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Has anyone had strange or severe side effects from a spinal cord stimulator implantation? My scs caused all sorts of debilitating side effects like arthritis, fibromyalgia, chronic fatigue syndrome, weakness and numbness in extremities, and chronic/severe chills and fevers...all of which I never ever had until the SCS. Let me know your experiences. I'd appreciate it. =)READ MORE
Has anyone had strange/severe side effects from their spinal cord stimulator (scs)? Let me know pls.
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I had a spinal cord stimulator for 3 years. It was an answer to prayer for the stinging and burning in my lower extremities. The vibration was also a relief to the pain. BUT, I have just had my stimulatior removed because I have developed a, well, it is difficult to describe, a constant state of spasmed muscles from my buttocks to my toes. Even the arches of my feet cramp and pull my toes under. My stimulator was implanted in Texas at a world-wide spinal institute. When I went there with the muscle issue the doctor said, "You scare me!" A different doctor removed the stimulator, but so far there has been no relief from the spasming. I have been checked for every muscle disease doctors can think of, AND I never had the problem before the stimulator was implanted. I will go to Oschners next month for ANOTHER series of tests. So far, nothing shows up to indicate it is the reason for the spasming, so we are still thinking it has to be the stimulator. I only hope, if so, it begins to reverse. I don't want to scare others, but this is so extreme, I wanted to share. Has anyone else experienced anything like this? READ MOREWhile I have not personally used a spinal cord stimulator myself, I have done quite a bit of research on them and have read journal articles as well as what the manufacturer and governmental agencies state about them. My pain managment specialist suggested to me that it "might" be helpful for me however he did say "I have to tell you they do have risks involved with them and you need to know that". After doing all of my research, I made the decision that it was too risky for me at this time though I always keep an open mind, things do change as does technology. I felt that the manufacturer did an excellent job in telling all about the possible benefits as well as the risks involved in using spinal cord stimulation and based on that, I made my decison of "not right now". From what others have written in answer to this question today it seems as though some like them and find them helpful, others don't like them and don't find them helpful and others are in the middle. I think if you weigh everything and know all of the facts and information then you can make an informed decision along with your pain management specialist based on that. With intractable pain (chronic pain) I think that if you can get 70% success in keeping your pain down and under control, you are doing good. Good luck to you and I hope this was somewhat helpful in answering your question. Randy. READ MOREI have had my SCS for 4 years nowsand I love it. I have CRPS in my right hand, wrist and arm. The SCS is absolutely wonderful, it has worked miracles for my chronic pain. The lead is in my upper back, it did move once and had to be replaced, but that is it for concerns. Good luck to you. READ MOREHi there, I have a Nevro stimulator installed, I am very happy, it was the best thing the doctors did for me, the team who installed it were very professional, and the after care is perfect, I am sorry there are people suffering out there but I would be confident in saying there would be a lot more success story's out there. I unit has been installed for over a year now, and it is the high frequency type so I feel nothing at all and it runs 24/7, the only time I notice it is when I forget to charge it and the pain creeps in and reminds me real quick. Highly recommended it's changed my life for the better. I don't want to disrespect people and all the horror story's but the is always the other side of the fence to consider it could change your life for the better too. All the best READ MORE
Hey Patty my husband had a spinal cord stimulator implanted back in Nov.2008 he has had a lot of trouble with his he actually just got out of the hospital on June 12th because he ended up getting double nomonia in both lungs and he also ended up with ARDS ( Acute Respitory Destress Syndrome ) we didnt think he was going to make it !! The doctors are not quite sure if the stimulator caused all this or not but its a good possibility it did. They are still checking into it . So if I were you I think I would think twice about having the thing taken out . As soon as my husband can go under with another surgery hes going to have it removed . Honey I would think twice about them things they are dangerouse Im not trying to scare you I just want everyone to know what hes been thru in the past 2 months and what our family has been thru because of this spinal cord stimulator. Take care and hope you find your answer !!!READ MORE
I had a spinal cord stimulator for 3 years. It was an answer to prayer for the stinging and burning in my lower extremities. The vibration was also a relief to the pain. BUT,
I have just had my stimulatior removed because I have developed a, well, it is difficult to describe, a constant state of spasmed muscles from my buttocks to my toes. Even the arches of my feet cramp and pull my toes under. My stimulator was implanted in Texas at a world-wide spinal institute. When I went there with the muscle issue the doctor said, "You scare me!" A different doctor removed the stimulator, but so far there has been no relief from the spasming. I have been checked for every muscle disease doctors can think of, AND I never had the problem before the stimulator was implanted. I will go to Oschners next month for ANOTHER series of tests. So far, nothing shows up to indicate it is the reason for the spasming, so we are still thinking it has to be the stimulator. I only hope, if so, it begins to reverse. I don't want to scare others, but this is so extreme, I wanted to share. Has anyone else experienced anything like this?READ MORE
Yes, first of all - don't ever lose any weight once you have had one installed, as I lost over 80 lbs and now I cannot sit down straight because it is protruding from my left buttock where the generator portion was installed. Secondly, immediately afterwards I began stiffness in my joints, etc and learned that I had rheumatoid/psoriatic arthritis - BOTH - an immune system disease - possibly (in my mind) caused from the neurostimulator (which does not provide me ANY relief whatsoever). I believe that I am allergic to the unit and my body is working overtime trying to reject the darn thing. As far as your other symptoms, hmmm - I thought those were medication side effects but now you make me wonder about those also. I have been on Hormone Replacement Therapy since I was 28 and had a hysterectomy and now that I'm 45, I figured maybe I was going through the change of life or needed my dosage adjusted. I do believe that there is something to be said about us having a foreign object implanted inside of us and our body having a way of letting us know that it doesn't appreciate it - hence all the symptoms.READ MORE
I had a Boston Scientific SCS implanted on 6-24-2013 and I couldn't be more pleased. It ias been almost100 % improvement. It has been tweeked just in the past month, and that was a breath of fresh air. It saddends me to know that others have had bad experiences. I still say that a LOT has to do with the knowledge of the implant and also the one doing the programming. Best of luck to everyone.READ MORE
I have had mine since 2005. I believe I had pretty good relief in the beginning,but it has waned since then.I think I get about 40 percent right at this time. There are some things that change the effectiveness of the sci unit.We constantly are changing positons through out the day and evening hours.My unit gave me 90 % relief after changing, trying another brand of stim. Then I fell from a deck in a friends backyard and everything changed. My pain had virtually doubled! I then went to a pain managemnt specialist different from the first Doc. He did what is called a resection,replacement of the lead wires.I also wanted the implant moved from its present location,to a new one which is now 100% better.The Doc said if I fell again the wires would stay in place,even if I fell off of a horse!Nicoletti.READ MORE
Hi, I had my SCS surgery 10/11/2012. The day after the surgery the representative came in to turn the stimulator on when she did I had what felt like a jolt of electricity shooting into my rib. She cut the machine way down and I still felt the uncomfortable feeling. She stated that my nerve had probably been aggravated during the surgery and that the nerve should calm down. More adjustments were made in the weeks to follow along with stronger meds. The stimulator helped with the original problem in my lower back but the pain on the right side outweighed the relief that I was getting. I stopped going back to the surgeon, he just kept saying hmmmm that nerve should have calmed down by now I don't understand. Xrays showed no problem. I went back to the pain dr after several pain injections with no results, CT scans showed no problems. But like many of you I know something is wrong. I am now being forced into retirement, the loss of my home and moving in with the family. I am on so much pain med, now I am falling because of balance issues. Along with so many other issues. Final word from the pain dr nothing can be done, stay on pain meds and hope that the nerve heals soon. The stimulator has not been used in months. I am now going to the recommended FDA website to voice my concern there. I wish everyone the best. Thanks for listening. I am so sorry that we all had such high hopes in a device that we all felt would make our lives so much better and instead we got nightmares.READ MOREtrial, good, Had permanent, BAD...shoulda stayed on drugs READ MORE
I had a spinal cord stimulator for 3 eas. It was an answer to prayer for the stinging and burning in my lower extremities. The vibrations was also a relief to the pain, BUT I have just had my stimulator removed because I have developed a, well it is difficult to describe, a constant state of muscle spasm from my buttocks to my toes. Even the arches of my feet cramp and pull my toes under. My stimulator was installed in Texas at a world-wide back institute. When I went there with the muscle issue the doctor said to me, "You scare me. You are as hard as a rock!" A different doctor removed the stimulator in April. So far there has been no relief, but I never had this problem before AND, I have been tested for every muscle disease or condition that the doctors can think of. I will go to Oschners next month for another round of testing. I only pray that we can find some answer. The pain is, sometimes, almost unbearable. I don't want to scare anyone, but I thought this was so extreme that I should share and find out if anyone else has experienced anything similar. I am so grateful to have found this forum!READ MORE
Sorry for posting my answer three times. This was my first time and I didn't notice it was added to the bottom of the page rather than the top. Wish I could delete two of them, but I think I will have to just live with it! Sorry!READ MORE
Sorry, no, mine is just buzzing along, doing its job. I mean, yeah, I don't feel my feet as much when it's on, but we knew that was going to happen, and they're fine when I turn it off again.
