was one of my medication's called cymbalta which I've been on for 5yrs now since I first got diagnosed. I had been placed on this medication for my fibromyalgia, depression, and heart palpitations. It has helped immensely with all of that, but suddenly over the past month I've experienced some scary feelings and behaviours. I was told over a 2 weeks ago that this might possibly be a reaction from the Cymbalta or I was having new Lyme symptoms occurring do to treatment which is very common and normal with IV treatment. She said my behaviour's I was exhibiting were manic-depressant and some phobia's.
I can't tell you what a horrible experience these feelings have been for me and my family. Especially my husband, god bless him, but I think he wonders sometime what has happened to the woman I marry. I wonder that myself. I'm not sure lately who I am, trying to find that person. My Doctor did help me out though, it hasn't been a quick fix but its helped enough that I wanted to actually go outside the other day and be around people. She lowered my dose of Cymbalta and added Abilify and it seemed to have regulated some things. I had a bad day today and yesterday, but were still working out the kinks. I haven't spoken to any of my friends other than my friends from my lyme doc's office. Not cause I don't think they'd understand, but I think they'd think I'm a nut job..I've lost sooo many friends due to this illness, its very hard. I hate to say it but my friend who have Lyme can relate because they have the same symptoms everyday. Even my husband and mom have said they'll never understand what its like for me day to day living with chronic pain and not having choices in my life.
I'll be seeing my Doctor now again next Tuesday, hoping we can figure out what all this is. If there is anything more she can do for me. I'm already setting up with a Lyme literate psychiatrist which I think we'll really help. I'm always open to that. I don't want to hurt my family nor friends and lately my behaviour has. THAT I don't like!
~~UPDATE ON MY GRANDFATHER~~My pop pop due to not having any use of his legs due to the tumor growing back,surgery(which we were told might happen) and muscle weakness from being in bed, he has been transported to a nursing home in the intensive care section of the home. They are taking very good care of him there, we've been extremely impressed. He sleeps 80-90% of the day from the Tumor. My family has chosen no more treatment. Hospice has come in now to keep him comfortable. It really bothers me that I'm too ill myself not to be able to see him as much as I'd like. He is a good man. His gf has still been by his side and he's had lots of visitors. At times he will forget who we are, which is really tough. Plus, he's aware he sick at times, lucid which can be frustrating since he wants to come home to his apartment. We just have to keep going, as hard as some days are. Our family is still in shock, being that this all has happened since August. Were not completely positive how much longer he has left. He has talked a lot lately of my grandmother and asking for his mother. Its so very sad at times. Other times he's laughing and enjoying his piece of pie from his favorite diner in town that we brought for him. The hardest part is he can't walk on his own and he's confined to his bed most of the time. He has lately gotten over being angry that hes there and has accepted whats happening and has joined others in the dining room. He is such a loving and caring man and is so loved by others. He absolutely adores my husband, he calls him his 'BUDDY'. Its so cute…the one day it really did hit me. He grabbed my face I said some words, he again asked how 'I' was feeling..crazy, lol. Then I laid my head down on his chest and felt the tears streaming down my face. He kept rubbing my head and stroking his fingers in my hair. It was so hard.. I fed him his dinner that night and most of the time he was so tired and weak he couldn't keep his eyes open nor keep his neck up, he kept wanting to put it back and sleep. Such a sin..can hardly believe this has happened. He's been a really good eater though. He had one bad day last week that gave us a scare thinking..oh no its time. The worst out of the worst though is the nurses had to close the curtain at one point and use this machine that looked like the shape of a bulldozer to lift him out of bed. It had a swing that picked his body up. He moaned though..which was so upsetting. It litterly squished him like a sardine..just broke my heart, could hardly keep the tears back. Ya know, know matter what age, death and illness is a Bitch.
Filed under: Blogging, Brain tumor, Lyme Disease | Tagged: Blogging, Brain tumor, Grandfather, IV treatment, Lyme, Lyme Disease, Lyme Treatment | Leave a comment »
Well..My mom spoke with the nurses and doctor's taking care of my Grandfather. It does not look good..they don't think he's coming back home, ever..I've just been in such shock and disbelief. None of us could sleep last night, just can't believe he'll never be back in his apartment again. I won't join him on the porch outside when its nice out, or grab breakfast with him. When my mom came to me the other day to tell me what was going on she said she unfortunately was not shocked. She said she had a feeling..she felt he hasn't been completely right even since surgery. I was surprised because I thought he did well when he was in ICU. She said yes, but he was still confused at times then. I figured it was his Anesthesia he was given since that can take up to a couple weeks to ware off…she said nope, the tumor was already growing back. Her and her brothers already decided their not going to put him through chemo & radiation, he's been through enough. He's 80 and its not worth it if he may only get a couple months out of it. I don't blame her..if it was her or my dad I wouldn't either, unless I knew they had at least 2yrs or more of a good life yet. My mom is already trying to find arrangements for him at a facility like a group home for 24hr special care. We would love to bring him home here its just he will need round the clock care. My mother is devastated, she came to me early this morning since I was up most the night not sleeping with puffy eyes and tears. She said its killing her already because all he keeps saying to her when he's been awake is that he can't wait to come home to his apartment and that he wants to have a big party with all his friends and go on a family vacation. Just breaks our hearts:-(
My mom spoke with a group home that is litterly right behind my parents house, within walking distance and they said they have room for him when Moss decides to release him. We just don't know how were going to tell him…he's going to be devastated. My mom told his girlfriend Vi last night..she didn't take it too well, which is expected. I think she wanted to believe like some of us who have been in denial that he was getting stronger. He's off IV fluids for now since his blood pressure has been a little more stable. The doctor said his platelets are low though, which are definitely clear cut signs of his Cancer. The nurses had been giving him Ritalin, a drug normally used for to calm down kids with ADD. Apparently in grown adults it actually has the opposite effect and wakes them up. They did get him out of bed the other day to use his walker so that was a good thing. He even went to the dining room with my Aunt and Uncle and his girlfriend. Both my Aunt and Mom said they have noticed his confusion. He often thinks lately he's in his apartment and thanks them for stopping by to visit or says he needs to go to bed to get up for church tomorrow. Then other moments he seems clear. The tumor has brought out sides of him though, kind of like Altzheimers, that we've never seen. He's gotten angry and he's suddenly a comedian as well. Anyway..on a good note my mom finally spoke with someone from Temple Hospital after receiving a letter in the mail about his fall. She got a REAL APOLOGY and they seemed honestly concerned and said they felt very sad for him and my family right now. I think it made my Mom feel a little bit better after his fall and all.
The best thing we can all do now is just pray for him and give him the comfort, love and care from us that he needs. I know this hasn't completely sank in yet for me…I was over his apartment the other night looking at a scrapbook album my sister is making for him of the cards he's received and pictures and just burst into tears. I found myself praying to God and my Grandmother asking why..I guess there never really is an answer as to why things happen the way the do. I just can't get over how unlucky this family has been with health problems over the past 2-3 years, its been one thing after another. I even had discussions with my Mom and Husband this week over my IV treatment, its been almost 8 months now and they said they are having a hard time watching me go through all of this, especially with Pop Pop being sick. Their worried its going to jeopardize my health worrying about him. What am I to do though???? I'm not stopping my treatment, I've come to far.
—I did have a bit of a mental breakdown this past week, but I was undergoing a lot of stress on my body due to another UTI from the Lyme and I was highly frustrated with my Doctor and her office. I had a fever and all with it about tow weeks ago and was in a lot of pain. My Husband and Mom were extremely frustrated, along with myself because I couldn't even get a hold of anyone at my Doctors office to call in a simple script. They have been known lately do be pulling this crap with their patients. In fact over the past year my family and I haven't been feeling as confident about my care there. We were giving them a little break since my Doctor was enduring some hard personal things goign on in her life. Now thought after the grief I went through almost two weeks ago, and a very upsetting phone conversation that was COMPLETELY out of line that I had with my Lyme Doctor (of 5yrs now) and some of her staff, ultimately lead me to hanging up the phone and crying in disbelief. My Husband and I were so angry and hurt do to the lack of responsibility she had and concern the office has in general for their patients. I mean my Mom and I have been driving our butts their every Tuesday for 2 1'2hrs, which by the way takes up our WHOLE DAY, and shelling out well over a 2,000 per month for care!! Now, unfortunately due to the lovely medical system the CDC and the IDSA has created for Lyme patients like myself, no Lyme Literate Doctor will take insurance for reasons of loosing their license or being harassed by insurance companies for treating their patients with more than the typical 14day regimen of antibiotics. Believe me, people who get sick enough with Lyme WILL PAY for a Doctor like this because they not only are up to date on all the new treatments but are willing to fight for their patients even though they know their medical license may be at risk because they see the world of good their treatment has done in saving lives.
However, I want an equal amount respect and care for the time and money my family and I have spent traveling to see my doctor! I just can't get over, after all the years I've been seeing my Doctor how much has changed in her office in just a matter of a year. Its disorganized, understaffed, and she has officially started treating her old patients like crap and the new ones (whom by the way, doesn't even have time to properly treat them as well as she should be medically) like royalty!
My doctor by all means, I have always HIGHLY RESPECTED. Which is why I have stayed with her as long as I have. I mean, she diagnosed me, basically saved my life from many years of not konw ing what was wrong with me, and she even got me into remission and some of my life back that I hadn't had in soooo long. I litterly put her up on a pedestal beause SHE IS THAT GOOD, Scientifically she is the best there is out there for lyme. Her bed-side manner was never the best but I had had many doctors who were but called me crazy and that I was imagining my pain, that it must be depression. Problem is.. if you decide you want to save the world of Lyme, and take on new patients, higher more staff, higher an assistant, whatever it takes to get the care that your patients deserve after the time we take breaking our bank accounts when there is no money to even give in the first place. If you ever feel like your health in in jeopardy and your care is not what it is, move on the Doctor is not worth it!! Believe me, I've been there, done that.
Now…I'll be doing it again. I'm staying with my Doctor until I can find another one closer to my area. I already called one that came highly recommended from several friends of mine who have lyme themselves or people in their family who do. However I had to be put on her waiting list, though my mom said the Secretary said it shouldn't be too long. I want to finish out my treatment with the IV Antibiotics so I'm just going to find a Lyme Literate Doctor in the PA area whom I can do just that with. If I don't see results then I will move on to other things. The hardest thing about this is Lyme treatment is that it doesn't come cheap, my Husband and I just received a bill in the mail the other day saying we owe a little over $1,000 for home care that I had for only 29days (5 visits) that my Insurance has refused to cover….luckily I have wonderful parents who have been able to help us out..although I'm not sure for how long. With the way the economy is right now I'm not sure what the outcome will be for me with treatment. I've even met people who have lost their homes or have filed bankruptcy due to having Lyme. Its a very scary and financially crushing disease.
I really would like to give this treatment a full try if we can afford it, as well as my parents. We've had many conversations with them about it, and for now my Husband and I have put our dreams of having a home on hold until I'm well. Its a hard decision for all of us, however I do feel the worst for my parents sinec they are shelling out the majority of the bills since I can't work and am not on disability…I'm thinking of filing but I may have to get a lawyer, somehow they don't see Lyme as a disability. I've talked to several people and they warned me how horrible they will be to me. I don't get it…I'm unable to drive, use a cane and wheelchair half the time, and can't work?! Makes no sense- always amazing to me how corrupt our health-care system is, yet I've known of people who have been on disability who have the lesser of my problems and have received it no problem.
Filed under: Brain tumor, Doctors, Life, Lyme Disease | Tagged: Brain tumor, Cancer, Doctors, Lyme Disease | 2 Comments »
So much has happened since my last entry and this time I'm not writing about whats going on in my life, I'm hitting a subject that most people in the world can relate to…CANCER.
My Grandfather, who lives with us got diagnosed with a Malignant Brain Tumor called a Glioblastoma . Its not only been a COMPLETE SHOCK to all of us but, it has been extremely hard to accept the fact that he had been a very healthy 79yr old Man who now might not have much time left with his family. This type of tumor he has not only grows within months, but the survival rate even with surgery is not good. The worst is, if you knew or know my Grandfather..well there are no words…he is the most amazing person I think I've ever known, he has such a good heart and a love life and his family. He Has never said a bad thing in his life about anyone. Has never raised his voice at his wife nor family. I've only ever seen my Grandfather angry once, when my Grandmother got sick; he questioned everything in his life.
Everyone I know loves him. Even the places that he goes out to eat at during the week he is a popular man. They have sent cards and have called my Mom hoping to see him again soon in their restaurant. Our phone was ringing off the hook so bad everyday with phone calls to see how he is, that it got to the point that my Mom had to ask my Dad and extended family to help return all the calls that we were getting. My parents, as some of you know who are in this stage of your life, they now are taking care of their parents. However, My Mom never imagined nor did we that she might now loose another parent so soon again.
