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Today is the Wedding Anniversary of Ann Read who married James Burte in Caversham, Oxfordshire in 1714. Ann is the Aunt of my 6 x great grandfather Cozens Read and she is the youngest of eight children, after an eleven year gap!!
I know the gap did not produce more children for Ann's parents, as her mother's Will names 7 of her 8 children (one child died several years before the Will was made), so there don't seem to be more I should be looking for!
Ann was born in Caversham in 1692 but I think after her marriage to James they maybe moved away as I have only so far found a couple of children and no burials for either Ann or James. Unfortunately, apart from the marriage, I know nothing else about James Burte!!
The search continues …


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It's 11pm and I was getting ready to go sleep cause I gotta get up all early and stuff for work tomorrow. BUT. Just an hour ago, I found the most divine red velvet cake I've had in my entire life and I'd thought you would like to hear about it :) The name of the place in Pinisi Bakery. It's the most darling of bakeries in the East Village, located precisely on 4th St between 1st and 2nd Ave. Run by the sweetest husband and wife team you'll ever meet, I felt so welcomed the moment I set foot in the bakery. And that's important, you know? To feel welcomed into a food establishment? Even if the food is excellent, any eating experience is ten million times better when the owners are nice!
The bakery is tiny, with just two stools for those lucky enough to snatch a spot. The glass windows allow passer-bys swoon worthy glances of danishes, chocolate cream cheese muffins, apple strudles and buttery pound cakes in both vanilla and chocolate. But the real treats are found inside the refrigerated glass cases to the left just as you enter the bakery.
Options vary with the day, whimsy, and mood of the owners, so you just never know what you might encounter. This particular Thursday night featured carrot cake, strawberry shortcake, pistachio cheesecake, white chocolate mousse cakes, creme brulee, cannoli cupcakes, and a whole bunch more. But I only had eyes for one luscious lover. The red velvet. OOooOooman. So awesome!
Isn't it gorgeous? I told you! My goodness I don't even know where to begin. A very dark and tender cake, almost as dense as pound cake, but incredibly moist with subtle notes of chocolate. Check out that deep vibrant shade of red! And the frosting! Oh dear, I don't even usually like frosting but this sent me head over (high) heels into bliss – a super light whipped cream cheese frosting. As if heavy cream was beaten to billowy clouds and cream cheese was somehow magically incorporated in without adding the slightest bit of weight. And of course, like all desserts I really love, it was a sweet without being too sweet. Price tag? $3.50 is a small price to pay for this gem.
Overall? I would suggest you walk right on over to Pinisi's right now, because it's a tiny bakery, and I don't know how many people know about it already. But I would burst into tears if they closed down due to a lack of business. The owners are clearly hard workers and love what they do. So. All you people in line at Magnolia's and Sugar Sweet Sunshine: please turn around and come here :)
Pinisi Cafe & Bakery
128 East 4th St
(212) 614-9079


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At last night's town hall in Old Henderson, on the other hand, he was singing a very different tune. Last night, he actually started answering questions his constitutents have had on gun safety. And not only that, but he also suddenly found some common ground with President Obama on this matter.
However, there was a catch. While Heck was willing to extend an olive branch on universal background checks and curbing illegal gun trafficking, he was not willing to do the same on the Assault Weapons Ban and ban on high-capacity magazines.
Even though last week's KLAS/SUSA poll showed 57% of Nevadans support a ban on military grade assault weapons (and only 33% opposed), Heck didn't want to budge on this. He even claimed that the previous federal Assault Weapons Ban (1994-2004) didn't work. Unfortunately for Heck, the data on hand shows otherwise.
These so-called "external features" not only themselves allow for faster rates of fire and other more lethal uses of the guns, but also serve as effective proxy definitions for the sort of weapons best suited to kill people as efficiently as possible. The definition of "assault weapon" in the new federal ban proposed by Senator Dianne Feinstein (D-CA) with respect to semi-automatic rifles and pistols is focused on two kinds of each. The rifles are civilian equivalents of "assault rifles," the main class of rifle used by modern militaries. "Civilian" versions are distinguished only by their inability to fire either automatically or in bursts without a conversion kit. The pistols have features that make them liable to be converted to full automatic versions (that is, into submachine guns) or otherwise enhance their lethality (e.g., allow for faster rate of fire).
[The new Assault Weapons Ban] picks out those sorts of weapons in two ways. First, it bans specific guns (like the AR-15s used by James Holmes in Aurora and Adam Lanza in Newtown) that are particularly deadly. Many of these guns are civilian equivalents of military assault rifles, because — as assault rifle expert C.J. Chivers puts it — these guns were "conjured to form solely for the task of allowing men to more efficiently kill other men" because they are "smaller, lighter in weight, more tactically versatile and require a lighter per-man effective ammunition load than the infantry rifles that preceded them." The Feinstein provisions, unlike in the 1994 federal ban, specify that "altered facsimiles with the capability of any such weapon thereof" are also banned, so taking out a single screw and calling the weapon something different would not allow manufacturers to skirt the ban. The second provision defines generic features — like barrel shrouds that allow for faster fire or (for pistols) magazines outside the pistol grip —and bans any gun that has more than one of them and a detachable magazine (the old ban allowed a maximum of two features, making it easier to skirt).
These aren't merely cosmetic features: they're the ones that mark guns optimized for effective performance in combat-style situations. They also mark guns easily convertible to full automatic fire, like the TEC-9 submachine guns once favored in gang killings. One such kit is fully legal, despite the 1934 National Firearms Act banning the possession of automatic weapons without a permit. The kit produced by the company Slide Fire product allows you to turn your AR or AK series assault rifle into a rapid-fire machine without technically running afoul of the federal definition of "machine gun."
The notion that assault rifles are similar in caliber to hunting rifles, and hence no more dangerous, doesn't stand up to scrutiny for similar reasons. As the California Attorney General's office explains, "Caliber has no bearing on a weapon's status as a series weapon and should be disregarded when making an identification. For example, upper receiver conversion kits are available to convert almost any AR series weapon into .45 ACP, .40 S&W, 7.62 X 39 mm, 9 mm, 10 mm, or .223 caliber." [...]