I hope you get your medical mystery cleared up, that can't be any fun at all. :(READ MOREI find it very odd that people comment here as to their "experiences" with a SCS, when they haven't had one implanted, but have only read about or done research on it. Like any medication, or medical help to a debilitating aliment that you may suffer from, there are risks associated. I signed the paper work understanding these risks with, as did anyone that has had one implanted, stating that I understand the risks involved. Looking at many of the comments on this post, they are from some years ago.... Fast forward up to date, there has been many more implants approved by the FDA for use in the US. One would think that any medical issues you would acquire while undergoing treatment of any kind, would be looked into and fixed before begining rumors on a public forum like this. If in fact it was because of the SCS, that issues have occurred, my sincerest thoughts of getting well go out to you as would anyone.... But I for one am pleased with the treatment I received from my SMS, and at one point in the future know it will have to be removed in order to fix the issues with my back. But in no way would I blame the company/doctors/FDA/ anyone that would try to help medically to ensure a better quality of life for us. Each persons body is different and in return will react differently to something foreign. I hope that for the sake of this item (SCS) that those of us that chose to have it, helped the quality of life... And to those it did not work for, I wish you well in your search to find comfort with your pain. READ MOREI have had fevers,and chills, anf numbness also.but most of all.when it's time to charge my stimulator and i go beyond the time frame.my back tends to hurts very badly.until i put the charger on my back and after s few minutes of charging it goes away..it Also tends to itch really bad at the incision site..but the doctors always say none of this has anything to do with my stimulator....yea right..... READ MORE
I had tiny blister like bump's on my left but cheek just below the battery pack just 4 day's after implant ,this progressed later like a month or so in time me going to the E.R like 3 times and the last time my throat was swelling shut my lip's were swollen it was affecting my breathing and I had a rash that covered my entire body ,I was hospitalized for a week and it was determined that I was allergic to the stainless steel and that wasn't the last of it it took W.C 4 more month's to decide to take it out during this time I developed a severe Lung infection on the Left side above the battery pack Literally hacking up white chunck's could not sleep for day's until the antibiotic took over. Another weird side affect was it felt Like it took 8 step's up my back like 8 stages from bottom to top and than I became extremely weak to where I could not stand up had to go lay down . Than I developed jerk's in my abdomen and right side also in my arm's and they were so hard it would wake me up from a drug induced sleep .Still have those not as bad now since it was taken out but I have severe cramps. The scs was the worst decision for me still having issue's I believe are related to it and it has been out since 5/1/2010READ MORE
I posted a response to your question yesterday, but I'm not sure you are even still reading this sight. I was wondering since your post if you've had any success finding relief from your symptoms. As I said yesterday, my symptoms mirror yours in almost every way and I'm starting to get really frightened that they aren't going to go away. I can't imagine living the rest of my life like this; it was bad enough living with the back pain.READ MORE
I had to have my SCS removed because it was stimulating my lungs and making it impossible for me to breathe. Medtronics finally admitted, after months of trying to adjust it, that they had never implanted one in a person as small as I am. I am 4'9" and weigh @ 95 lbs. They never could get the stimulation to the legs where I needed it and keep it out of my lungs. I could take air in, but could not exhale. It was horribly scarey.READ MOREApproximately five months ago, I had a Medtronics MyStim stimulator installed in my lower back for the mail for the L4-L5 region of my low back. The stimulator itself has seem to function pretty much as I was told, the reason I saw that the site is because approximately a week and a half ago I began to have pain just in front of my left kidney corresponding to the area in which the stimulator when turned up to maximum sings to hurt. I was yet do not know if the stimulator has any effect in this area other than the F are mentioned pain when the stimulator is too high. If anyone has had pain in this area, that does not go all way, and is excruciating please let me know, as yet they have found no explanation, I am seeing my pain management physician on Tuesday. I will try to update this after that READ MOREHi. While my husband has not experienced the horrific side effects mentioned here, he has gone through a lot. I don't think it helps that his doctor prides himself on rushing through the surgery. In my husband's case, he has a very hard time healing, and he has issues with his entire body. The "outpatient" surgery cost him 6 days of incredible pain in the hospital, followed by more of the same at home. He is now 8 weeks out. While he is able to move around now, he still has a lot of pain around the battery site, and at least for now, it is not touching his feet unless he turns it up so far up that it shocks his body, like he's being electrocuted. From the very beginning, he made it known that the goal was pain relief for his feet. If he knew back then what he knows now, he said that he would not have had the surgery. Hopefully 8 more weeks will make a difference. I just want people to know that if it takes much longer than expected to recover, they are not alone. Sadly, he was made to feel that way. From all I've read here, all of you went through the same thing, thinking that you were the only one complaining of your symptoms. Thank goodness for the Internet! What did we ever do without it! READ MOREI have had the spinal cord stimulator September this year and I hate it. I know I haven't had it that long but I am in more pain than I was before. I can feel the top of the leads and I have a giant lump from the anchor protruding from my back. I have stopped using it because I felt worse with it on than I do with it off. When I used it my body would spasm, at night I would sweat to the point that my clothes would be soaked (but I would be freezing), and I wasn't having pain relief. I am going to have it removed (by a different doc).. I just can't believe I let the doctor talk me into getting this without even doing any imaging of my back to see if there was anything else to be done. I honestly think he did this surgery on me because he wanted to get paid for it and that's it. READ MOREHi everyone, I'm so glad I found this forum. I just began the medtronic neurostimulation trial last Tuesday and it's due to cone out this Monday. I've had a really hard time getting used to this feeling, however the leg pain has decreased with this. Yet I'm so conflicted. I'm only 37 years old, have already had 2 surgeries on my lower back, last one in march of this year and now developed scar tissue so I'm deemed as a failed back surgery patient. My neurosurgeon sent me to pain management and they talked me into trying this. I was all for anything that will get me off the narcotics but honestly I have taken more over the last week because of the incision from this trial, so in reality I am so unsure of how well this is working. This us a workman's comp case so retrieving another surgeons opinion is next to impossible but I'm not sure if i can live with the scs. I hear more and more negative reviews on this, and the doctors and Healthcare professionals tell me to ignore it all and that the majority of reviews will be negative online because happy patients don't complain. Of course, they are all biased. In my opinion, at 37 having a permanent implant that is not a life or death situation is so premature. Has anyone had scar tissue removed and had any success? Would that be a waste of time to fight for a second opinion regarding that? I'm so frustrated and so conflicted. And why is my incision from this trial so painful, they made this seem like it's a piece of cake, stating that people take Tylenol after the implantation. I really need advice I feel like it's me againstthe world and I have to live with it. Whatever my decision may be! Thanks READ MORE
I'm just plain confused. My situation is I have had a disc replaced at C 6/7 (1995), have slight disc buldge at C5/6 and 4/5 plus arthritis at C2/3, C4/5. I have had a crushed fracture at T9/10 (1980) and also have arthritis at this level and L5/S1. I can't fell much below my waist except pins and needles, can only walk short distances. I get pain through my neck and shoulders and both my legs and arms fatiage very quickly. On my left hand my ring and little finger are numb as is the side of my hand. I take a truck load of medication for pain and due to pain and lack of exercise I now have type 2 diabities. My Dr said that this implant will only work on one source of pain. He is looking to use Neurostimulation to treat the C2/3, C4/5 arthritis. My concern is there appears to be alot of information about how good these things are or they are not suitable and dont work for some, but as far as anything but the standard side effects that comes with all operations (and MRI's) there is little other do's or don'ts. Even Medtronic's Neurostimulation therapy information does not highlight any "Don'ts" that could satisfy concerns. Any information would be great.READ MOREI've had and am still experiencing severe stinging on my battery pack area and I've done had it moved once, so now what is my option because it has gotten so bad I'm to the point of considering having it removed and I don't want to do that because it has helped me tremendously, but it's getting very uncomfortable READ MOREIf i could go back in time and NOT have the SCS placed i would. Since i had the device placed about 3 years ago i've had horrible back spasms and burning at the battery site. for one thing when i woke from surgery i was informed the dr decided to put the battery somewhere other than where originally planned and its currently in my left butt cheek which has lead to constant rubbing and accidental hits to it. in the beginning i kept ending up in the ER because the battery would start to heat up and burn from the inside. I've been told by several drs that at this point if i have the device removed it will only lead to phantom pains. so for the last 2 years i just stopped turning the device on all together. i am