The thing that has made this whole entire family angry over this is not only is he a GOOD MAN, but he has just suffered a very hard 3-5 years watching his wife die of Dementia Altzheimers, and many years of her being severely ill since she was in her late 20's with many other things. My Grandmother lived her entire life in pain, although if you knew her, you'd never know it. I have never seen anyone love someone unconditionally as much as my Grandfather loved her. They had an indescribable love even in their late years. One that you don't see often in this day and age! Over 5o years of marriage..I've only been married three years and I can only wonder the pain of his loss. Even when as sick as she was with her Dementia, he took care of her night and day, bathing her, dressing her, feeding her, along with the help of us at times. Of course refusing to put her in a home. Since I was a little girl I always wanted that type of relationship with a man, and a husband like my Grandfather. luckily by the Grace of God I married that kind of Man. He is my ROCK, MY BESTFRIEND, and I don't know what I'd do without him. He reminds me in so many way of my Grandfather, which makes me love him even more♥
After many talks with my Grandfather telling me how much he missed my Grandmother, admitting that he lost her a long time ago when she became sick, she wasn't the same Shirley. He has longed for that Companionship in his life since she passed. He always felt guilty for feeling that way, but we told him there is nothing wrong with wanting that in our life. Then around June he met or should I say knew an another amazing woman who has captivated his heart. The wife of one of his deceased friend's Bill who died of cancer three years ago. They used to play baseball back in the day together. They both say its as if my Grandmother and Bill knew they needed eachother. She has been there through this whole family ordeal, sticking by his side. We are so grateful for her and truly believe that my Grandmother sent her to him, to help him through this journey. Unfortunately the time they have together seems short-lived due to this tumor. Which makes all of us so mad since he finally seems HAPPY AGAIN since my Grandmother got sick and passed on. I hadn't seen him smile in so long…and she's brought that back into his life. He's been like a high school boy in love!!
When my Mom got the diagnoses and was told by his doctor that they could do the surgery, but it might only give him 14months, maybe less, or more. It just didn't seem fair…I honestly don't know how my Mom is keeping it together. Since he lives with us we all blame ourselves for not seeing signs sooner. He hadn't been feeling good around July, but the doctors thought he was having mini heart strokes…until he got an MRI and we received the bad news. We were told after his surgery almost two weeks ago that the tumor was the size of a grapefruit. They had gotten most of it out and he seemed to be responding well, until we received a call from my Dad and his girlfriend that 'Someone' had moved him out of ICU without speaking to my Mom and he tried to get out of bed to go to the bathroom and fell!! A nurse left his side for at least 20mins or so knowing that he had to have supervised care. I mean this man just had brain surgery a week ago!! Plus Anesthesia stays in your body for at least a week or so.
When we got the call my mom looked pale as a ghost. Not only did he fall on his head but broke his nose as well and was laying there apparently unconscious for over 15mins!! How does this happen at a City Hospital in Philadelphia, where you think your getting the proper care he needs??!! The nurse was suspended for a day..big whoop and no apology from anyone at that time. My Dad said he looked so bad from the fall when they came into his room, dry blood still on him and his face puffed up and his left Eye Black and Blue and swollen shut from the fall. He told us he doesn't even remember what happened to him. When I saw the pictures my dad took with his phone I got so emotional, I had to put it down. I didn't even recognize my own grandfathers face it was so bad!! It was HEARTBREAKING..My Dad and his Girlfriend were so sick to their stomach by the time they got home from the hospital. My Mom on the other hand in disbelief that this could of happened, knowing that this will fully set him back. He was to undergo therapy at a center a week ago near by, but now his condition has gotten worse. The worst of it is no one knew who ordered him to be transferred out of ICU, and my Mom after three messages to the doctor that night no one calling back to even apologize and fix the situation. We are told that the fall may have set him back due to his strength and recovery time. I just can't imagine a 79yr old man enduring such a thing. Surgery is bad enough, but now this!
The best way I've tried to think of out of this whole situation is I have been so blessed to have such wonderful Grandparents who lived here for over 10 yrs. Thats something I'll never forget, the memories are sacred, and I have to believe everything happens for a reason even when its not they way I or my family would want it to. I just pray that he will recover from the pain he is enduring and that my family, especially my Mom can get through this hard time in her life.
Filed under: Blogging, Brain tumor, Cancer, Life | Tagged: Brain tumor, Cancer, Glioblastoma | Comments Off on My Grandfather
"I'm Not Superwoman, but I'm Fighting Lyme Disease, So Close Enough"
This Sunday, on Mother's Day 2015, in early morning after 8am. I'll be sharing my 30 year battle with Lyme Disease on Fox 29 Philly News and with so many other Lyme Patients out there who are fighting this. I feel so honored to have this voice to help those who may not know what is wrong with their children or their own health. My parents were not so lucky. They fought hard for 15 years to find out what was wrong with me, shut down by Doctor after Doctor and fighting with my Teachers and Schools too.
I hope to inspire other Mom's out there to never give up no matter how many times you may fall down. I am still fighting the battle and have come pretty far. With two relapses since March 2004 due to a number of things I was unable to prevent. I even had to deal with the diagnosis of my beautiful 3 year old daughter at just 14 weeks old in February 2012, born via Surrogate. I'll be sharing her story too as well as talking about the projects I've worked on since for Mom's out there to get the support they need.
I was dealt this hand at a young age, but have truly believed after getting through some very dark times that this is the reason I was chosen this path. Yes, I could of went to college, had a job and maybe even a dancing career like I always dreamed of. However, if I did I probably wouldn't of met the love of my life. Had a sensitivity towards others, a passion for living life to the fullest, or been given so many blessings and met so many other beautiful Lyme Warriors along the way. I know compared to many "Healthy" people, to never take a good day for granted. That doing things like being able to cook dinner for my family, go to the grocery store and run errands, give my daughter a bath or play outside with her means so much because to a Mom with Lyme those days are far and few between.
I'm so appreciative of everything God has given to me. Especially my family! They have sacrificed so much and have been effected emotionally and financially due to my illness. I hope on Sunday I can give more Parents out there hope and those just diagnosed to keep fighting and never give up! One day we'll get the respect this illness so rightfully deserves from Doctors, the IDSA, and others. It's getting better…I can feel it and see it everywhere around me. I pray it continues even if it's one step at a time.
Me speaking at the Capitol for the Lyme Bill, my Wonderful and Supportive Parent's John & Roxanne and my Daughter Hannah as a baby.
(left to right) Protesting with my Sister Jessica, myself, friend Dawn and fellow Lyme Warrior Morgan.
My Husband Brian and Daughter Hannah Marie❤
Filed under: Lyme Disease | Tagged: Awareness, Fox 29, Health, Lyme, Lyme Disease, News, Philadelphia, Philly, ticks | Leave a comment »
So scary!!
Originally posted on Lyme Handbook:
Excerpted from CBS New York: (04/08/2015)
NEW YORK (CBSNewYork) — It's even worse than Lyme disease. Ticks in our area have been found to carry a rare, potentially life-threatening, virus.
As CBS2's Tracee Carrasco reported, doctors have warned that the Powassan virus, a rare, tick borne illness could be serious. It doesn't have a treatment or a cure.
"The doctor just has to support you during the acute illness and hope that you survive," Dr. Daniel Cameron explained.
Dr. Cameron is the President of the International Lyme and Associated Diseases Society. He said that if bitten by an infected tick you can get the virus within a matter of minutes, and while the symptoms are similar to Lyme disease, they are more severe.
For more: http://newyork.cbslocal.com/2015/04/08/doctors-say-tick-borne-powassan-virus-is-worse-than-lyme-disease/
Filed under: Lyme Disease | Leave a comment »
Originally posted on Music Row Girl:
Remember how Avril Lavigne has an undisclosed illness?
Well now she's letting the cat out of the bag and telling us what it is!
I've been wondering for months why Avril has practically been in hiding and why she's been so secretive with what illness she's been dealing with.
Well there's no need for any of us to wonder anymore, because Miss Lavigne has now told us that the "undisclosed health issues" she's been dealing with is Lyme disease.
AL said the following about her illness: "I felt like I couldn't breathe, I couldn't talk and I couldn't move. I thought I was dying. I had complete weakness and fatigue. One night I tried to brush my teeth on the tour bus and couldn't even stand. There were definitely times I couldn't shower for a full week because I could barely stand. It felt like having all your life sucked out of you."
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Originally posted on The Music Vision:
Avril Lavigne visited Good Morning America on Thursday morning (April 16) to talk about her long absence from the public eye, which fans only recently learned was the result of a prolonged bout with Lyme disease — and also to premiere a new song.
"I went from doctor to doctor for about eight months until I found somebody that had the knowledge of Lyme disease and the experience of treating it," the singer told GMA, adding that the disease had left her more or less bedridden for months.
Now, courtesy of a stringent diet and exercise routine and copious rest ("I've never had this much downtime in my life," the singer said), Avril is getting back on her feet. On the show, she shared "Fly," her first new song since 2013. The track is dedicated to the Special Olympics, and accordingly, the video stars some of the event's star athletes. As Avril…
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I've already received 4 messages from people just in this last week regarding Tick bites. PLEASE, PLEASE remember right now the nymph (babies) ticks are out!! So when you are outside whether you are hiking, playing in the yard, gardening, camping or even at a local park do a tick check when you come home. Here are some tips I would suggest too…these are cheap products that can help.
1. Wear some kind of hat
2. Wear light colored clothing so that you can see the ticks
3. Cover any or all exposed areas such as your ankles, arms, & legs. Ticks love the warmer spots like your Ears, armpits, groin, etc. I know it can be hot to wear long clothes in the spring/summer so if you prefer there are products that help protect from ticks such as…
A. Permethrin Spray, this is good through 6 washes of clothing-http://www.walmart.com/ip/21947774?wmlspartner=wlpa&selectedSellerId=0&adid=22222222227022234839&wl0=&wl1=g&wl2=c&wl3=40968437432&wl4=&wl5=pla&wl6=78911591192&veh=sem
B. Spray with DEET to apply to the skin- http://www.amazon.com/Deep-Woods-Sportsman-Insect-Repellent/dp/B000WOU414
C. Natural spray is also good for kids and if you don't want the chemicals on your skin is- Repel Insect Spray
D. For your lawn there are many different things you can do. Remember ticks love the to hang by the edges of your yard and walking paths. They HATE the Sun but LOVE the shade so putting things like your kids swing set in the shade isn't the best idea. Here are a few products to help- http://www.tickencounter.org/prevention/protect_your_yard
E. Don't forget about your pets! Use a pet product on them to help prevent ticks as well. Remember to check them when they come inside and one of the best things I can tell you as well. Do not allow them to sleep in bed with you at night. I've had many people with stories of ticks transferring from their pets onto them- http://www.1800petmeds.com/Flea+++Tick+Prevention-cat50.html
F. When Hunting there is a Tick prevention suit and clothing you can wear. In fact my Father In-law uses one and says it works great!- http://www.cabelas.com/catalog/search.cmd?form_state=searchForm&N=0&fsch=true&Ntk=AllProducts&Ntt=Tick+prevention+clothes&x=10&y=6&WTz_l=Header%3BSearch-All+Products
Reputable Lyme Disease Info-
Have a fun this Spring/Summer but please be safe! Share this post and if any questions feel free to contact me
Filed under: Lyme Disease | Tagged: Activism, Antibiotics, Awareness, Babesiosis, Bartanella, Borrelia, Camping, Children, Deer, Deer Ticks, Gardening, Health, Hunting, Insects, Lyme, Lyme Disease, Lyme Disease Prevention, Nymph Ticks, Outdoors, Spring, summer, Tick Spray | 3 Comments »
If you are in the Oregon area come out and see the Award Winning Documentary about the biggest epidemic worldwide! Discover why Lyme Disease is even bigger than AIDS right now in our community's. How the CDC and IDSA discriminate against our Drs and llmd's willing to treat us beyond the medical guidelines. Countless people sick, misdiagnosed and dying. PLEASE EDUCATE YOURSELF!!
Filed under: Lyme Disease | Tagged: documentary, Free, Lyme, Oregan, ticks, Under Our Skin | Leave a comment »
Originally posted on Elle and the Auto Gnome:
Yes, it's that time of year again. It's time for the third annual health activist awards when we get to vote for all of our fave health activists / bloggers out there who have made a difference to us patients. :-D
I've been happily voting for bloggers, it's so fab' to get to share the love :-D
All you need to do is follow the link here and add the weblog (or Twitter or Facebook information depending on where they write and post), and click on the award that you are nominating them for. You can do so anonymously if you prefer. When asked for the nominee's contact info'.. an email, Facebook page or Twitter account are all ways for WEGO to let them know that they've been nominated.
Of course if you want to vote for little ole me I would not complain! ;-) In fact some of…
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Recent Articles by Peter Reinhart :
#1 2011-01-27 10:24
Hi Peter,
Thanks for another great episode. The latest one does lead to a few questions. Can you tell us approximately how long this whole process lasts from start to finish? It would appear there is no retardation period, correct? What would really be helpful to those of us trying to learn how to reproduce this great dough would be a timeline from start to finish of what you do when.
Many thanks for your very informative videos!
Jim S.
#2 2011-01-27 17:44
Thanks Jim,
From what we could tell there is a retardation period after the dough balls are shaped. They are then put in dough boxes and held overnight in the refrigerator, and then shipped the next day to the restaurant where they are given time to proof at room temperature before they go into the oven. I don't believe there is any bulk fermentation after the mixing stage--just a little floor time while the dough waits to go into the divider. Most of the magic happens, in my opinion, during the overnight retarding (ie, cold fermentation). Can't give you more specific time lines than that, but it's a pretty straightforward process and the refrigeration (retarding) allows for a lot of flexibility. I hope this helps.
#3 2011-03-01 12:10
Thanks for the inspiration AND how-to. One question... what is that great background song?
#4 2012-03-04 15:49
It is impossible to know the secret ingredients but the color of the additive looked like it contained some rye flour.
#5 2014-10-02 16:59
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Pizza Quest is a site dedicated to the exploration of artisanship in all forms, wherever we find it, but especially through the literal and metaphorical image of pizza. As we share our own quest for the perfect pizza we invite all of you to join us and share your journeys too. We have discovered that you never know what engaging roads and side paths will reveal themselves on this quest, but we do know that there are many kindred spirits out there, passionate artisans, doing all sorts of amazing things. These are the stories we want to discover, and we invite you to jump on the proverbial bus and join us on this, our never ending pizza quest.