There is evidence that the 1994 federal ban saved lives despite a series of loopholes closed in the Feinstein bill and several state bans. Though there isn't reliable data on the number of people killed by assault weapons in the United States, there is strong evidence from the Mexican border that both California's assault weapons ban the federal assault weapon ban lowered the homicide rate. The clearest comes in a 2012 academic paper that treated the expiration of the federal assault weapon ban in 2004 as a natural experiment —California still had its assault weapon ban, but Texas, New Mexico, and Arizona didn't have equivalents. The authors tracked homicides and weapon seizures in the Mexican provinces bordering the states, finding disproportionately lower homicide rates in provinces near California. This difference remained when other potential causes (like police presence) were accounted for, suggesting the federal and California bans had successful kept assault weapons out of the hands of cartels and other criminals. The expiration of the federal law, on this paper's model, has gotten roughly 239 people killed on the Mexican border per year since 2004. This is consistent with another paper that found "the expiration of the AWB is responsible for at least 16.4 percent of the increase in the homicide rate in Mexico between 2004 and 2008."
The 1994 ban, according to a Department of Justice review, also appears to have caused the percentage of crimes involving assault weapons in some major US cities to drop from 72 percent to 17 percent.
Even with its loopholes and other flaws, the 1994 federal ban actually did work to a large extent. And the new proposed ban goes a long way to fix those past flaws.
What's the purpose of civilian ownership & use of military grade assault weapons? And why are high-capacity magazines needed? How are these fit for "recreational use"? Heck didn't really answer that. And his spin falls flat once the facts are brought out.
Otherwise, it seems like Heck at least wants to be seen as "moderate" and "reasonable". So at least he's now open to background checks, curbing trafficking, and even lifting the ban on CDC researching gun violence. So maybe there's a chance of something getting through this Congress? Heck seems amenable to at least some measures, but it remains to be seen if his House G-O-TEA leaders allow a floor vote on anything... And if Alan Stock and the rest of the Nevada "tea party" will tolerate this talk from Heck.


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Student or Learner
I know that "ɪ" as in "it[ɪt]" is a relaxed sound with lips, tongue, teeth all relaxed, so it sounds between "i"and "e". while "i" as in "eat[i:t]" is a tensed sound.
But sometimes when I hear native speakers pronounce some "ɪ"s, there doesn't seem to be any difference between the two. So does it all depend on individual difference or something?
Last edited by BobK; 05-Dec-2012 at 15:26. Reason: Original was a bit too gnomic - well ICONIC
I saw this response in another thread. No, it's because you didn't pay full attention to each of those - there must be differences among the three. I think everyone has difficulty understanding foreign languages' pronunciation.
Back to my original question, I was wondering if native speakers switch ɪ and i sometimes, but it seems I still haven't got the answer or maybe I'm not still perfectly trained to distinguish the two.
The fact that there are differences does not mean that they are capable of being distinguished by a learner of a certain age. Attention is not the problem when you're fifty- I had my teacher say the sounds over and over and could not hear the difference.
Please don't expect me to participate in any more of your threads.
I know of no native speakers who do not distinguish between these two sounds.
But it's not a question of lack of attention as you suggest. When Tdol says 'In Khmer, they have three letter Ks, each with its own sound...' he's over-simplifying a bit: 'In Khmer, they have three unvoiced velar and alveolar stops, each with its own sound'? But I'm sure he knows what he means, and is the best judge of what degree of simplification is appropriate here.
/ə/. Yes, the tongue is relaxed. French /i/ is more tensed than English /i/. French /i/ is closer to the cardinal vowel 1. The tensing/relaxing has to do with inferior longitudinal muscles, since we are talking about the upper half of the vowel space with a fixed jaw setting. Henry Sweet talks about this tense-relax distinction between /i/ and /ɪ/.
I don't know how to relax teeth. The way you use lips and/or buccinator muscle changes the vowel quality: IPA vowel chart does not capture all these differences except for back rounded (protruded lips) and front rounded (compressed lips).
Unstressed /ɪ/'s vowel quality (happy lexical set) is not same as that of KIT lexical set. There are many variables at play because 'speech' is not a string of idealized sounds. One way to discuss these things is to capture the speech sample you are interested in, then you can ask the same questions.
Last edited by raindoctor; 06-Dec-2012 at 18:38.
I know two situations where native speakers will confuse the two.
First, at the end of a word in an unstressed syllable, like "happy". In BrE and sometimes in New England dialects, we say /ɪ/, otherwise it's /i/.
When I (from Maine) say "she's got a pretty face," "pretty face" is [prɪtɪ feɪs].
Second, some American West-Coast accents pronounce /ɪŋ/ as [iŋ]. There are no /iŋ/ words in English, but if there were, they would become homophones with words like "sing" or "king."
Last edited by 5jj; 13-Dec-2012 at 12:51.


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For legal purposes, I'd like to clarify that I am in no way encouraging anything. This is an attempt at adult debate related to the various mind altering substances available to your average purveyor and the curious scenarios said substances provide. Opinion may or may not come straight from the source, it could be second-hand or even imaginary. In any case, my hope is intelligence will shine forth and folks will realise when something is, well... ****ed up.
Basically, there's a reason **** is illegal but there's also a reason people do ****.
Whats your opinion on (hard) drugs? Experiences (Bad, good)? Have any of these experiences involved hookers? Xmas pudding? Large, serial killer infested country fields? Do you actually remember any of this ****?
I've had my share over the years, but I'd be interested to garner what this forum might have to offer.


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Mount St. Helens in southwest Washington State, USA, has awakened, and lava is oozing out.
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LOS ANGELES — The Los Angeles City Council has given preliminary approval to an ordinance that would require porn actors to wear condoms during film shoots.
The 11-1 vote Tuesday still requires a second vote next week to make the requirement law and avoid the need for a ballot measure.
Several members of the AIDS Healthcare Foundation urged council members to approve the ordinance. The group last month said it gathered enough signatures to put the issue on the June ballot.
A trade association for the porn industry opposes mandatory condom regulations, but has advocated for consistently testing adult film performers for sexually transmitted diseases.
Copyright 2012 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.


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|Submit your comments on this article
|10 police killed in Afghanistan suicide attack
|At least 10 policemen were killed and 18 others, mostly civilians, were wounded in a suicide attack Saturday in a crowded area of the northeast Afghan city of Kunduz, provincial authorities said.
The attacker, who was on foot, detonated his explosives next to a group of police officers, according to several sources.