in more pain now then i was before i had the surgery BECAUSE of the surgery. so you are not alone. READ MOREI have 2 stimulators in my back lately . I've been having a lot of pain in my back it gets worse when I stain and walk around. Today 9 15 15 I had a facet injection in my back and the xray showed both leads are out of place. I'm very scared to have them removed . I don't do well with antesicia have a hard time waken up. I don't know what I'm going to do any suggestions READ MOREYes I also had the burning and tingling in my foot and pain around my neck and head with slur speech never had this problem before. READ MOREI just had a stimulator put in two weeks ago and now im getting cramps in my legs there like Charlie horses all the way from the top to my feet. does anyone have this issue? READ MOREI'm having the same problems :( It was good for the first little while (I even suggested it to many others) but then things just went downhill. I was working before but then its like I was in a car accident. Every time I walk sit or stand I'm in excruciating pain. I no longer do any household chores (no cooking no cleaning no shopping nothing) I can last about 15 minutes and its a painful 15 minutes. I'm back on pain medication (stronger than the meds I took when I injured myself to begin with) its awful. I want my life back to the way it was before. I haven't turned it on in probably a year as it hurts to use it and its always been painful to charge the stupid thing. Anyways, message me if u have any questions. Oh and I met another man in my town with exact same problems who did get his removed due to same stuff and now he's talking about getting a lawyer. READ MORE
Hey Patty, before I answer the pain question please note and be aware of the following:
On cumadin there is no test phase so had to decide blind. So took out medtronic which didn't need charging for ten years and replaced it with nevro. One failed insertion with 6 weeks bleeding finally got a new one. Doubled difficulty if in a wheelchair because you're not supposed to sit for periods. Nobody told me wheelchair bad and no crutching from wound pain. If you are wheelchair user please note because they don't tell you the consequences of this operation. 2 months later still can't crutch and getting very worried.
I now use the machine on full power every day. You need to charge the battery charger for 2 hours every 36 hours and the body machine for a further 2.5 hours afterwards. Bit of a shock after medtronic no hassle. Too much said so far will answer pain question later. Bye for now.READ MORE
Hi Patty:
Boy, the good old SCS implant! I have had NOTHING BUT TROUBLE with my implants, yes plural, implants. The first was put in back in December 2002, it malfunctioned and could not be reprogrammed in June 2003. That one was replaced in September 2003. Again, within 6 months, if was failing and could not be reprogrammed and was yet again replaced in April 2005. By August of '05 it was again broken. I tried one more time, at the encouragement of my doctor, and had it replaced yet again in November of '05 and that one has now been sitting in me completely useless since March 2006. When they worked, they were FANTASTIC, of course my trouble is that they never seem to make it more than 6 months max. My doctor has been pushing me to get a "newer version" implanted but the operations are so AWFUL that I just have not done anything but let it sit there idle. My wife pushes me to get it out but I also worry about the possible consequences of even doing that now. I originally had a 1 in 1 billion side effect to a vasectomy that led to two operations and extensive nerve damage in my groin, lower back, and thighs. The implant was supposed to give me some coverage so that I could continue to work my 80+ hour weeks and be a productive member of society. Today, at 41, I sit on SSDI and HATE that I am stuck in this situation. Sure, I have and always will have the nerve damage pain but that would be nothing compared to the damage these SCS implants have caused me over the last 11 years now. In the last year or so I am experiencing different pains, from my upper back, shoulders, legs, arms, etc. that I am certain are due to this implant. Interstingly, EVERY single time they replaced the unit the doctor said it was all "twisted and mangled, and had to be cut out". Now everyone around me knows not to hit my back or the battery sight that is right above my right butt cheek and I have never had an incidence with either area. I do not know if my body simply rejects the device or if it was just a case of a pain mamagement doctor not truly grasping how to do the implants. I am going to see a neurologist next month, he is supposed to be a "top" physician for the SCS implants. I am leaning towards having it removed and just hoping that the long-term damage it has caused is not all that severe in nature. Due to HATING sitting around and not working, I am finishing my Masters and Ph.D. in psychology and will focus my Ph.D. on a concentration in counseling for chronic pain sufferers. My hope......to help others that have to deal with chronic pain and try to focus in on individuals who have an increase of this due to SCS implants. At this point in my experiences with the SCS, I would strongly urge those who are considering one to not get it and I would probably also urge those who have had problems to simply have it removed. However, I fully understand any hesitation of having it removed as those of us who have been through the SCS surgery or surgeries know they are probably one of the absolute worst to recover from. The human central nervous system is amazing and ANY implanted device can have very different affects on the CNS for any given individual. What may be perfect for one may have horrible side effects and consequences for another when you start messing with the spine and related nerves. Best of luck to EVERYONE on here that has had issues with an SCS, I feel your pain my friends.....literally!!READ MOREPatty I have had scs Boston SScientific for a couple years. Having lots of problems of it being positional. TheyThey took Meds away from me. Llived in pain but better than before implant. Had increased pain and srarted Meds and reprogrammed. 2 days later I started vomiting 24/7 and went to specialists. Was dx with gastroparesis due to gastric emptying study. Now chronic fatal illness. Kept asking if it could be stimulater related. 4 months of no. Well got to Dr today after lots of process and elimination. And the 2 Dr's today validated it was caused by stimulater. They turned lt lead off and I could gradually eat. So to PM Dr tomorrow to report news. Boston said it wasn't stimulater but it was. I had grim future. It affected mBP and pulse I was passing out from dangerous low BP. I normally have high BP. So in my case it almost killed me. Couldn't find anything online and I saw you. Lucky no infections but the migrated lead almost killed me. .best of luck to you READ MOREHello everyone. I had a Boston stimulator implanted in 2014. A year later had to have it removed because the wires crossed each other and was shocking me. They implanted one with three prongs this time. I have more pain in my feet than anywhere and can't get it to reach them. It really helps with back and leg pain. If you are going with one go with the Boston. READ MOREJust had my implant 2 weeks ago,something is wrong I can't walk on my left foot, and now I have pain in my right leg and foot READ MOREHad trial and it was amazing but whe I had the permanent one installed on 6/16/2016 it has been terrible. Have had several adjustments but no difference. Now battery is burning and stinging and seems like I'm worse when I turn it on. Looks like I might have to have it removed. READ MOREi will have surgery next week to remove nerve and it make my back horrible pain but it help other people but not me and it is depend on patients tolerate i felt bad device make my back worse sad ! READ MOREMy husband had a Nevro Senza SCS trial in early December 2015 and implanted late December 2015. He has developed severe headaches, neck pain and eye pain 7 days after the implant. ( Trial was great for lower back pain.) Turned off the SCS and pain still persists. Spent 7 days in the hospital under a neurologist trying to stop the headaches but nothing worked. Had several falls one resulted in ER. No one can explain or stop the pain. SCS is still implanted. Thinking of removing but don't know if pain will subside with removal. Does anyone have experiences like this and did removal of SCS stop problem. READ MOREI have had the nerve stimulator for 1 week. I have had muscle spasms so bad I couldn't walk. The rep for my devices tells me that the nerve stimulator is not causing the spasms. I'm pretty scared now. I am not sure what I should do now. READ MOREHi, I got my implant around 1 year ago then after 6 months or so I had to have it replaced (the first one was the non rechargeable)I now I have the rechargeable one in and having to recharge it weekly as it is on (number 7.5 from 10 setting) 24/7. I have found it getting harder and harder to find a good rechargeable connection every time I go to recharge it. I have found a number of things happening since having it fitted i.e. pains in my kidney (as if it has been given a beating) numbness in my buttocks, i've also had shocks that make me twitch at random times, cramp down my legs, constantly feeling tired and weak. Sometimes I feel weepy, short tempered, angry for no reason also gone off food a few times. There are a few other things which have escaped my memory at the moment, but feel free to contact me if you need more info on the stuff I've mentioned. email@example.com READ MOREhad 4 level spinal fusion in 2011 had many promblems after alot of pain meds e in 2015 had a stim trial, right after trial my right leg is what they call drop foot and both feet are numb. Have to walk with a cane going to neursurgeon next week. this really pisses me off reply to firstname.lastname@example.com see how you are doing? READ MOREMy stimulator goes off and on for different times when it is shut off. READ MORE
I am in the process if having my SCS surgically removed after 5yrs of no help whatsoever. Im experiencing every one of the symptoms mentioned at this very moment. My active lufe has come to a halt. Im very disappointed about the time ive wasted & the pain I experience daily. This SCS has got to go!READ MORE
My husband had an scs implant 10/05/11 he had nothing but trouble with it.They reprogramed it three time,he broke out with bumps that would itch.around the implant battery was fire red he had a rash on his back.We told the pain management doctor it wasn't working. He still had to use the same amount of pain meds.That was the reason he did the implant was to cut back on the meds.