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Backgammon although at first sight can be easily seen as a very simple game, this is extremely far from the truth. Indeed when the game is played only for fun there is no need to know advanced strategies and other important things related to this board game. However if you decide that you want to try backgammon by playing it for real money then you certainly need to evolve from the beginner player status. One of the best ways to accomplish something like that is to read backgammon books. Some of the best books will definitely help you to see the game in a much more different perspective. Beside that such an guide will give you valuable tips on strategy, tactics and the best ways to approach the game.
Here is a selection of extremely good backgammon books:
Backgammon, The Cruelest Game – written by Barclay Cooke and Jon Bradshaw.
This book was written before the Internet backgammon era, in 1974. According to the authors this board game combines both luck and skill in such a manner that is extremely possible for the backgammon beginners to outlast real champions with some unfortunate rolls. The book starts by presenting the rules of the game and then continues with opening moves and some fundamental tactics. The highlights of Backgammon, The Cruelest Game are the chapters on the backgame strategy, odds and probabilities.
Backgammon Boot Camp – written by Walter Trice
Backgammon Boot Camp was published seven years ago, in 2004, and basically it is a compilation of articles which are extremely helpful for the novice players that want at some point to advance to the intermediate level. This book covers a wide range of backgammon strategies and tactics. There are presented in detail strategies such as diversification, duplication, and connectivity. Beside that the book also gives a a clear idea about using efficiently some of the most popular backgammon tactics such as building primes, securing anchors and opening rolls.
Modern Backgammon – written by Bill Robertie
This is a book which is dedicated to the advanced players and it was published in 2001. This is certainly not a publication that will help you to improve you skills in real world playing. It focuses strictly on strategies and skills which can be comprehended from the backgammon computer applications. If you are passionate about playing backgammon on the web then certainly that Modern Backgammon is the right book for you.
Backgammon – written by Paul Magriel
It was published in 1976 and even in at this moment the specialists are still considering this publication as one of the best introductory books. Backgammon begins with a detailed section regarding the rules of this board game. Then the book offers to the reader a very good perspective regarding the strategies to use when playing backgammon such as playing opening rolls, running game, the holding game, the attacking game, pip count and also probabilities and basic odds. This is a book that is recommended to be red twice by those people that are extremely passionate about playing backgammon.