"We have 10 dead, including the counter terrorism police chief and head of traffic police and their bodyguards," Sayed Sarwar Hussani, Kunduz police spokesman told AFP.
Thirteen civilians and five policemen were wounded in the blast, Hussani said, adding that the final death toll may rise.
The attack was "the work of the enemies of Afghanistan", he said, using a phrase common among Afghan officials to describe Taliban insurgents.
|Posted by:tipper


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April 10, 2010
Fullerton, Calif. - The UC Santa Barbara women's tennis team looked strong in a bounce-back victory on Saturday, sweeping Cal State Fullerton 7-0. The Gauchos (10-10, 5-2) won five of the six singles matches in straight sets, and gave up just four total points in doubles play against the Titans (1-14, 0-7).
Sofia Novak won her No. 1 singles match against Tiffany Mai (6-3, 6-7 (11-9)). Every other singles match ended up in a straight set victory in favor of UCSB. At the No. 2 position, Natalia Lozano easily put away Monica Rodriguez by a count of (6-1, 6-1). Jill Damion was impressive in her No. 3 matchup with Erin Wiesener, as she recorded a straight set victory (6-1, 6-3). Bryanna Ojeda, playing from the No. 4 spot, shut down Malorie dela Cruz (6-2, 6-0). At the No. 5 position, Jordan Dockendorf was too much for Jerusha Cruz, as she won by a score of (6-1, 6-0). Asagi Onaga rounded out the action with her victory over Karina Akhmedova, as she did not surrender a game in her first singles action since mid-February.
The Gauchos were equally impressive in doubles play, giving up a total of four points in the three matches. UCSB's No. 1 team of Ojeda and Tova Hausman continued to thrive atop the lineup, taking care of Mai and Rodriguez (8-0). Dockendorf and Lozano also put up a strong showing as they dominated their No. 2 match against Cruz and Wiesener (8-2). At the No. 3 spot, Damion and Onaga competed together for the first time and handled the team of Akhmedova and dela Cruz (8-2).
UCSB will conclude its regular season schedule with a pair of home matches. The Gauchos will return to action on Friday, April 16th at 1:30 p.m. when they host Portland. They will then finish off their Big West schedule against UC Riverside on Senior Day, Sunday, April 15th at 11:00 a.m.
1. Sofia Novak (UCSB) def. Tiffany Mai (CSF) 6-3, 6-7 (11-9)
2. Natalia Lozano (UCSB) def. Monica Rodriguez (CSF) 6-1, 6-1
3. Jill Damion (UCSB) def. Erin Wiesener (CSF) 6-1, 6-3
4. Bryanna Ojeda (UCSB) def. Malorie dela Cruz (CSF) 6-2, 6-0
5. Jordan Dockendorf (UCSB) def. Jerusha Cruz (CSF) 6-1, 6-0
6. Asagi Onaga (UCSB) def. Karina Akhmedova (CSF) 6-0, 6-0
1. Hausman/Ojeda (UCSB) def. Mai/Rodriguez (CSF) 8-0
2. Dockendorf/Lozano (UCSB) def. Cruz/Wiesener (CSF) 8-2
3. Damion/Onaga (UCSB) def. Akhmedova/dela Cruz (CSF) 8-2


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HIV/AIDS News
At AIDS 2014, Dr. Anthony S. Fauci Discusses Key Challenges in HIV Scientific Discovery: Cure, Vaccine
Monday, July 21
A cure for HIV and a vaccine to prevent infection are essential to achieve an end to the HIV/AIDS pandemic, but researchers must learn a great deal more to develop either intervention, said Anthony S. Fauci, M.D., director of the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health (NIH).
Dr. Fauci's remarks were delivered at the 20th International AIDS Conference (AIDS 2014) in Melbourne, Australia, as part of his plenary lecture, "Critical Challenges in HIV Discovery: Cure and Vaccine."
"We can aspire to a world without AIDS based on the treatment and prevention modalities that we already have," Dr. Fauci said. "However, there is no doubt in my mind that we could achieve this goal in a more expeditious and permanent way if we could offer the possibility of a cure—or at least sustained virologic remission in the absence of therapy—to a substantial proportion of individuals infected with HIV, while at the same time boosting our combination prevention options with a vaccine."
Globally, an estimated 35 million people were living with HIV at the end of 2013, according to UNAIDS. The number of new HIV infections and AIDS-related deaths have both dropped by more than one third in the past decade, largely because of the extraordinary advances in HIV prevention and treatment. Finding a cure for HIV infection is a top scientific goal but Fauci stressed that we are still in the early discovery phase of cure research and the field is confronted with many challenges. One of the major stumbling blocks towards achieving a cure is the ability of the virus to rapidly establish hidden reservoirs in the body. Characterizing and quantifying these reservoirs remain top priorities for investigators, as does the development of biomarkers to identify and track their development.
Investigators are also pursuing a variety of strategies aimed at eradication of the viral reservoir, such as activating latently infected cells to make the virus vulnerable to antiretroviral drugs and immune responses, directing immunotoxic therapy at the reservoir, intensifying therapy using multiple antiretroviral drugs, using gene therapy to make a patient's cells refractory to HIV infection, and even stem-cell transplants. With the exception of a single individual who received a stem cell transplantation from a person whose cells were refractory to HIV infection—the so-called "Berlin Patient"—these approaches have not yet been successful.
Dr. Fauci stated that several lines of evidence suggest that very early treatment may prove to be extremely important if viral eradication is to be achieved. "If the virus is to be eradicated from HIV-infected individuals, it likely will be very important to start off with a smaller reservoir by treating infection as early as possible," he said, noting the example of the Mississippi baby—an HIV-infected child who was treated within 30 hours of birth and continued for 18 months and then remained off antiretroviral treatment for 27 months without evidence of virus in the blood or an anti-HIV immune response until the virus ultimately rebounded. Critical scientific questions remain unanswered about that case, including what were the immunologic or other mechanisms that kept the virus from rebounding for more than two years, what trigged the rebound, and from what cell type and body compartment did the virus rebound. An upcoming NIH-funded clinical trial will attempt to address these and other questions.
In the absence of the ability to eradicate the virus completely, improving the understanding of HIV reservoirs and working toward maintaining sustained virologic remissions following cessation of antiretroviral treatment are goals for HIV cure research, according to Dr. Fauci.