he. He told the doctor he wanted it out he was very unhappy it was causing more problems .At first they told him to give it more time he tryed it for five months they agreed to remove it .The doctor told him it doesn't work for everyone.
He had it removed 04/06/12 he had to wait six weeks to get it scheduled they couldn't fit him in.it isn't as profitable removing it as putting it in. He is still having the rash & the itch tonight he is miserable.
Tonight he started having discomfort in his neck & head.we went to our family doctor for the rash he told us then his body was rejecting it.The pain management PA told us last week she thinks it will heal from the inside out only time will tell.From our experience It was a very bad idea.He is real sick tonight from the uneasy feeling around his neck area where the leads were at.He had the medtronic scs impant.We will be seeing our family doctor tomorrow to see he can give him some relief.READ MOREI had my implant on 3/11/16. I have had 2 adjustments, and am not happy with the results. My pain relief is about 30% and I still have to take pain pills. My body spasums often during the day and at night. I also have leg cramps that are not a part of my medical problem which is degenerative disc disease. I have sleep problems which leave me sleepy and cause me to nod off between the hours of 2 and 4 pm. Has anyone else encountered these problems? READ MOREEver since the SCS was placed I have severe debilitating pain in the area where the leads were inserted and worse spinal pain throughout. Fatigue, fibromyalgia, with pain down my arms and legs. I cannot stand for more than 15 to 30 min before the pain can only be relieved by lying down. I am almost bedridden from pain. READ MOREI just had mine removed 3 weeks ago and I am experiencing all of the above. I'm going back for final follow up today and not quite sure how to handle it. dancing on burning even if I hold a pen Crossing and uncrossing my legs is nearly impossible the inside of my elbows are tender to the touch can't touch my skin READ MOREI am happy to see that so many people have had such positive results from their stimulator implant. Unfortunately, that is not the case with my husband. He had a stimulator implanted on 10/7/16 (st. jude) and it did NOT go well at all. Severe bilateral foot pain. MD said it should go away. Did NOT go away and he had to be admitted overnight for pain management. Still did not completely resolve. Came home the next day, ate lunch, got into his recliner and we turned the device on again (it had been off at the hospital since right after the procedure when it was determined he was having too much pain) and as soon as it was turned back on again, he was nearly screaming in even more severe pain. Communicated with the MD and he advised it would need to be pulled, so it was. Right ankle, foot pain so bad with swelling that he can't bear to be touched. 10 days out, no change and he's dragging his foot now. He is feeling nearly suicidal from the pain. Have no idea what our options are or what went wrong. Just....flabbergasted and afraid for my husband. Original intent of the implant was for uncontrollable, severe right thigh pain secondary to right hip replacement secondary to avascular necrosis of bilateral femoral heads secondary to massive steroids for chemotherapy tolerance secondary to multiple myeloma. He has had a rough 5 years AND with the loss of his 35 year old son from cancer. I feel selfish asking him to hang in there. READ MOREProblem is when u have them taken out the pain gets a lot worse take it from experience I have nerve problems in my legs After I had it taken out . I know of 6 other people have the same problems READ MOREI had mime implanted 15 years ago and taken out 6 months later because of problems . I now have fibomyalgia weakness of my legs heaviness of my legs when I walk arthritis in my back and legs sleeping is impossible. I was the worse thing other than a moraphine implant I ever done everyone I know who had a stimulater has had them taken back out one person had theirs taken back out within 2 weeks .I.I would never encourage any to have it done READ MOREBefore I had this done I was working in pain but I could tolerate it now I can do nothing I'm wondering if it is worth going through the permanent one don't get me wrong the trial when did work while it was in but as soon as I took it out that's when my problems began if anybody has any ideas what I can do for the pain relief without taking a bunch of drugs could you please comment thank you READ MOREHas anybody had side effects including weakness hard to walk back pains hard to stand ankles hurting I had the trial put on the 19th they took it out on the 26th and I have not been the same since READ MOREWith my first Boston Sci Stim, a lead came undone resulting in tremendous pain with certain movement of my arms.. Most painful happened when unbuttoning my pants. I went to ER, took X-ray, and ER dr didn't know what to do.. To him, all looked ok... It was a Sunday, so I suffered overnight, saw P-Doc the following morning who id the loose lead straight way. Had to wait a week, ins approvals, before I was fixed... I've recently had another fusion surgery, and the surgeon removed my BS Stim.... He's never been a fan of them, I get the scense he's protecting his territory. Removing it upset me at first, but it ended up being a blessing in disguise as I trialed the new Nevro unit, with great results, getting perm installed prior to year end, financially very beneficial... Any case, over the past week, I've been experiencing pain in the lower back which had been under control since the perm install. I first noticed pain while trying to roll over in bed. It's as though a knife is being inserted and then twisted... Painful. Each day/night has been getting worse. It's been about a week now, and my prayers are not being answered (eliminating pain) unfortunately. I spoke with dr and we agreed to wait until Monday to see if it gets better... I really don't believe it will happen, since the time we spoke earlier today, it's getting worse and worse... It's very difficult to breath at the moment. Currently pain meds aren't touching the pain at all. The side effects of the Nevro unit..... Have to charge the unit everyday... The charge time varies depending on which program and the intensity of the program... I've been between 1–2 hrs per day. A unique feature of the unit is not feeling the tingling sensation that you would with the BS, Medtronic, and St Jude devices. However, I've notice as late the displasia is there ever so slightly... Further evidence that a lead may have migrated. Don't know... I've not really experienced many side effects of any of the units other than the description above. READ MOREAre you taking Gabapentin? Your side effects sound like those of Gabapentin. I have had a SCS for 2 months now and on short wave I had the side effect of the area that was being stimulated heating up. But on the long wave this does not occur. For a rare few of us the short wave setting turns us into a microwave oven. I'm glad that I figured it out before I burst into flames. Over all the SCS helps alot with my pain. I have recomended it to a friend. READ MOREI was diagnosed with CRPS in 2012 and had a permanent back stimalator implanted in my right hip in November of 2013. In December of 2015 I started having lower back pain around my battery. At first I thought maybe I had hit it without realizing or possibly turned or twisted wrong. I reported this to my surgeon in January of 2016 and was told to follow up with my primary care physicians to see if I had a bladder or kidney infection which I did. I was on antibiotics for 2 weeks and it did nothing for the pain. The pain continued to worsen and finally I had a CAT SCAN to see if my stimulator implant was broken or leaking. It came back negative. The pain has worsened to the point that I can barely stand to sit in a car or chair. I cannot lay on my right side or back. Any physical activity makes it worse and this has now been going on for four months. My surgeon now wants me to see a urologist to rule out any bladder or kidney failure or disease before exploratory surgery and possibly moving my stimulator implant to my left side. The pain has been so severe at times I've considered going to the ER. I'M scared to death and don't know what to do. Without my stimulator I would be completely dependent on opiates and neurotin medications for the rest of my life. I'm sorry I can't answer your questions but I have not had arthritic issues. I'm at a loss for words and have no idea how to proceed. READ MOREI'm getting one this Wednesday for CRPS in my left hand and I'm a bit scared.I'm sorry you are having so many problems I pray it helps me READ MOREI have een experiencing similar snsations however, have not had stimulator implanted but, did have a failed fusion at C6-7. The thing that gets me is the increased pain in neck at that level and increased amt. Headaches. There is evidence that what I am experiencing is affecting both sympathetic and parasymathetic systems. Well documented. There are specfic times of the day and night that show either a marked increase and a marked dcrease in stimulation. I have been searching nowfor 18 months each time I refine my query. This is what lead me here. I have used a tens unit since 1993 but, haven't for more than a decade now. I hope to hear from you. STEPHANIE READ MOREI am