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Audio Samples
Album Summary
Notes & Reviews:
The Mysterienszenen were inspired by Rudolf Steiner's Mystery Dramas. As Lampson's grandparents had personally witnessed Steiner's performances, he became acquainted with them as a young man.Notes & Reviews:
Recording information: Jesus-Christus-Kirche Berlin-Dahlem (09/09/2011-09/11/2011).
ReviewsThere are currently no reviews, be the first one!
Also Purchased
Works DetailsLampson, Elmar : Mysterienszenen, for flutes, strings & drums
- Conductor: Yoel Gamzou
- Ensemble: Soloist Ensemble of the International Mahler Orche
- Running Time: 56 min. 53 sec.
- Period Time: Contemporary


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The Washington Capitals earned their 40th win of the season against the defending Stanley Cup champion Chicago Blackhawks. The Capitals extended their season-best winning streak to 8 games and pulled within 1 point of the Eastern Conference-leading Philadelphia Flyers. In a back and forth game that saw lead changes, special teams goals, and lots of excitement and drama, the Capitals came out with a huge win against a tough opponent.
Marcus Johansson once again filled in for an injured Nicklas Backstrom, and he made the most of it, assisting on Mike Knuble's game-winning goal in overtime. While Alex Ovechkin was held off the scoresheet, the Caps got special teams goals, a goal from the third line, and 2 assists from Dennis Wideman. In fact, the Capitals got a goal from each line today.
The Good: The Caps didn't score first, but they scored early and often. After an early goal by the 'Hawks, the Capitals responded with a shorthanded goal by Boyd Gordon and a powerplay goal by Jason Arnott, both on big slapshots, and they ended the period uo 2-1.
The Bad: Marcus Johansson took an offensive zone penalty in the first period. Johansson is certainly showing his skill lately, but his inexperience is also showing through. He doubled his penalty minutes in one game, and he made a blind centering pass that was intercepted, but as rough as he is around the edges, he's been solid between Alex Ovechkin and Mike Knuble.
Allowing the Blackhawks to tie the game with 39 seconds left. Even if they have pulled the goalie for a 6-on-4 advantage, allowing a tying goal in the final minute of a game is a back-breaker. Fortunately, the point the Blackhawks earned can't be used against the Caps in their race up the Eastern Conference standings.
The Ugly: Jason Chimera, and it was great. Chimmer had a couple of scoring chances created mostly by using his speed and crashing the net. He crashed the net with such authority late in the second period that he was drawn into a fight by one of the league's top defensemen, Brent Seabrook.