In addition to HIV cure research, finding a vaccine to prevent infection remains a priority. Although many scientific approaches to a vaccine have been attempted since the late 1980s, only one large trial, the RV144 study in Thailand, has demonstrated a modest degree of success. Researchers are making progress in understanding the immune responses that helped protect against infection in the Thai study, and working to develop the next generation of HIV vaccines, such as those that might work by inducing broadly neutralizing antibodies capable of killing a wide range of HIV strains. Such antibodies also hold promise for use as therapy. Complementary approaches, such as vaccines that induce T cells to kill HIV-infected cells, are also being pursued.
"Researchers are making progress, but there is still much to be learned before we have a cure or vaccine for HIV," Dr. Fauci said. "We must remain focused on developing these tools to move us closer to the end of AIDS."
Media inquiries can be directed to the NIAID Office of Communications at 301-402-1663, email@example.com.


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PowerPoint Presentations are always been a tool of attracting audience towards the topic and ideas. This is one of the most helping factor behind the success of every Seminar, conference and meet
PowerPoint Presentations are always been a tool of attracting audience towards the topic and ideas. This is one of the most helping factor behind the success of every Seminar, conference and meeting. There are various uses of PowerPoint Presentations in modern days as it is helpful for corporate training, learning, business, sales gathering and marketing prospects. PowerPoint can combine audio and video both of the aspects and making it easier to understand the topics and views for the audience. When it comes to teaching it is the most powerful tool to give more efficient, interactive and better training.
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We are all in the midst of Rockies Fever — oh, and Phillies Fever; we're in the midst of that too — so we take a time out to remember manager Clint Hurdle's finest moment: The time he was arrested for trying to bring a little love to the planet.
Via Storming The Floor, we present the tale of Hurdle's 1992 arrest for shoplifting.
CLINT HURDLE, a former major league player and the manager of the Mets' top farm team at Tidewater, has been charged with stealing some Valentine's Day items worth $1.79 from a grocery store, the police in Williamsport, Pa., said. The 34-year-old Hurdle was arraigned on a charge of retail theft and released on $200 bail after his arrest Monday.
Even in 1992 dollars, $1.79 wouldn't get you very many Valentine's Day goodies. Maybe a few of those awful chalk candies.
We haven't been able to find much more detail about the arrest, but today, it's good to know that if you're a Rockies fan, you're rooting for a man with much love in his heart.
Clint Hurdle 1992 Arrest [NY Times] (Via Storming The Floor)


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Monday night at Allen Arena he followed up an impressive debut at No. 8 North Carolina with a team-leading 20-point performance, including 10-for-10 shooting from the free throw line, in a 103-78 win over Stillman College, an NCAA Division II school.
It was the home opener for the Bisons.
"Robert has had two very good games," Lipscomb coach Scott Sanderson said. "He has made a bunch of shots which is great, but the biggest thing he has done is he is playing with a lot of poise and understanding.
"He has played well on both ends of the floor. He gives us a lot of energy defensively. He is very, very active. He didn't have a turnover against North Carolina and only had two against Stillman. That's pretty good from the point guard spot."
Boyd has also not been shy about challenging the opposition.
"He has played some big games in high school before," Sanderson said. "He has a lot of confidence in his game. And his teammates have a lot of confidence in him.
"This is the way he has been playing in practice. He is playing awfully well."
Sanderson got a long look at his team with 12 of 13 players on the roster playing 10 or more minutes.
Five players finished in double figures.
"My biggest thing was to get everybody some playing time," Sanderson said. "I am trying to figure out who is going to play and figure out a substitution rotation. That's why we played so many guys.
"It is probably going to be a battle every game. We will change our lineup pretty much every night until January until we settle in on who is going to be doing what. We have eight guys that are good enough and deserve to start. We are going to rotate players in and out based on what we need each game."
Guard Josh Slater posted a double-double with 18 points and a game-high 10 rebounds. Slater hit four-of-five 3-point attempts.
"Josh got 18 points on nine shots," Sanderson said. "He got 10 rebounds in 20 minutes. He was very efficient. We have to continue to get good play out of him."
Center Adnan Hodzic added 19 points. Hodzic and Slater each played 20 minutes.
Forward Justin Glenn scored 11 points. Forward Brandon Brown added 10.
Stillman placed four players in double figures led by Lee Riley with a game-high 21 points.
"We have a lot of guys who can score," Sanderson said. "We need some more players making stops on defense. I don't care if we play 50 guys a game we have to do a better job defending.
"Brandon Brown needs to be a defender and rebounder for us. He doesn't have to score for us to be effective. He can guard multiple positions. We desperately need for him to be a defender first."
The Bisons are 1-1 overall. They are home Thursday to face Austin Peay at 7:15. The women will play Tennessee Tech at 5 as part of an Ohio Valley Conference doubleheader.
Written by Mark McGee, Senior Publisher/Director of Media Relations.


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June 1, 2011
Using a brainstorming diagram in Microsoft Visio 2010
Submitted by K-State IT editor
A variety of technologies have been created to help people come up with a range of ideas. There are electronic journals embedded into digital laboratories. There are online technologies that enable people to take notes on-the-go and keep the notes in the "cloud," so they can access their ideas with a variety of devices from anywhere with connectivity to the Internet. The visualization software of Microsoft Visio has a "Brainstorming Diagram" tool that offers a spatialized (sometimes called a "bubble diagram") type of brainstorming.
To sample this tool, open Microsoft Visio 2010. Go to open a New file. Under the Business templates, you will find a Brainstorming Diagram.
Click the Create button at the right.
The following workspace will appear. The grid area is the active space that you can build in. (You can change the workspace by going to the Design button in the Menu Bar and then clicking on Orientation — to choose between landscape and portrait — and on Size to set the paper size from more than a dozen size selections.)
To build a brainstorming shape, drag the oval-shaped main topic onto the main workspace.
Double-click the text in order to input the topic name. You can reshape the object by clicking on it. When the blue shape overlay is on the object, the shape can be resized in any direction by pulling on the marked blue squares. Dragging on a straight edge will move the object.
To add multiple topics, drag the Multiple topic shape into the work area.
Type in as many topics as you want for that cluster of ideas.
To connect various elements, you can use a dynamic connector to show direct subordinate relationships between the main topic and the connected topics. An Association Line shows a lesser or more distant connection. Just drag the lines onto the workspace, and connect the relevant ends to the various objects. The following image shows a Main Topic connected by an association with a topic.