dealing with extremely painful legs and hips, really bad at the calves..it is extreme cramping & I am nervous about it. I have had several back surgeries with hardware that was removed but this is so bothersome my feet hurt when I walk, I can't get comfortable and I can't focus or think cuz it's painful & worrisome. I had the Medtronic Spine Stimulator Implanted in 2013. Tomorrow I go to where I had it implanted. I firmly believe it is from the Stimulater (this new pain) but I want them to remove it..I am worried they won't. READ MOREI had Spinal Cord Stimulator put in 2013 since having it done I have pain in my feet and legs my toes also turn blue sometimes I never got any relief but developed restless leg syndrome READ MOREI had the perment stimulator placed and seem to have a problem. I feel the tingling in my legs but the pain doesn't change. It just goes straight to my brain as pain. The only time that helps is to turn very low and it keeps the knots out of my legs. What can I do as my doc will cut my meds and I will be bed ridden most of the? Time. Out 10 hours at the most I will not be in bed. Any help would be greatly appreciated. Doc goes by book and no symphony for the patient READ MOREI have a severe pain where the battery pack is digging into my hip bone my dr said he ddidnt install it i was waiting to replace it with the new ones that will be out soon. I chose the larger battery pack. A big mistake espescially where it is in stalled right above my left buttox. I wanted it near my stomach but it is digging in so bad and causing nerve pain i can feel from the slight pressure from sleeping on my back or sitting in a chair ect. The doc said no its just pushing aginst the bone but if that was all explain why i have nerve pain when i press on the unit. I was afraid to get the smallr battery pack because i thought it would run out too soon but now i wish i got the smaller battery. The pharmacys give me so much duff on my medicine but i dont think them or even most of the doctors know what a real back ache is like. I am hurting now because of the unit as well. The trial wasnt supposed to work as well as my permenate one but, i think that worked better. My neurostimulater is St. Judes I really dont think there is much different. I wanted to wait for the new units that dont have to be charged for 5 years or so until i realized. The battery is the same size as the large St. Judes model the one I have now. I have an advanced hereditary degenritive spine condition now because of all the people who take meds who flat don't need wh mess that up. The whole point i got a Neuro Stimm was to stop taking meds. No i have pressure from the pharmacy to hurry up and get better like that issnt my main gole READ MOREI had a Medtronics Spinal Neurostimulator (2 Leads) placed into my Narrow Spinal Canal in 2012 and removed in 2015 because it created more pain then I originally started out with, it created pins and needles from my knee down to the soles of my feet. When it was put in origially it was supposed to have helped the pain I had in my lower spine and left hip. I would not have another put into anyone if I had my way. READ MOREI'm having all the same symptoms, right now I am having burning sensation in between my shoulder blades, also my fingers and palms of my hands are numb but I've been told that the SCS is not causing this and they are sending me to a neurologist to have some kind of tests done to see if I have carpal tunnel syndrome. Which I know I don't!!!! They are wasting my insurance company money!!! READ MORELike everyone else, I'm also having problems with my SCS. Trial was May 2015 and it worked pretty good... Perm. was implanted Sept. 10, 2015 and the biggest problem I'm having is the major nerve pain. The branch from the back and curves around the right side of your ribs. If I have the Stim set more than 5.0, I'm almost in tears. I still can't walk that far, lift anything over 5 pounds, forget bending to put dishes away or put in the dishwasher... I have to sit cause of the pain. I've brought this up to my surgeon and he just says the nerves will heal real soon... his PA just tells me I'm still healing... I just had to go in yesterday for a nerve block due to the pain the SCS is NOT helping with.. which it's suppose to be.. This doctor asked if I've ever thought of having it removed.. I told him when I see the PA and my Pain Management Doctor in March, I'll be asking to have it removed. It's bad when you're in more pain now than before the surgery. READ MOREI attempted to have a secs trial done. When placed my calf, ankle and toes in my right spammed so severe they curled up. They could not get it to wprk on the left side due to bulging nag disc. All this time I was told to lay still while the spams continued and ne screaming in pain. They were going to take the left out and leave the right lead. In the end I had the remove everything. Today is 5 days later, still having minor spasms (which I never had before). But getting better. The suggested a paddle nerve stimulator my response no way! READ MORESorry! I also forgot to tell you that because of one of the leads being out of place. when im on a certain program I get a low to high electrical stimulation in my right side of my abdomen then it radiates up toward my right side of my chest this is very scary. I immediately changed program to lessen it. READ MOREI have definitely been suffering from severe fatigue syndrome. I have to take an energy drink and a vitamin that helps with energy as well. I also breakout in severe sweats then I get chills. I also suffer from some weakness in my right arm and leg. I dont know what to do im presently trying to find an attorney to help me with this case because this is the second time I had a simulator put in by a doctor incorrectly. the first one , the leads were put in too high now with this doctor I just had X-rays done come to find out one of the leads are way out of place. I need someone to help me. in addition to this, my doctor and I agreed that if during surgery for the second stimulator he was going to just change the ancor and the batteries and just pull down the leads. well he told me that if he had any trouble like with too much scar tissue where he would not be able to pull down the leads that he was going to take everything out . let it heal for a month then do the trail and if that worked he would put it in permanently.Well he did have trouble with my leads but decided to go ahead anyway without my consent and bypass the trial and put it in permanently. I was so upset when I woke up from surgery. I just went home and cried I felt as if I didnt have a voice. When I questioned him why did he go ahead and bypass the trial like he said his answer was" "well since I was already in there I decided to go ahead and do it." Someone PLEASE HELP ME! I feel so alone with this issue. READ MOREI have had the permit one in for a month at this date. I have experience emptiness near the spinal cord incision. Which I've noticed that a couple of other people have noticed that too. I have also been experienced this strange side effect which I brought it up to the doctors and then looking at each other like I'm crazy. But I get this dizziness issue and I lose my balance like I'm going to fall over. I have kind of almost fallen over a few times and I ran into things. My friends and my father have noticed it and are quite concerned. Has anybody experienced anything in that sense. READ MOREMy husband is experiencing uncontrolled arm & leg movements! Jerking , loss of bodily functions , & so much more ! He has a spinal cord simulator! Has seen Neurologist ,& ENT! They do not have answers! Our son found this about Simulators ! READ MOREI realize this was in '09 when you posted this, but I had mine implanted March of this year and am having the same symptoms you experienced. What did you do about it? I'm trying to have mine taken out. Thank you READ MOREIndeed! After about 5 days, I began to itch all over. Tiny bumps that look like measles. The only place that isn't broken out or itching is my face. I pray that isn't next. Mine is Boston Scientific. My pain Mgmt is precious and was/is concerned. He immediately sent me to the surgeon who said, "hmmmm I've never had this before". I felt like he blew me off and doesn't believe it's the SCS. I'm 100% positive it is. Now what? It's a nightmare. Benadryl had become my crack and keeps me from sleeping! READ MOREI have developed rashes that look like blisters. They've developed in different places. READ MOREI have 2 stimulators implanted in my low back. I have croinic back pain. I was sitting outside with my sister in law. I felt something on my right side it felt like the stimulator shorted out. Stated to have pain and weakness in my back down my leg 2 days later my speech was impaired. I went to turn the stimulator on it didn't work. So my sister in law called my rep ad explain what happened he said it was impossible it wouldn't short out that way haven't had it removed yet. Still having the same problems. I'm making appointment to have it remove hopefully my speech will come back after I have it removed READ MOREI had spinalcord stimulator put in Sept 1 2015 after the temp was removed about a week or so later I started having constant rt leg pain down my leg all the way to my foot and increasEd numbness in my toes and down lateral side of my leg the leg pain I had before I could at least get some relief if I