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Waterford — The first semifinal matchup Wednesday night made certain there would be a new champion of the Eastern Connecticut Conference boys' basketball tournament, as six-time defending champ New London fell.
The second game made certain that the new king would not be top-seeded Ledyard High School, as the Colonels were upended by No. 4 Norwich Free Academy, owners of a six-game winning streak since last falling at the hands of Ledyard during the regular season.
"It was a winnable game. We didn't win. That's all," New London coach Craig Parker said. "… It's not a happy time."
No. 3 Woodstock Academy defeated No. 2 New London 62-55, preventing the Whalers from reaching the tournament final for the first time since 2003. NFA then followed with a 24-point performance by Marcus Outlow, who gave the Wildcats a lead they would not relinquish with back-to-back 3-point field goals early in the third quarter, beating Ledyard 63-57.
It was the second straight semifinal loss for Ledyard as the top seed; meanwhile, it's the 10th championship game in the last 14 years for NFA, the first under coach Chris Guisti, in his inaugural season.
Woodstock (18-4) and NFA (17-6) will meet in the championship game beginning at 7 p.m. Friday night at Waterford High School. That game will be streamed live on theday.com.
"We knew if we kept in the game, within five or four, we could beat them," said Outlow, headed to Boston College on a football scholarship but certainly sure-handed in the clutch Wednesday, as well, hitting 6 of 8 free throws in the fourth quarter.
"Coach always tells us to step on the other team's neck. Ledyard is a good team, well-coached, but we knew once we got the lead, we could extend it more. Last time we played Ledyard, we let it go at the end (falling 58-52 on Feb. 11); we said, 'If we see this team again, we need to finish the game.
"I'm just thankful."
Six-foot-six senior Mike Ryan added 15 points for NFA and junior Jonathan Morrison added nine, coming in at guard because of foul trouble and thriving in what Guisti called "the most frenzied environment of the season."
Ledyard (18-4) held an eight-point lead late in the second quarter after a three-point play from Darnay Gray, but a basket by NFA's Desmond D'Elia-Miller and a steal by Outlow on which he pulled up for a 3-pointer put the Wildcats within 35-32 at the half.
Ledyard's Khary Childs started the second half with a pair of free throws, but that's just when Outlow hit two in a row from 3-point range, giving NFA a 38-37 lead.
The Wildcats pushed the lead to seven twice in the fourth quarter, in which they scored 12 of their 16 points on free throws, going 12-for-18.
DeAnte Bruton scored a game-high 20 points for Ledyard and Childs had 10.
"I'm not as upset with my players as I am about other things," Ledyard coach Dave Cornish told The Day. "I just think when they shoot 18 free throws in the fourth quarter and we shoot (19) for the whole game, I don't think that's fair to either team. We had a lead, we did what we wanted to do, but the game was taken away from you.
"I do want to say hats off to NFA. I don't want to take away from what they accomplished."
Earlier, New London (18-4) trailed by 13 points in the second quarter and was still down 12 at the start of the fourth quarter before pulling to within two in the final minutes against Woodstock. Woodstock went 0-for-7 from the free throw line to start the quarter, meanwhile the Whalers went on a 15-5 run capped by a De'Vonta Robinson spin move and basket to pull within 53-51.
New London was still within two with 48 seconds remaining when Collin Sawyer drove and hit a floater to make it 57-55. Down 58-55 after a free throw by Trent Peters, the Whalers missed the potential game-tying 3, however, and were forced to foul, ending their comeback bid.
Sawyer finished with 21 points for the Whalers and Josh Maynard had 10.
Peters scored 17 for Woodstock and Will Bourgeois 14, with all five starters hitting double figures.
Former East Lyme couple accused in string of residential burglaries
New London man charged with failing to safeguard gun discharged at middle school
UPDATED: Motor vehicle accident on I-95 north in Groton cleared
Blumenthal: Amtrak should continue to honor Shore Line East tickets
Waterford beats East Lyme 4-3 to win District 6 Babe Ruth (14) title
Newly signed state budget changes funding for cities and towns
Community members celebrate SCOTUS decision of same-sex marriage
Message with possible racial overtones found in New London jury room


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Rumor Mill
Top message: Sprint to Start Accepting Food Stamps by phantom mullet
Replying to: Re: Sprint is the trailer park of the cell phone world. by killerphones
Yes, EBT or Electronic Benefits Transfer is for Food and Cash assistanace. The one card can be used for both purposes. I live in Michigan and I was laid off for a while which is why I know so much about it. I just don't think it's fair to say that they are using "foodstamps" to pay their bills when they are not. My family received "Food Stamps" but not cash assistance so we would not be able to pay a Sprint bill with the card. I would have cancelled my cell phone and dealt with the bill rather than continue to use something that I couldn't afford. I know others out there that would not. I just don't agree with the program that Sprint is setting up. If these people really need cell phones there are programs for FREE cellphones. I think that it is wrong of Sprint to take this money that could otherwise be used elsewhere and for more important things like heating and electricity. This program is why people who are getting assistance are always looked at differently.
No replies to this message


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I write in response to the Jan. 9 letter, "Medical pot? No!"
The writer doesn't want "dopey people driving and killing us on the roads." I wholeheartedly agree. However, she is misguided to criticize state Rep. Matt Gaetz for considering legislation to decriminalize a specific strain of marijuana, sometimes called Charlotte's Web, which will not get anyone high.
Charlotte's Web must be legalized in our state to help save the lives of those struggling from Dravet syndrome and other intractable epilepsy disorders. Children with intractable epilepsy have almost no quality of life. The pharmaceuticals they are now on will lead ultimately to failure of the kidneys and liver and, usually, an untimely death.
To claim that Rep. Gaetz "wants crime" is absurd. He just wants to give the most vulnerable children among us a real chance at life. In other states, children with these severe disorders have been able to consume Charlotte's Web in paste form and have, for the first time, been able to speak, ride bikes and live happier, more fulfilling lives. This is the right thing to do for those children and others with severe neurological problems.
Fort Walton Beach Tea Party


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For 30 years we've helped people get care, stay well, and build healthy communities. Our associates are passionate about helping people and they drive our success. We're looking for talented leaders, visionaries, and collaborators who want to make a real difference in people's lives.
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AmeriHealth Caritas offers a competitive and comprehensive benefits package, plus opportunities for career development and training. If you're committed to excellence and have a passion for helping others, consider joining our team.
For more information, contact Human Resources at 215-937-8000.