The following is a quick brainstorm just to demonstrate how the hierarchy of this brainstorm reflects in the outline and in the brainstorming visual.
The relationships depicted in the lines are expressed in an outline format at the bottom left of the screen in the Outline Window. This textual outline may help keep elements and relationships straight if the visual brainstorming diagram gets very complicated.
Save the file by going to File, then Save. Once your file has been saved as a .vsd (Visio diagram) file, you can output the saved file in any number of formats. Go to the Menu Bar, click File, then Save As, and then select the proper file type from the drop-down menu.
- If the image will be used on a website, the image may be saved as a .jpg or .gif or .png.
- If the image will be used in a publication, it may be saved as a .tif file.
- An image may be saved as a .pdf if the image will be used as a stand-alone file with other text.
The file may now be attached to email and shared with colleagues via email, virtual work areas, or learning / course management systems.


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Campus Rec Fright Night - University of Mount Olive
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The National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases Research(ORDR), created the Genetic and Rare Diseases Information Center to help people find useful information, in English or Spanish, about genetic and rare diseases. You can speak with an information specialist Monday through Friday from 12 p.m. to 6 p.m. Eastern time. You can write to GARD anytime via e-mail, letter, or fax. Bilingual information specialists are available to respond to inquiries in Spanish. All information requests are completely confidential.
Review Date: Wednesday, October 14, 2015
List reviewed web resources
The National Hansen's Disease Program is the epicenter of Hansen's disease (leprosy) care, research and information in the U.S. It cares for patients at its facility at the Ochsner Medical Center in Baton Rouge, oversees an ambulatory care network with 11 clinics in seven states and Puerto Rico,advances treatment and educates medical professionals about Hansen's disease, and conducts intramural Hansen's disease (leprosy) biomedical research.
Review Date: Thursday, May 22, 2014
The Office of Rare Diseases Research (ORDR) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH), the Federal focal point for biomedical research. ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases. Public Law 107-280, the Rare Diseases Act of 2002, established the ORDR by statute. The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 7,000 rare diseases known today.
Review Date: Thursday, August 04, 2011
The FDA's Office of Orphan Products Development (OOPD) is dedicated to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions. To locate such products, the OOPD interacts with the medical and research communities, professional organizations, academia, and the pharmaceutical industry, as well as rare disease groups. The OOPD administers the major provisions of the Orphan Drug Act (ODA) which provide incentives for sponsors to develop products for rare diseases. More than 228 drugs and biological products for rare diseases have been brought to market since 1983.
Review Date: Monday, October 05, 2015
The American Syringomyelia Alliance Project Inc. (ASAP), is a national nonprofit organization founded in 1988. Its main goals are to be a support network and information clearinghouse for people who have syringomyelia, a rare spinal cord disorder, a source of information and support for Chiari Malformations, and to support future research. ASAP is also working towards coordinating the efforts of organizations in the U.S. working to improve the lives of those challenged by Syringomyelia or Chiari Malformations; increase public awareness of the existence of the disorders and the associated devastation; secure a uniform, national Medicare policy providing coverage for current and future treatments of the disorders; inform sufferers of the latest efforts of doctors who are treating the disorders; and urge research efforts to find all causes, to develop new treatments, and to improve existing treatments.
The Amyloidosis Foundation is a non-profit organization that is the result of the merge in 2007 of the Amyloidosis Research Foundation and the Amyloidosis Support Network. With the merge of these two organizations, the missions of both are brought together. The Amyloidosis Foundation continues to support research through the grant program, work towards raising awareness of the disease and helping patients and their families. The mission of the foundation is to increase education and awareness of amyloidosis within the community leading to earlier diagnosis and improved treatment.
Review Date: Wednesday, March 09, 2011
Amyloidosis Support Groups is a 501(c)3 Non Profit Corporation, dedicated to the support of amyloidosis patients, caregivers, and former caregivers. Their goals are to set up and help maintain peer support group meetings, and by raising funds through donations, help the groups to be self sustaining. ASG also maintains an online support listserv (www.amyloidosisonline.com) for over 1500 patients and caregivers, and an online support group for the hereditary and TTR form of amyloidosis (www.familialonline.com).
Review Date: Tuesday, February 26, 2013
The Angelman Syndrome Foundation is a national 501(c)(3) organization of families, caregivers and medical professionals who care about those with Angelman Syndrome. The foundation's mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy and support for individuals with Angelman Syndrome, their families, and other concerned parties.
Review Date: Wednesday, November 09, 2011
Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and support individuals affected by CCM while facilitating improved diagnosis and management of the illness through education and research.
Review Date: Friday, May 15, 2009
APS is an abbreviation for Antiphospholipid Antibody Syndrome. APS is also called APLS or APLA in the United States and Hughes Syndrome or Sticky Blood in the UK. APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.
Founded in 2005, the APS Foundation of America, Inc. is the leading United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services.
Review Date: Thursday, November 10, 2011
The A-T Children's Project was established to raise funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, cancer and immune system problems. A-T Children's Project is a national, non-profit group that responds to inquiries from any individual interested in learning about ataxia-telangiectasia.
(Se habla español)
Review Date: Friday, December 12, 2008
The Batten Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and to educate others about Batten Disease. The Association assists with the National Batten Disease Registry which is maintained at the New York State Institute for Basic Research in Developmental Disabilities. BDSRA maintains a library of information on the disease; Helping Hands Information Sheets on topics such as seizure care, tube feedings and medications. Books on grief and coping with an ill child, and informational videocassettes are available on loan. Information on medical care, financial assistance, and funding/grants is available through the Association. Services are available at all levels of participation for a membership fee.
The Cicatricial Alopecia Research Foundation (CARF) is a 501(c)(3) tax-exempt not-for-profit
organization formed in 2001 as a result of one person's experience with scarring alopecia (cicatricial means scarring). When the patient realized that little is known about such disorders, she decided, with the help of her doctor, to initiate a grassroots effort to raise funds for research to find effective treatments and a cure, to support education and advocacy, and to raise public awareness of these rare diseases. CARF funds are available to support research that will enhance our knowledge about this difficult group of diseases.