laid flat on my back. This is not the case now there is no potion that relieves this pain. I had a deep tissue massage thinking it would helo. It did not. I want to know if this is something I will have indefinitely. Please help READ MOREHi Patty, I am about 6 yrs late on your question but maybe it will get to you or others. I am on my 2nd SCS and have had problems with both. My trial helped reduce my pain between 20-40%, it depended on the whim of my back or the way the wind blew lol. But both times with the permanent SCS I have had little relief, with both they caused my feet to swell and they could never get the stimulation out of my feet. It feels like bees are constantly stinging my feet when I do turn it on and this second time (I have the new wide paddle) one of the leads are on an area which hits my sternum/diaphragm area and I can't take a breath or even breath shallowly due to the electrical current. I am still in Chronic pain, numbness in various spots in my legs, and numbness and/or tingling in my right hand & left fingers are "normal". I am constantly tired, spasms in all parts of my back (SCS on or off) which cause my legs to twitch or go out from under me, headaches, painful neck stiffness and sleeping on anything other then my recliner in the (almost upright position) with my feet up, will cause my back to cramp up, spasm and I am in extreme pain the next day. At the incision spot it is a painful numbness-if that makes sense. It is difficult to wear a back hook bra due to the incision area pain. The neurosurgeon told me he nor his team did not have any responsibility for this or any of my new problems. I researched beforehand and he is one of the top in the North East United States. Though I force myself to walk with my cane or rollator, my left knee started to feel stiff then went to painful , now my right has started the same way. The docs - primary care, DO, or Orthopaedist cannot find anything wrong with my knees (a new mystery pain). No, I am not obese- I did gain close to 75lbs steadily and quickly, but managed through diet and as much exercise I could tolerate pain-wise to lose (& so far keep off) 56lbs, With about 20lbs more to get back to my 'desirable range'. I lost the 56lbs about 7 months before my knee problem even started. But they did find out I have hypothyroidism (no one seemed to believe me when I said my diet hadn't changed but my weight was quickly & steadily climbing). I am tired & feel just worn out all the time but have a hard time sleeping. I have arthritis but am not sure if it has worsened due to the SCS. I didn't know Fibromyalgia could be a side effect of SCS. Something new for me to research. I hope this helps someone out there and finds it's way to you Patty. BUT don't let this scare you if you are talking with your doctor about the SCS or the PNS. I know some who have benefited from these, just not me so much (I tend to fall into every 2-3% of "it rarely happens" group. Good luck to everyone and have a wonderful day!! READ MOREYour post was so long ago I don't know if my response is of any relevance. I have had nothing but health issues following my Cervical SCS implant in July of 2010. The latest diagnosis has been Severe Autonomic Dysfunction. :( I wish I had researched the effectiveness (or lack of), and complications of this surgery prior to agreeing to it. The recipients of these SCS are usually experiencing such relentless pain that we are willing to try about anything. If you received my response please reply as I would like to know how you are fairing. READ MOREI had my Medtronics unit in last May. Sometimes I have muscle spasms around the battery pack itself. I forgot to charge it twice and this last time I've had muscle spasms since it died. I also don't feel well at all. READ MOREYes big-time. I have had it for 3 years now and my who attitude has changed for the worse. I now have big problems with anxiety, chronic fatigue, memory , weakness, and I'm sick all the time now. My wife says since I got this I have never been the same...Has anyone had this happen to them?? , READ MOREHi i was wondering where i go on webmd Dawn g???? I would love to hear about others experiences and to share my full story and hopefully find out some answers on where to go from here as I refuse to go see the doctors who put it in. (I also heard that my doctor no longer works with our pain clinic anymore and I've heard rumors that its because of he was not trained properly on putting the device's in! Who knows if its true or not.) Thanks in advanced. Swift girl :) READ MOREI have a medtronic stims installed 6 mons now, Im not only not getting relief from it it makes my right side feel like a very uncomfortable electrocution on the lowest setting. Ive been getting chills a lot, migraines, and i put a cap on a babies bottle in the kitchen and my back locked up for 3 day's in sever pain. It was put in for my left leg, but my right side, leg, arm, and back. Ive had a lammy 2 years earlier same spot. After 3 surgeries I cant imagine going in for another Im lost I dont know what to do about this but Im in chronic pain here in upstate ny near Binghamton. Im a big strong truck driver , but Ill be honest with you it feels like they did everything on the wrong side, and I'm afraid to see or talk to a doctor at this point I cant bear the thought of being cut up again, with wrong results. Monday (its Saturday) I'm going to a lawyer Monday to get advice, for a doctor for all I know Id go to one of his students and they'd hurt me more. I don't know what to do. To make matter's worse I take primary care of my 2 year old granddaughter who is blind. This sux but I feel your pain. READ MOREI have. I had one installed in September. Its march and the perkataous leads broke. So they placed a paddle lead in. Im having alot of problems. Please contact me. READ MOREK since mine was implanted ive had severe stomach issues, not being able to keep food either way, severe spasms in my rib and back area and literally feel like I'm being stabbed when I breathe, they removed the scs/ tazer that could literally freeze me in place and poop myself ! It was obvious to us all that the scs had shifted to motor nerves and sensory nerves!! I'm not brave enough to try it again, felt like I was in a horribvle scary movie and just pray that rib searing chest splitting pain will stop! My feet used to seize but stop when I use marijuana for medicinal purposes, they took out scs that i miss and lovingly call a tazer, (any woman would for vibrations)... but i would never be brave enough to try it again, i'm still hoping to get potty trained before my child :) READ MOREYes had many of your systems too. Fibromyalgia, arthritis, weakness and numbness in extremities, headaches READ MORE
I had the SCS implanted 03/10/2014. We did the trial it helped alot but I seem to have had an issue. At the time the trial was placed I had a major pain happen on the table the doc had not seen before. We gave it about 2 min and it was gone so he continued. After that that pain did not come back but anytime I turned the unit on it felts like a balloon was instantly blown up in my rib cage and the only way to get the feeling to go away I had to lean over into hunchback posistion. I then began to have pain in the thoracic area of my back. I went in and had the trial removed and felt the difference without it and thought I need this unit. I did discuss with doc what had happened in the trial and he really wasnt sure might have been your body needs to adjust. We did the permament placing on 03-10-2014. A 2 week time off work has become much longer. Still not able to work. Again anytime I use the unit I had the pain in thoracic area and gets worse the longer on. I am able to use it at night without the pain but when I wake in the morning my entire thoracic area is soar. He is stumped. He has never heard of this. He suggested that I go to see a Nuero-Surgeon and have the ends to the SCS changed to the paddle ends. He sends this keeps the unit from stimulating the skin only inwards. The way he implants they stumulating all around nerve. This is set for 06-10-2014. The Nuero as well has never heard of this type of pain. They do not know if this will help or not. If it does then once I have my hip replacement done then I can maybe return to work. If not I am being placed on permanent disability as I am in so much pain from failed back syndrome and the osteonecrosis in my hip, I know longer am able to. I want my life back but unfortunately the Lord has something else planned. 19 yrs on the job. I really do miss work.READ MORE
Ive experienced all those symptoms & I'm done with this SCS. 5yrs of nothing but aggrevation. Numbness, arthritis, feet cold, etc. $90,000 for this? Medicare got gipped big time! The doctors benefitted & all I got was a remote control & a recalled battery. Hows that for a tee shirt? Seriously im more than disappointed in my St. Judes SCS.READ MORE
i am three and half months post implants-two- and the chrger. after about 5 weeks i noticed when i shut it off-hours later i developed the most severe pain at both knee sites and lower leg edema. pain strong enough that i need help getting out of a chair.... i have follwed the pattern now and it is consistent. told my pain doc and they had nebr heard of this. so i am now nrevousr about using it. works like a miracle for my back. never had knee issues until this and?????? am trying acupuncture this week fo rthe first time.