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Former Gators Guard Kenny Boynton Works Out With The Nets
Former Gators Guard Kenny Boynton finished a workout at the Brooklyn Nets free agent minicamp earlier today. Boynton is one of 32 free agents to participate in the minicamp at the PNY Center in East Rutherford, New Jersey. The
Brooklyn Nets Land Key Sponsorship Deal
With the highest payroll in the NBA the Nets could use more sponsorship deals like this one.
Insider: Brooklyn tops Orlando
The Orlando Magic fell to the Brooklyn Nets 98-86. The Magic were strong in the first half but struggled in the second half. The Magic trail by just one at the half but the Nets expanded their lead during


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"To read with a loud and full tone, to pronounce every syllable properly and distinctly, and to mind the pauses; --- are the three most difficult points to be gained in making good readers." ----from The Original McGuffey's Eclectic Series (The Eclectic Fourth Reader) by William H. McGuffey
Hi everyone!
Today I've been working on cleaning our homeschool room, and ran across this McGuffey's reader. Although we didn't use much of the book, I gleaned some things in it and taught a lesson or two from it. I especially liked the emphasis on having the student read aloud. Clearly. Confidently.
Isn't one of the goals we have in home teaching that our kids would read, write and speak well? It all starts with reading, of course, and simply builds from there. We have an ideal opportunity with homeschooling because when our kids stammer or struggle as they pronounce difficult words, we're there to encourage and help them during the whole process.
I'll never forget being in Mrs. Clark's third grade class. I was in one of the lowest reading groups ---the Sparrows. Who were they trying to kid? All the students knew that the best readers were the Blue Jays and Cardinals! It was embarrassing seeing the other kids try to keep from giggling as I mispronounced words and got tongue- tied. I needed patience, time and encouragement -- something Mrs. Clark didn't provide -- but something we can give to our kids as homeschooling moms!
The tendency is to encourage our young, new readers to read aloud as we sit closely beside them. I think that's great, and remember snuggling on the couch many a homeschool day hearing the twins take turns reading interesting books . But sometimes as our kids become adept at reading, we often back off on having them read aloud, and set them free to conquer reading assignments silently on their own. Of course, they certainly need to do independent work, but I think that it's good for our kids to keep reading aloud periodically all through their middle and high school years.
Our kids will get called on to read and speak in public no matter what they pursue in life. Reading aloud gives them a chance to gain confidence and to get over the fear of standing up and speaking in front of a group. Maybe you're already having your kids do this, and if so -- great! I remember when the boys were in 6th grade, they would put on their colonial triangle hats, and dramatically read Henry Wadsworth Longfellow's poem, Paul Revere's Ride. ..."Listen my children, and you shall hear of the midnight ride of Paul Revere..."
One summer at a Little League baseball game, the umpire randomly selected Justin to recite the Little League Pledge in front of the team, coaches and fans. The umpire handed him a little piece of paper and said, " Number 10 - Can you go read this over the loud speaker?"
Let's call on our children to get up (yes, stand up on occassion) and read! They'll be prepared as we have trained them ever-so-lovingly at home with tons of patience and encouragement.
Oh - one last thing. For middle and high schoolers... it's absolutely beautiful to hear them reading passages of Scripture, so do provide them with the opportunity to read to the whole family when you can! Even the younger ones can do this as well.
May the Lord help you and bless you as you strive to be the best mom you can be! Keep reading!
love, MaryAnn


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Neglect the top issues for children taken into care
Posted: January 13, 2014|
CASES of vulnerable children admitted into care in Derbyshire because of neglect has almost doubled in the last year, new figures show.
A total of 104 children in the county were admitted to care services as of October 2013 because their parents or guardians failed to care for them, according to a report to Derbyshire County Council's improvement and scrutiny committee.
The figure represents 38.2 per cent of the 272 of youngsters admitted into care last year – up from 55 cases, or 19.9 per cent, in 2012-13 when 278 were admitted to care.
A Derbyshire County Council told the Mail a combination of issues can result in children being taken in by the authorities, but the overall impact results in neglect.
The spokesman said: "We work with children and families across Derbyshire to provide support where it is needed to help prevent youngsters coming into care wherever possible but, sadly, this is sometimes necessary."
Neglect was by far the most prominent reason why children were taken into care with physical abuse the next biggest cause at 22.2 per cent of cases for 2013.
Substance misuse, including alcohol abuse, was the third most prominent issue with 18.1 per cent - up from 17.6 per cent in 2012-13 - of children taken into care for this reason.
Parents who are unable to look after children, domestic violence, drug abuse and mental health issues can result in a child suffering from neglect and the authorities taking action.
Intensive support to families at risk of neglecting their children is offered in Derbyshire through the county council's Graded Care Profile, Intensive Family Support Service and the Thriving (Troubled) Families Strategy.
The spokesman added: "Targeted help is given by professionals such as our social workers, family support workers and children's centre staff, as well as partner organisation staff from health and other agencies, who work alongside us in our multi-agency teams."
Anyone who is concerned about the welfare of a children can call the county council on 01629 533190.


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WESTPORT - On Saturday, April 18, Essex County Soil and Water Conservation District and the Cornell Cooperative Extension Master Gardener Volunteers will hold a Workshop at the Essex County Fairgrounds, Westport to provide information to local landowners on the planting and care of tree and shrub seedlings.
From 10 a.m. until noon, the Conservation District staff will discuss site requirements and the importance of soils in choosing seedlings. The uses of seedlings for wildlife, windbreaks, erosion control, shoreline protection and the best trees for the project. The District will also discuss programs available to purchase seedlings and possible technical and financial assistance in carrying out planting projects.
The workshop will be provided free to local landowners but please call 962-8225 or 962-4810 to reserve your space today or if you have any questions.
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National Park Service
The U.S. National Park Service does a great job presenting all the information needed for visiting the parks, each with its own home page and links to other non-NPS sites. There are also comprehensive sections on the Past (historical, cultures, and places) and on Natural Resources (including air, water, geology, wildlife, and plants). (LII)
New York Today
A collection of free articles and multimedia from The Times as well as hotel, restaurant, sightseeing information and travel tips from Fodor's for New York City.
SF Gate
Articles on news and culture from the San Francisco Chronicle.
Surf and Sun Beach Vacation Guide
Links to commercial beach vacation travel sites.
Time Out
"Huge amounts of information about the world's greatest cities."
Comprehensive source of travel advice, information, flights, bargains, and vacation packages.
USA CityLink
A comprehensive listing of states and cities offering information on travel, tourism, and relocation with detailed city guides as well as official and independent city and state websites.
USA Today: Travel Guide
Travel news and information from USA Today.
World Travel Guide
Provides an in-depth World City Guide, with information on over 100 culturally important cities and a World Events and Attraction Guide, World Cruise Guide and a collection of images, films and maps in a World Image Guide.
Subscription -based site provides consumer survey–based dining, travel and leisure information, with more than 250,000 voters participating worldwide providing ratings and reviews for over 25,000 restaurants, nightspots, hotels and attractions and find exactly what you're looking for quickly and easily.