Review Date: Thursday, September 09, 2010
The Cushing's Support and Research Foundation was established in 1995 to provide information and support to Cushing's patients and their families. The Foundation was incorporated in the state of Massachusetts as a non-profit organization and is an Associate Member of NORD, the National Organization for Rare Disorders. The CSRF has a Medical Advisory Board consisting of very experienced surgeons and endocrinologists who are world renowned for their expertise on Cushing's. The CSRF is primarily funded by membership and personal donations. The CSRF maintains a database of many present and past Cushing's patients willing to support others.
Review Date: Thursday, February 14, 2013
The mission of the Cystinosis Research Foundation is to support bench and clinical research that is focused on developing improved treatments and a cure for Cystinosis. The Cystinosis Research Foundation is dedicated to educating the medical and public communities about Cystinosis to ensure early diagnosis and proper treatment. Since 2003, the foundation has raised more than $20 million for 103 studies and fellowships in 11 countries making the Cystinosis Research Foundation the largest source of grants for Cystinosis research in the world.
The Dysautonomia Center at NYU Langone Medical Center brings together physicians, researchers and nursing staff to focus on the research and treatment of autonomic disorders in children and adults. The Center offers an accredited fellowship program to train young physicians and a post-doctoral research fellowship to train young scientists in autonomic nervous system physiology. Our outpatient clinical service is dedicated to the diagnosis of autonomic disorders and the management of these conditions in adults and children. In addition to our clinical services, we have a number of approved studies and trials aimed at better understanding and treating different autonomic disorders. The Center is supported by grants from the Dysautonomia Foundation, Inc. and the National Institutes for Health.
The Dysautonomia Foundation is an international organization created in 1951, to provide services for patients with Familial Dysautonomia, a Jewish genetic disorder. We support a Treatment and Evaluation Center at NYU Medical Hospital in NYC as well as a satellite center at Hadassah Hospital - Israel. The Foundation funds research into FD leading to a cure. It also offers support services to families including information on Treatment and Research.
Review Date: Wednesday, October 12, 2011
The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization. Its mission is to raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking.
Review Date: Wednesday, March 20, 2013
Founded in 1999 and professionally certified as a 501(c) (3) non-profit organization in 2002, the Dysautonomia Youth Network of America, Inc. (DYNA) is the first and only 501(c) (3) non-profit organization in existence specifically for childhood/adolescent/young adult onset dysautonomia conditions. The organization proudly serves patients, caregivers, families, physicians, researchers, educators and the public at large. Most DYNA members reside in the United States but some members hail from as far away as Australia, New Zealand, Scotland, England, South America, and Singapore. In addition to members reflecting the geographical diversity of dysautonomia conditions, they also reflect the diversity of dysautonomia conditions themselves. Members have a host of conditions such as: Post-Viral Dysautonomia, Generalized Autonomic Failure, Neurocardiogenic Syncope (NCS)/Vasovagal Syncope, Postural Orthostatic Tachycardia Syndrome (POTS), Neurally Mediated Hypotension (NMH), Post-Viral Dysautonomia, Non-Familial Dysautonomia and Multiple System Atrophy.
Families of Spinal Muscular Atrophy was founded to support families with members suffering from the condition and to promote research into treatments for spinal muscular atrophy (SMA). Spinal muscular atrophy is a group of diseases which affect all age groups, from newborns to adults. The diseases included under spinal muscular atrophy are: Infantile Progressive Spinal Muscular Atrophy (Werdnig-Hoffmann Disease), Juvenile Progressive Spinal Muscular Atrophy (Kugelberg-Welander Disease), and Adult Progressive Spinal Muscular Atrophy (Aran-Duchenne Type).
This nonprofit organization offers information on progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) and support to persons with CBD, their families, and their caregivers. Through its online service, the Foundation also offers physicians and other health care professionals information on treatment, research into PSP and research opportunities that are available.
Review Date: Tuesday, October 13, 2015
The Histiocytosis Association was founded to coordinate a network of patients, families, physicians and others interested in providing support and solutions to the special problems caused by any of the histiocytic disorders. Histiocytosis is a general term for a group of rare disorders brought on by having too many histiocyte cells. The Association works closely with the Histiocyte Society, has a parent/patient directory and sponsors regional meetings. Funds research seeking better treatments, knowledge and the cure.
The Human Growth Foundation (HGF) is a national organization of volunteers concerned with child growth abnormalities, specifically dwarfism of all forms, whether caused by pituitary growth hormone deficiencies, Turner's syndrome, or bone disorders. The Foundation, created in 1965 by parents of children with severe growth problems, offers parent education and mutual support, supports research, and promotes public awareness of the physical and emotional problems of short-statured people. The core of founding parents has since been joined by medical persons (endocrinologists, pediatricians, and physicians) and researchers. HGF acts as a clearinghouse for families with growth problems and administers a medical research program.
Review Date: Thursday, August 20, 2015
The Immune Deficiency Foundation (IDF) is a nonprofit, national, voluntary, health organization dedicated to promoting and supporting research into the causes, prevention, treatment, and cure of primary immunodeficiency diseases; gathering and disseminating information concerning research and treatment of these diseases; increasing public awareness; and establishing chapters in each State. Primary Immunodeficiency diseases (ranging in prevalence from 1 in 500 individuals to 30 to 50 cases yearly in the U.S.) are a group of diseases which occur when part of the body's immune system components is missing or does not function properly. This organization is supported by grants and donations from concerned individuals and groups.
Incontinentia Pigmenti (IP) is a genetic disease of the skin, hair, teeth and central nervous system. The condition was named because of the way the skin looks under the microscope. "Bloch-Sulzberger Syndrome" is another name commonly used for IP. Other names are: Bloch-Siemens incontinentia pigmenti, melanoblastosis cutis linearis, and pigmented dermatosis, Siemens-Bloch type.
Founded in 1995, IPIF is a non-profit organization guided by a Scientific Advisory Council, whose members are acknowledged experts in their fields. IPIF consists of patients, physicians, educators, parents, relatives, and volunteers who are striving to take leadership in supporting research, education, and funding. IPIF is a source of reliable information and support for patients and families in the United States and worldwide. Its mission is to encourage and support research on IP, and to provide family support and education.