Yes, Chronic site pain for 2 years post implant removal.
Passing out without warning
Has anyone been able to find a lawer willing to persue this matter in court???
Hey I am hoping someone could help me I have the stimulator implant I had got it done in Jan 2013 and in july 2013 they had to move the box from my butt and put it into my side because it felt like it was going to pop out and it was really painful when setting down, so now its in my side and it is really painful there, my doctor said its because I am thin, well I just had a shoulder replacement 5 weeks ago and I just got back from my shoulder doctor cause I am in so much pain from the back of my left ear down behind the left side of my ribs, he said it had to be my neck cause that is killing me also, nothing is helping with the pain and the stimulator hadn't really helped from the beginning and when he moved the box it really doesn't help me, I am in so much pain more pain then when I began this stimulator stuff, any way my doctor toke xrays and confumed its not my shoulder that it is doing good, that it is the stimulator that I need to get it out please help someone has anyone been though this, with the pain, Thanks everyone SusanREAD MORE
i have had my stimulator for 2 years a year ago i was diagnosed with ulcertive colitis been on meds but they don't work so i am beginning to think that i don't have ulcertive colitis that it has something to do with my stim. my battery box was in my butt but it hurt to sit or walk so they moved it to my stomach but left the wires in my butt and about 3 months after they moved it i was diagnosed has anyone had something like that happen to them anymore we have to diagnose ourselves becuse they just tell you it is all in your mind.READ MORE
I had the SCS from St Judes installed in 2009 and it was very large and implanted against me lowest rib on my right side and it stuck out about an inch or more where you could see it threw my shirt and on my fallow up doctors visit the doc. told me the reason it stuck out so far was that I had no fat on my ribs and he had never seen another person in hundreds he had inplanted the SCS in that had no fat on the ribs to hide the box in and pulled out a new box that was 1/3 the size of the one that was in my chest and said we should have waited a week for the new smaller one to come out (my doctor was involved in designing them and got money for every one that was sold under St Judes name) so after a few months he removed the huge one and put the smaller one in its place but after a year of healing the box against my ribs could be moved about 2 inches in all directions under my skin and he had to cut me again and make the pocket smaller (and here's where my major problems begin) after a few days of healing I told him it felt like my ribs were broke it was hard to breath and I could not sit up from laying down and had to get onto my belly and slide off the bed and fight back the pain to stand this went on for about 6 months and the doctor said it was just normal healing and there could not be a broken rib (with out any tests). After a year of sitting still so the pain wasent so bad it started to feel better but I couldn't twist at far at the waist or I would get what I can only describe as a really bad cramp at the rib were the box is that could last between a min to 15 mins before it subsides (that I still get 1 to 3 times a day still to this day) was told again it was just healing, 3 days from my next appointment I got a call saying the doctor closed his practice because of medical issues and was given 3 numbers for pain doctors to call and pick one I liked and to call the office back give them the name of the doctor I chose and they would send me records over to them and none of the doctors would even talk to me until they had me records so I called the doctors back to get my records and the number was disconnected went there and the building was empty no one I called could find any records or the doctor and after a few months of no luck getting my records I goggled his name and found out the doctor I trusted to help me and I let install the SCS was addicted to pain meds and was arrested a week before my appointment for stealing morphine and fentanyl from a hospital where he was installing a SCS in someone else and that the doctor had passed away a month after that, I went a year with out anyone looking after my pain needs or checking the SCS (because no one would see me with out records even after hearing about my dilemma). Now I found a new pain doctor who wanted to replace the SCS because it wasent working (within 1 month he had me in the hospital and replaced the SCS). Ever since I had this thing installed -chronic fatigue - loss of energy - headaches - and the severe cramping in my side around the aria of the SCS box.READ MORE
I had my Boston Scientific SCS implanted 12/9/13. Since then I have noticed severe pain in both knees and both hips. Some days it is very hard to walk. I had it placed for back and sciatic pain. I know it has only been a month since I had it implanted, but was wondering if it could be causing my knee and hip problems.READ MORE
I have had the implant for about 6 months and have had severe period like cramps in my belly! I had a visit to the e.r. and they couldnt explain the pain i was having even after the ct scan came back normal. I cherge the unit and I get cramps like crazy,i disconnect it and the cramps go away. I am going in monday 12/9 to have a revision done on the battery. I chose the lower belly for the implant over the butt. When I wear my seat belt it aggravated the battery pack. when i felt the battery pack after implant it didnt feel any bigger than a tealight candle now it is 5 x's bigger around. the revision is to b planting the battery pack deeper in my stomach. Dr, said there is no way that the battery pack flattened out because of what it is made of. I am seriously thinking of telling him to remove it perm.READ MORE
Hi,my name is Kasey I am in the second day of my trial, I am havimg severe cramping and implant site is hurting very bad. I have injury to neck in racing accident,.4 surgeries in cervical and 1 in my lumbar. I am so cunfused , what should I do. The rep.is tell me the medtonics is lifes bread, cadilac of all?????????
I live in severe pain and on meds oxy and morphineREAD MORE
a happend to me am going thru alots pain right now i took tha scs four months ago it got infected i had four seguries in 6 weeks , right the pain is worse still burn from inside i cant bend i have to take a shower on a shair . the doctor never told me any side effects from this scs am suffering right now . the doctor lie to me he show me a small divece and the doctor put in body the bigges stimulator with out my approvel . what can i do my right leg is week and my lungs am having problems . i need help plzREAD MORE
I don't currently have the SCS but my pain management Doctor is highly recomending that I have that I have it he first said let's try a tens unit then he said let me refer you for the SCS It may help you sleep at night. I had failed back surgery in April 2012 followed by a car accident in May 2013. I suffer chronic pain in my lower back legs feet also since May my Neck right arm and hand and left hand I take 12 medication every 4-8 hours. Something has to give I hurt I don't sleep but 1-2 hours a day if I'm lucky.READ MORELAW FIRMS TAKING ACTION..... This is for all of us that have had our lives ripped apart from the SCS. We must have done a good job filling adverse events with the FDA. Because today, after months after giving up, I googled SCS law suits and there are two firms online looking for people to participate that have had problems with the SCS. The first one that shows up is the Meyerson Law Firm, this one I have sent my information. The page opens with all you need to do. The other is a Texas firm. We must have done a good job. So get your voice heard. Fellow sufferer Dawn READ MORE
Hi Patty,
I am 22 years old and have had the Stim for about 18 months now. 6 years ago it was determined I needed surgery for degenerative disc disease, after that surgery, I developed chronic low back pain. I was introduced to SCS by a pain management doctor and then given then implant. Immediately after the implant, there was a decrease in the original point of pain that I had been having for several years. However, in the past several months, I have noticed an intense pain around the battery location, my right buttock area, and the pain is 100x worse than my original lower back pain. This pain seems to go all the way down to my toes and at times I cant even move my leg because of the pain. This has been keeping me awake at night as it happens regardless of which side I lay on and laying on my back is impossible. A few weeks ago, I could not connect to my charger to recharge. Since I had just returned from vacation, I thought that my battery must be dead and needed a "power-charge" from my reps programmer. When I called him, his programmer would not connect either. He sent me for xrays to see if the battery possibly moved. He said if that is the case, I may require another surgery…I am just starting to wonder if it is even worth it to "fix" the stimulator. Has anyone else had pain around the battery that is so obviously from the stimulator?READ MORE
First off I don't want to come off as rude, but I would like to know how many of you having problems workout and exercise and are "in shape" and otherwise healthy. I too am looking at having the SCS done, in fact I just had my psyc eval and am waiting on a date to install the trial.