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Companies that choose Source One Management Services, LLC as their Procurement Service Provider are often the leaders in their industries and are often early adopters of the latest industry best practices.
Once savings opportunities are identified, Source One ensures they are obtained by providing hands-on implementation support and ongoing continuous monitoring and auditing of the initiative. After implementation, Source One continues to manage the category to guarantee the most cost effective long-term solution for our customers.
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- Through our electronic toolset, WhyAbe.com we enable our customers with the tools necessary to repeat the sourcing initiative on their own. WhyAbe is provided completely free and their are no on-going maintenance costs associated with its use. More on WhyAbe.com
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Source One provides Procurement Solutions for mid-market and larger organizations. Our solutions include free procurement software as well as traditional procurement consulting services such as spend analysis, statement of work building, RFX management, and contract negotiations.
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As written for Social Media Today
Earlier this year Gartner predicted that more than 60% of Fortune 500 companies will "actively engage" customers with Facebook marketing by 2013. One company, GraphEffect, has been helping fulfill on those estimates. GraphEffect serves as a collaboration platform for Fortune 500 brands and agencies to coordinate their marketing initiatives. Companies like American Express, Samsung, and others have used networks of social collaboration to deliver on a variety of functions including planning, content creation, analysis and measurement.
Effective today, this reach gets bigger. GraphEffect is opening its social network to a broader audience. Now, you needn't be on a Fortune list to participate. SMBs, consultants, and marketers, and others can join the world's largest social network for marketers to build teams, design creatives, and launch initiatives both within and between companies. What's worked well for the big boys, is now available to the masses.
Merely two years old, GraphEffect entered the social advertising environment with a much needed solution for the often complicated and inefficient communication between brands, advertisers, creatives and buyers. Today's move makes social media marketing more accessible to the wealth of marketers taking it on. "Marketing has evolved dramatically over the past few years, primarily as a result of social, but the way marketers do their jobs has not." said CEO and Co-Founder James Borow. "Our goal is to disrupt the marketing ecosystem by building the platform that brings all the different parties together and helps marketers work together smarter."
Key features of the platform available at launch include:
- Teams – Keep Everyone on the Same Page: Getting your job done doesn't mean just working inside a single organization. Teams allow you to collaborate with coworkers, agencies, vendors, or anyone you do business with.
- Sidebar – Private conversations in context: Sometimes you can't say what you need to say in a conversation thread.  Sidebars allow you to ask a question or get clarification in the context of the original thread and communicate privately with only the people you want to talk to.
- Follow Ups – Keep track of the important things: Marketing initiatives have a ton of moving parts. Follow Ups help you remember what you need to do later without taking you away from what you are working on now.
- Apps – Do Real Work Together: You use a bunch of different tools every day to get your job done, but how do you bring your coworkers with you while you work? Â Apps can easily integrate all the collaboration features of the platform and enable you to truly do work together.
So what are you waiting for? Send them a note, and request an invitation. Then come find me and my team, and we'll market together.
Connect with Andre Bourque (SocialMktgFella) at Blog | Twitter | LinkedIn | Google+


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The difference between the short and long-term carbon cycles seems to be overlooked in "The rush towards renewable oil" (21 May, p 6).
Planting tomatoes and trees or growing algae only "offsets" fossil-fuel carbon emissions until the tomato is eaten and respired, the tree dies and rots or the biofuel is burned; the carbon from the fossil fuel is re-released and still eventually contributes to global warming.
The statement that "firms would no longer have to invest in technology to bury the greenhouse gas [carbon dioxide] safely" is short-sighted.
The purpose of renewable oil is to reduce our reliance on fossil fuels, not to permit their use.
To continue reading this article, subscribe to receive access to all of newscientist.com, including 20 years of archive content.


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I stayed there during my first trip to Costa Rica in April of 2008. It's located next to Hilton Papagayo resort (which is excellent in every respect) and thus much more expensive. The check-in took forever (they were cleaning our rooms?) but I got much better room than expected (with a private balcony and the view of both the bay... More
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text: Rates for 2014 & 2015 begin at $4500 and dates are going very quickly! I am a fine art photographer who mostly uses film. Please use the contact form at the top right to receive information on our collections and to setup a meeting. I am based on the US East Coast but travel extensively photographing people & events.


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Published: February 4, 2011
Weather forecasts continue to call for freezing temperatures through Friday evening, with ice accumulation affecting roadways through early Saturday. All St. Luke's Episcopal Health System facilities are open with no expected disruption in patient care. We will remain staffed to continue to ensure the safety of patients, their families and employees.
Return to News and Events.
CHI St. Luke's Health | 6624 Fannin, Suite 1100 | Houston, Texas | 77030 USA
CHI St. Luke's Health: Baylor St. Luke's Medical Center | Sugar Land Hospital | The Woodlands Hospital | Lakeside Hospital (located in The Woodlands, TX)
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The gene that causes a common type of leukaemia can be blocked in cancerous cells without damaging healthy ones, say scientists in the US. The findings suggest that gene therapy for the disease is a distinct possibility, if an expensive one.
'This is a first step,' says Cezary Szczylik, a member of the team who led the work in Bruno Calabretta's laboratory at Thomas Jefferson University in Philadelphia. Although the team has worked only with cells in culture so far, they expect to start studies in mice soon.
About one in 10 of the new cases of leukaemia diagnosed every year is chronic myelogenous leukaemia (CML) - a disease which results from a swap of genetic material between chromosomes 9 and 22. A piece of the so-called 'breakpoint cluster region' on chromosome 22 becomes attached to chromosome 9, while chromosome 9 loses a gene known as abl which fuses to ...
To continue reading this article, subscribe to receive access to all of newscientist.com, including 20 years of archive content.


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Anacamptis laxiflora (Jersey orchid)
Anacamptis laxiflora (Jersey orchid)
Species information
Anacamptis laxiflora (Lam.) R.M.Bateman, Pridgeon & M.W.Chase
Jersey orchid, lax-flowered orchid, loose-flowered orchid
Not considered to be threatened, although populations have declined throughout its range.
Damp calcareous grassland or grassy woodland, in full sun.
None known.
About this species
The specific epithet laxiflora refers to the loose way in which the flowers of Jersey orchid are arranged. The large, red-purple to violet flowers face in all directions and can be seen from March in southern Europe, to late May in the UK. In France, Jersey orchids are commonly known as des pentecôtes – a reference to Pentecost or Whitsuntide, which is roughly when these orchids flower.
Like many terrestrial orchids, Anacamptis laxiflora is associated with a symbiotic fungus throughout its whole life. The orchid's tiny seeds have no food reserves and rely on their fungal partner for sufficient nutrition to germinate.
Orchis laxiflora Lam.
Discover more
Geography and distribution
Anacamptis laxiflora is native to western and southern Europe, where it is found from the Channel Islands southeastwards to Greece, Cyprus and Turkey.
Overview: A terrestrial orchid with a loose spike of large, red-purple to violet flowers. It dies back during autumn and winter (dormant season), surviving as an underground tuber. It grows up to 1 m (but more commonly 30–80 cm) tall.
Leaves: Strap-like, green with no mottling, 10–15 cm long and 1–2 cm wide.
Flowers: Appear in March in southern Europe, and May to June further north. Arranged in a loose spike up to 25 cm long, comprising 6–20 individual flowers that are up to about 2.5 cm wide. The sepals are held upwards and backwards, whereas the two petals form a small helmet over the column. The lip has three lobes, the central one usually much shorter, and the side lobes are folded backwards. The middle of the lip is white or pale pink and sometimes has a few faint spots of darker pink. The spur is around 1 cm long and held horizontally or slightly upwards behind the flower.
Seeds: Numerous, tiny, dust-like, dispersed by the wind.
Jersey orchid is similar in appearance to Anacamptis palustris, and the two will hybridise where they grow together. However, this is relatively rare because they usually grow in different habitats.
Some authors recognise several subspecies on the basis of floral morphology and distribution. However, others argue that these populations are the result of hybridisation with A. palustris.
Threats and conservation
Although locally common across much of its range, Jersey orchid populations have suffered a decline due to modern agricultural practices, such as the draining and fertilising of damp pastures and hay meadows.
A number of sites on Jersey support good populations of Anacamptis laxiflora, and some are now managed with these orchids in mind by the Jersey National Trust. Wet meadow at the edge of the Rue de Pres wetland, for example, is managed by hay-cutting followed by grazing – a regime which has seen orchid numbers rise from 60 to 750.
In 1996, plants raised from wild-collected seed by Kew's Micropropagation Team were sent back to Jersey and re-introduced to the wild to bolster natural populations.
Jersey orchid is occasionally cultivated as an ornamental.
Millennium Seed Bank: Seed storage
The Millennium Seed Bank Partnership aims to save plant life worldwide, focusing on plants under threat and those of most use in the future. Seeds are dried, packaged and stored at a sub-zero temperature in our seed bank vault.
A collection of Anacamptis laxiflora seeds is held in Kew's Millennium Seed Bank based at Wakehurst in West Sussex.
See Kew's Seed Information Database for further information on Anacamptis laxiflora seeds.
Jersey orchid is one of the easier Anacamptis species to cultivate, although they can all be challenging. It can be naturalised in short turf in warmer parts of the south and west of the UK, as long as the soil does not dry out. The grass should be mowed, but only in late summer or early autumn, after the plants have flowered and set seed.
Anacamptis laxiflora can also be grown in pots in a cool greenhouse or alpine house, which is the best option for cooler parts of the UK. Tubers should be re-potted annually in late summer when the plants are dormant, using a compost mix containing three parts loam, three parts grit, two parts leaf mould and one part pine bark. The plants should be kept moist while they are in full growth, but kept drier when they are dormant – at which point the flower spike starts to die down.
Propagation is by seed or by separation of the new tuber.
This species at Kew
Jersey orchids can be seen growing in the turf in the Slips, below the Mansion at Wakehurst Place. These plants were part of a re-introduction trial. Grown in Kew's micropropagation laboratory, the first plants were planted out in the autumn of 1987.
Two years later, 35 flowering spikes were counted, and today there are hundreds, carefully managed by Wakehurst staff. The best time to see them is in May, when you may also see tongue orchid (Serapias lingua) and common spotted orchid (Dactylorhiza fuchsia).
Dried and spirit-preserved specimens of Anacamptis laxiflora are held in Kew's Herbarium where they are available to researchers by appointment. The details of some of these specimens, including images, can be seen online in Kew's Herbarium Catalogue.
Ground-breaking orchid propagation
Jersey orchid was the first terrestrial orchid species to be raised in Kew's micropropagation laboratory as part of the Sainsbury Orchid Conservation Project.
Growing terrestrial orchids from seed can be challenging because they often need a particular symbiotic fungal partner to germinate successfully. By inoculating the growth medium (agar) with a fungus found in a different orchid species, and by finding the correct growing conditions, the Kew staff cracked it!
After the plants were hardened off, a re-introduction trial was carried out at Wakehurst Place. This was successful, and the techniques developed with this relatively common species were then used for rare plants such as lady's slipper orchid (Cypripedium calceolus) and fen orchid (Liparis loeselii).
References and credits
Clennett, C. (2011). Wild about orchids. Kew Magazine Summer 2011: 46–51.
Cribb, P. & Bailes, C. (1989). Hardy Orchids: Orchids for the Garden and Frost-free Greenhouse. Timber Press, Portland, Oregon.
Muir, H. J. (1989). Germination and mycorrhizal fungus compatibility in European orchids. In: Modern Methods in Orchid Conservation, ed. H. Pritchard, Cambridge University Press, Cambridge, UK, pp. 39–56.
Pridgeon, A. M., Cribb, P. J., Chase, M. W. & Rasmussen, F.N. (2001). Genera Orchidacearum, Volume 2: Orchidoideae (Part 1). Oxford University Press, Oxford, UK.
Wood, J. & Ramsay, M. (2004). Plate 482: Anacamptis laxiflora (Orchidaceae). Curtis's Botanical Magazine 21: 26–33.
Kew science editors: Beccy Middleton and André Schuiteman
Copyediting: Emma Tredwell
Although every effort has been taken to ensure that the information contained in these pages is reliable and complete, notes on hazards, edibility and such-like included here are recorded information and do not constitute recommendations. No responsibility will be taken for readers' own actions.