Review Date: Tuesday, April 19, 2016
As the most comprehensive worldwide organization dedicated to Rett syndrome, the International Rett Syndrome Foundation proudly continues fulfilling its core mission to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs and services. Rett syndrome (RTT) is a neuro-developmental disorder that occurs mostly in females. It's usually caused by a mutation of the MECP2 gene on the x chromosome. Rett syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class. RTT affects 1 in 10,000-15,000 live female births. Early developmental milestones appear normal; between 6-18 months of age, there is a regression, affecting speech, hand skills and coordination. A hallmark of RTT is repetitive hand movements that may become almost constant while awake. Other features may include seizures, irregular breathing, difficulties swallowing and curvature of the spine. Many individuals with Rett syndrome live well into adulthood. In October of 1999, the discovery of genetic mutations in the gene MECP2 on the X chromosome (Xq28) revealed significant insight into the cause of Rett syndrome. This gene encodes an abundant chromosomal protein (MeCP2), which acts as a transcriptional repressor by binding to methylated CpG base pairs throughout the genome and silencing other genes. Rett syndrome is thought to arise in great part due to abnormal over-expression of genes improperly regulated by a defective MeCP2. This is the first instance of a human disease caused by defects in a protein whose function is to silence other genes. There is currently no cure. Continued research is now focused on still unidentified genetic factors which may contribute to Rett syndrome. Numerous target genes have been identified that are regulated by the MeCP2 protein. Genetic studies have begun to identify additional causative genes such as CDKL5 and FOXG1. Valuable animal models have been developed that effectively reproduce the disease and demonstrate the potential reversibility of the disease. Neurobiological studies have enabled us to determine some of the neurological underpinnings of Rett Syndrome pathogenesis.
Review Date: Thursday, February 05, 2009
Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment. These issues are due to abnormal brain development, resulting in decreased size of the cerebellar vermis and other brain abnormalities that appear as the "molar tooth sign" on a brain MRI. Although rare, several hundred individuals with Joubert Syndrome have been reported in the medical literature. Mutations in at least 10 genes cause Joubert Syndrome, accounting for ~50% of patients. Subsets of individuals with Joubert Syndrome can also have polydactyly (extra fingers or toes), as well as retinal, kidney and liver disease requiring medical intervention.
Joubert Syndrome is one of a growing group of disorders called "ciliopathies," caused by dysfunction of a part of the cell called the cilium. The cilium functions as an antenna for many cell types, allowing cells to communicate with each other and sense their environment during the development and function of many organs. In fact, cilia are required to sense light in the eye, odors in the nose and fluid flow in the kidneys and liver. Disruption of cilium function likely explains the incidence of eye, kidney and liver problems in individuals with Joubert Syndrome.
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support group for sharing experiences and information; to provide a clearinghouse for correspondence between members; and to maintain a list of current medical literature pertaining to K-T Syndrome and to make it available to members and professionals. There is no membership fee. The group is supported by donations.
Review Date: Tuesday, December 07, 2010
The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors. LSI, an all volunteer organization, is founded and governed by Lynch syndrome survivors, their families, and health care professionals who specialize in Lynch syndrome. If diagnosed early, Lynch syndrome survivors may have favorable outcomes which enhance survival, the longevity and quality of life as well as the emotional well-being of the afflicted.
Review Date: Thursday, September 20, 2012
The Maple Syrup Urine Disease (MSUD) Family Support Group provides opportunities for support and personal contact for those with MSUD and their families. MSUD, which derives its name from the distinct sweet smell of the urine, affects the way the body metabolizes certain components of protein. The purpose of the support group, which began in 1983, is to gather and distribute information on MSUD, strengthen the liaison between families and professionals, and encourage research and newborn screening for MSUD. The organization sponsors biennial symposia. The group develops resources to meet the goals of support and education.
Review Date: Thursday, July 08, 2010
The Mount Sinai Center for Jewish Genetic Diseases is the oldest center in the country dedicated to the care of patients with genetic disorders that are prevalent in the Jewish community and to conducting research focused on the development of improved diagnostic and treatment modalities.
The Center conducts a Jewish genetic disease screening program, which provides expert screening and genetic counseling to individuals at risk for being carriers of these diseases. All services are provided by board-certified genetic counselors and clinical and molecular geneticists.
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS' mission to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Through a database of over 19,000 families from 54 countries, covering over 3200 disorders, very rare syndromes or undiagnosed conditions can be matched. Parents can then exchange valuable medical information, as well as, the names of doctors, clinics and medical resources or research programs. Families provide each other with emotional support; they don't feel so alone when they have each other to reach out to in time of need. MUMS networks with other organizations that do matching, thus expanding the possibilities of finding a match. MUMS also connects parents with support groups dealing with their child's specific disability or assists them in forming a group.
Review Date: Thursday, December 11, 2008
The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands.
Review Date: Tuesday, May 24, 2011
The National Ataxia Foundation (NAF) is a non-profit organization established in 1957. The Foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research. The Foundation supports research in dominant, recessive and sporadic ataxia. In addition, the Foundation has developed an extensive library of NAF brochures, fact sheets, books, and other educational material relating to ataxia. Also available to its members is a quarterly newsletter called "Generations," which provides the latest information on ataxia research, articles on living with ataxia, and personal accounts of ataxia families throughout the United States. For more information, visit NAF's web site at: www.ataxia.org.
Review Date: Thursday, October 27, 2011
The National Dysautonomia Research Foundation (NDRF) is a non-profit organization established to help those who suffer with any of the various forms of autonomic nervous system disorders, also known as dysautonomias. The Foundation provides education and support to afflicted individuals and their families as well as supporting research efforts aimed at discover of the causes of, and treatments for, dysautonomias. In addition, NDRF provides timely and accurate information to the news media, healthcare professionals, patients, and the general public. Online resources include a directory of physicians and medical facilities that specialize in the research and treatment of dysautonomias.
Review Date: Monday, October 17, 2011
The National Endocrine and Metabolic Diseases Information Service (NEMDIS) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the U.S. Department of Health and Human Services. The NEMDIS provides information about endocrine and metabolic diseases to people with endocrine and metabolic diseases and to their families, health care professionals, and the public. The NEMDIS answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and government agencies to coordinate resources about endocrine and metabolic diseases.
National Eosinophilia-Myalgia Syndrome Network, Inc. (NEMSN) is a non-profit organization dedicated to helping EMS survivors and their families by offering educational information and peer support. NEMSN is also committed to encouraging research to improve treatment for L-tryptophan-induced EMS and to increasing awareness of the cause and effects of the disease.
Review Date: Thursday, September 24, 2009
The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome.