I have had 2 spinal fusions on my lower back, one in 05 and the level above done in 2012. I am very active and participate in multiple endurance races and activities. I am looking for something that will end any need for drugs. I am wondering if your level of fitness directly impacts the results you have from the SCS.
Any input from other "athletes" would be welcome, I am also Active Duty military (21 year USAF) and don't want to risk my career and the job I love just to get me off ULTRAM and Neurotin everyday. Thanks
I could cry. Your reaching out caught my eye. I am 67 and had the stimulator put into my lower back., about two years ago. I began to have a very serious pain in my left thigh. It felt like a hot iron (one you iron with)
put on top of my leg. As the pain grew, I noticed it begining on my right thigh. I have a high pain tolerance but this was rediculous. I finally stopped recharging it. The pain didn't get any better for a long time. I had pain shooting thru my leg like it was a razor blade going down to my knee.
After turning it off, I began to have more pain than I had to start with. Now I am living on pain pills, and dojn't have anywhere to turn. I am having the stimulator removed sometime this next.
When I saw your question on the list of thos who are suing St. Judes. I feel they have ruined the rest of my life. I didn't know where all this pain was coming from. My shoulders, my neck, I have to sleep on my back all nite. I keep a pain pill beside my bed, because to get out of bed when I need one, is excrutiating. I could go on, but it makes me sick to know that the information was known before they put the stimulator in.
Believe I have your back. Have you thought about going on line and putting your name in for the class action suit.?
What has blown me away is I have no place to go to understand my pain, now I do. I'm not crazy. Your explanation of side effects explains why my R. Arthritis has come back, and why I now have such painful hands and nodules have begun to form. I've had it since I was 21. I only had the pain and fatigue, and now it's starting to cripple me. I could go on explaing all the issues I haven't understood,but maybe you have questions. And daisies are my favorite flower. FrancesREAD MORE
Hello all, was wondering if anyone else had issues such as my fiances. At the end of 2012, he had a SCS implanted. The trial went well, and the first few weeks, the SCS seemed to be working great, and he was able to get off all of his pain medications. About a month later, thinks went drastically down hill. He started getting headaches, and constant diarrhea. At first, we thought he was sick and went to our family doctor who gave us antibiotic, but it didn't help or get rid of his symptoms. He resorted to buying immodium at the grocery store, and I can't tell you how many bottles he has gone through of it, and STILL has diarrhea! He also noticed that if he turned the SCS off, the diarrhea would subside and his bowel movements went back to normal, if he turned it back on, the diarrhea would come back shortly after. We went back to the person who did the SCS implant, and met with our rep from Medtronics to discuss these alarming symptoms! But sadly, that didn't help at all. They told us they NEVER heard of anyone having diarrhea from a SCS, and that it is completely impossible. They tried reprogramming his stimulator, as he did note that it felt like the stimulation was going into his stomache. After they successfully removed the sensations from his stomache, we went home. Upon arriving home, with the SCS on, his diarrhea came back. After a few days of this, he got another symptom. His left buttcheck has a TON of pain, which he did not have before being implanted (Mind you, the battery is in his RIGHT buttcheck!). Accompanying the horrible left buttock pain, he also had numbness feeling by his "area". Alarmed, we went back to the person who did his SCS and met with the Medtronics rep again. As like before, they continued to deny that his SCS could be doing this. We went home with absolutely no resolve. The next day, I took him to the hospital as the pain in his buttocks was radiating and becoming completely intolerable for him. They did cat scans, and thought his disc was ruptured. They transferred us to another hospital, where they injected his spine with contrast for a clearer image on the cat scan. The specialst told us, upon reviewing the new scan, absolutely NOTHING has changed in his back, and wouldn't be causing his symptoms. He told us the only thing he could think of that he had done that changed recently, was the stimulator! And he believes that is the culprit. While in the hospital, the person who did the SCS was suppose to see us, and never did. He was discharged with pain meds, and told to see his doctor to get more until this was resolved. Several messages was left with this person, who never called back. Our Medtronics rep now is on our side, and believes the best thing to do is take it out and see if it clears up the symptoms. We are so upset by all this. He was so happy to be off pain meds and live life, only to go back to it and have no resolution. I wouldn't reccommend this to anyone after what we have been through.READ MORE


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Marvelous Mourning Pendant Necklace pn104
- Sold for: Start Free Trial or Sign In to see what it's worth.
- Item Category: Jewelry
- Source: eBay
- Sold Date: Jan 24, 2011
- Channel: Auction House Sell similar item on eBay
Black rhinestones set in a gold-tone scroll work set off this beautiful Victorian style mourning pendant. The pendant is about 1.5-inches by 1.75-inches. The black velvet cord is about 13-inches and has an additional 3-inch dangle for length adjustment. The bail is hinged so the pendant can be worn on your choice of chains. Shepherds hook closure. Unsigned, this lovely choker can be worn for many occasions.


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What if this holiday season, instead of just alleviating hunger with a Christmas Hamper, you could also make a long term impact on the lives of those in need? What if your hamper created training and job opportunities?! It can.
The reality is that there are people struggling to overcome barriers to employment in our inner city. LITE's Alternative Christmas Hamper program uses the power of "buying local" from businesses and agencies that provide jobs and training to help people overcome these barriers. We provide a hamper, but do so in a way that creates opportunity and hopefully lessens the strain on hamper programs in the future.
You can give a hand up, not a hand out. Donate to LITE's Alternative Christmas Hamper program today and help make a lasting positive impact on our inner-city.
For more information on LITE's Alternative Christmas Hamper Campaigns contact Christa, Development and Communications Manager at firstname.lastname@example.com or by phone @ 204-942-8578.


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- For the primary universe counterpart, see Mark McHenry.
In the mirror universe, Marcus "Mark" McHenry was a Human/Being hybrid (as he has knowledge of other universes, the ability to project his mind into other universes, his body produces bioenergy that can power a warship and an enhanced brain and intelligence level) that was "recruited" into a Thallonian secret project headed by Lord Si Cwan that was attempting to find the ultimate power source for their brand new warship; the Stinger. McHenry was compatible for the link and became a living computer system and power supply for the ship while being held in stasis in a null sphere. McHenry appeared to be in a constant medically-induced coma and Si Cwan believed himself to be in control; when, in fact, McHenry was well aware of his surroundings and was running every system on the ship and only "allowing" Cwan to use "his" ship. McHenry kept himself entertained by visiting other universes (such as the primary universe).
All this changed when M'k'n'zy of Calhoun and Soleta; teamed up with Elizabeth Shelby, Robin Lefler and Kalinda Si Cwan to commandeer the ship following the exposure of a Thallonian plot to gain power. Soleta used her own telepathic abilities to draw McHenry's mind back from his journey and convinced him to force Cwan and his crew off the ship; then M'k'n'zy took over and ordered McHenry to destroy their escape pods and launch and orbital bombardment on Danteri. Though instinctively loyal to M'k'n'zy to the point he needed his permission to cease the attack, Soleta and McHenry then forced M'k'n'zy into a vision that showed him what McHenry saw; M'k'n'zy's counterpart; Mackenzie Calhoun, a respected and liked commander of his crew (including their own counterparts, along with Shelby's, and Lefler's); this forced M'k'n'zy to order McHenry to cease the attack.
McHenry then joined the Terran Rebellion with the rest of his group; however he willingly chose to stay in the sphere to power the ship, as he "felt safe" there. (NF - Mirror Universe novel: Cutting Ties)
In 2378, in order to stop a trilithium device from destroying Bajor's sun, M'k'n'zy of Calhoun ordered McHenry to speed up the ship and ram the missile, as the Excalibur had been too far away at the time to fire. In doing so, the ship was completely destroyed, but not before McHenry had managed to place the entire crew onto the Enterprise. At first he was thought dead, but it was later revealed he had detached himself from his body and implanted himself into the Romulan Mogai-class IRW Valdore starship's Bio neural computer core. (ST - Mirror Universe novel: Rise Like Lions)


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