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Earth's Best Tots Flushable Wipes Chlorine Free -- 50 Wipes
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Earth's Best TenderCare TOTS Chlorine Free Flushable Wipes are for potty training toddlers. Earth's Best Chlorine Free Flushable Wipes are never treated with chlorine bleach and are moistened with a gentle, natural lotion containing aloe vera and vitamin E. TenderCare TOTS Chlorine Free Flushable Wipes are unscented and soft enough for hands and face, their thick cloth-like wipes keep baby's delicate skin fresh and clean.
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Private Receptions is a full service wedding planning, design, and production company founded by Nerissa Balland and operated by Lauren Ricciardelli & Lexi Weinberg. The firm specializes in one-of-a-kind weddings that represent their client's unique style, vision and love story.
Private Receptions is dedicated to creating seamless events without sacrificing style. Together, Lauren and Lexi alleviate the anxiety and frustration that people often face when orchestrating their own wedding. Their ability to handle difficult situations with grace, and impeccable attention to detail make them a great asset to your dream wedding day.
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We're like your therapist, planner, and insurance policy all rolled into one! Not only do we relieve your worries but we protect your vision, your contractual rights and guide you to make intelligent decisions that will maximize the value of the wedding you deserve. With our personalized services we're able to guide you through the process, whether it's DIY projects or choosing a venue, with ease; creating a wedding as unique as you are. Planning a wedding is like a full time job, let us at Private Receptions help you to enjoy your wedding day with memories to last a lifetime.


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Western Ferries
Western's vehicle and passenger ferry service between Dunoon and Gourock is running on both Christmas Day and Boxing Day.
On the 25th December the service is hourly from 10.00 to 21.00 from Hunter's Quay, Dunoon; and from 10.30 to 21.30 from McInroy's Point, Gourock.
On the 26th December the service is half hourly from Dunoon between 10.00 and 18.00 and hourly from then until 21.00; and at Gourock, half hourly from 10.30 to 18.30, then hourly until 21.30.
Advance notice for Western's service on New Year's Eve is that it will run its normal timetable until an earlier last sailing at 21.00 from Dunoon and 21.30 from Gourock.
Details of the service on these dates is online here.
On all other dates, Western's normal timetable obtains.
Clydelink Ferry
The Clydelink ferry passenger service between Gourock adn Kilcreggan does not run on 25th and 26th December.
Argyll Ferries
The Argyll Ferries passenger service between Gourock and Dunoon town centres does not run on 25th December; but runs its Sunday timetable on 26th December.
Advance notice for the new year period is that on 31st December, the last sailings will leave Gourock at 21.20 and Dunnoon at 21.45. There will be no service on 1st January 2o14. The Sunday timetable will operate on 2nd January.
CalMac services do not run on 25th December – although one special service is to run between the Western Isles and Skye. This is an effort to get islanders home on Christmas Day since ferry services on Christmas Eve were almost wholly storm disrupted, with few sailings – and none to the Western Isles.
Details for this additional sailing on 25th December are, weather permitting:
- Lochmaddy – Uig 0730;
- Uig -Lochmaddy 0940;
- Lochmaddy – Tarbert 1150
Most CalMac services run on 26th December, with all back in service on 27th December.
Corran Ferry, Argyll and Bute Council
Argyll and Bute Council's vehicle and passenger ferry service between Corran Ferry, north of Ballachulish and Ardgour on the Ardnamurchan peninsula does not run on either 26th December or 2nd January 2014.
Note: We have no information on the operation of Argyll and Bute Council's ferry services between Port Askaig on Islay and Feolin on Jura; or between the Argyll mainland and the Slate Isles of Easdale and Luing.


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HOT black. My husband would love me.
I can do that.
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I'm about halfway(?) through the game, and I'm astounded at how little buzz it has gotten outside of adventure game circles. The best way I can describe it is "The Crow plus Catwoman plus Chronic Depression plus David Lynch". It's ridiculously engrossing, despite some instances of cheesy dialogue and "I clearly got my friends to record their lines over Skype, and I will make no attempt to hide this". The only things I don't much care for are the control scheme and the jittery animation.
If you liked Walking Dead, but wanted more actual puzzles, play this game. It's not as emotionally devastating (so far), but beyond the crazy violence, it's a surprisingly sincere look at depression and suicide. It feels like you get to impact the story to some extent also, but I can't tell for sure yet.
Edit: I feel like I shouldthis, as it's directly up his alley.


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Sutherland, Sharon (1989) Hans Hofmann : a painter's teacher : an historical study into the life and pedagogy of one of America's foremost teachers of painting. Masters thesis, Concordia University.
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