Review Date: Wednesday, February 02, 2011
The NGF, a non-profit organization established in 1984, is an objective, independent voice of the Gaucher community, dedicated to providing leadership, outreach and innovative thinking. The NGF funds research, grants financial assistance, promotes education and awareness, and supports legislation. In addition, the NGF offers a wide range of programs and resources to meet the ever-increasing needs of individuals and families affected by Gaucher disease.
Review Date: Monday, September 12, 2011
The National Hemophilia Foundation (NHF), founded 1948, serves hemophiliacs and their families through its local chapters. Patient services include support of comprehensive care centers, scholarships, patient education, blood drives, emergency financial assistance, and referrals. The NHF also provides research stipends, promotes public policies benefitting hemophiliacs, and sponsors public and professional education programs. NHF has promoted the concept of comprehensive hemophilia treatment programs and has obtained Federal funding for 20 such programs.
Review Date: Monday, August 25, 2008
The National Marfan Foundation was founded in 1981 by patients and families of patients with Marfan Syndrome, a genetic disorder of the connective tissue. The organization has three goals: to educate patients, physicians, and the public about Marfan syndrome and related connective tissue disorders; to support affected people and their families; and to foster and develop research. The NMF holds an annual conference in the summer.
Review Date: Monday, April 20, 2009
The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and provides support services for individuals and families affected by NPD. A comprehensive Web site, brochures, posters, newsletters, Facebook group, listserv groups, blog, etc., are available.
Review Date: Wednesday, August 27, 2008
The National Organization for Albinism and Hypopigmentation (NOAH) was founded in 1982 for the benefit of individuals and families with albinism and hypopigmentation. NOAH provides information and support, promotes public and professional education, and encourages research and research funding that will lead to improved diagnosis and treatment. The Organization has local chapters in some areas, and contact people in most states. NOAH is a nonprofit group, which receives its funding through membership fees, donations, and grants. NOAH conducts national and regional conferences.
The National Organization for Rare Disorders, Inc. (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Office hours are from Monday-Friday 9am-5pm EST. Voice mail is available. NORD's web site also includes a searchable version of the Rare Diseases Database (RDB). There are also additional NORD databases you may access.
Review Date: Tuesday, December 28, 2010
The National Urea Cycle Disorders Foundation is a non-profit organization dedicated to the identification, treatment and cure of urea cycle disorders. NUCDF is a nationally-recognized resource of information and education for families and healthcare professionals.
Founded in 1988, the Foundation is operated and supported by the volunteer efforts of families with children suffering from UCDs and is a supportive network of families, friends, and medical professionals.
Review Date: Friday, January 27, 2012
Established in 1985, the mission of the National Vitiligo Foundation, Inc. is to increase awareness and concern for vitiligo patients among the general public and the medical community. The Foundation supports scientific and clinical research on vitiligo, answers questions and distributes information pamphlets from the general public on vitiligo, makes referrals to physicians and to other families with vitiligo, and advises patients on cosmetics, sunscreens, and other products for use by those with vitiligo. The Foundation is devoted to finding new treatments, and ultimately, a cure for vitiligo. Resources include chapters, support groups, advocacy and awareness campaigns.
Noonan Syndrome Support Group, Inc. (NSSG) is committed to providing support, current information, and understanding to those affected by Noonan syndrome, a condition often associated with congenital heart disease and short stature. NSSG is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences, support, networking, and information.
Review Date: Wednesday, May 25, 2011
FSRG has a number of resources available to families, patients, and others affected by Freeman-Sheldon (FSS) or Sheldon-Hall (SHS) syndromes, who are members of FSRG's Outreach Department. FSRG wants to have an involved membership and strives to provide responsive and relevant services to better help members. Some are research-related, meaning that the services are available only to those who enrol in research, and some services are not dependent upon enrolment in research. To become a member of the Outreach Department, you must complete an application, and FSRG must verify your status with the physician caring for the person with FSS or SHS. Diagnosis verification by FSRG is not required for membership.
Review Date: Friday, June 24, 2011
The Pituitary Network Association (PNA) is a nonprofit organization which was formed in 1992 in Los Angeles, California, as the Acromegaly Network Association. Patients referred to PNA receive information on pituitary adenomas and peer-counseling. The lack of clear and concise written information about the various pituitary adenomas, and the difficult and intricate illnesses and afflictions associated with the many types of adenomas led the Association to engage some of the world's leading scientists, endocrinologists, and neurosurgeons to write information booklets and brochures, in layman's language. Publications are now available form PNA on Acromegaly, Cushing's, Prolactinomas, and pediatric tumors. The Pituitary Patient Resource Guide is available in it's 4th Edition.
Review Date: Monday, July 14, 2014
Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome, a genetic cause of life-threatening obesity in children.
The Pulmonary Hypertension Association (PHA) is a non-profit health organization, serving patients with pulmonary hypertension, their family members and the medical professionals who treat them. Its mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, and advocacy and awareness. PHA provides ongoing educational opportunities for patients and the medical community; the chance for patients to connect with others through support groups and online communities; print and online newsletters; and numerous other resources. PHA also funds cutting-edge research on pulmonary hypertension in collaboration with the National Heart, Lung, and Blood Institute, the American Thoracic Society and the American Heart Association. Pulmonary Hypertension is a simplified name for a complex health problem: high blood pressure in the lungs. It is a rare and currently incurable, but increasingly treatable condition that affects both genders and people of all ages and ethnic backgrounds.
Review Date: Tuesday, October 18, 2011
The mission of the Scleroderma Research Foundation is to find a cure for scleroderma, a life-threatening and degenerative illness, by funding and facilitating the most promising, highest quality research and by placing the disease and the need for a cure in the public eye.
Review Date: Friday, March 12, 2010
Shwachman-Diamond America is a nonprofit organized exclusively for charitable, educational and scientific purposes. This organization is established to support and encourage research of SDS by providing grants to researchers and educating medical professionals of the need for research in the field of SDS. SDA educates physicians and families on various aspects of SDS and disseminates current medical information on SDS.
Review Date: Thursday, November 20, 2008
The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.
Review Date: Tuesday, August 17, 2010
The Sickle Cell Disease Association of America (SCDAA) was founded in 1971 to educate the public about sickle cell disease, identify carriers of the disease, promote the interests of sickle cell patients, and make recommendations for screening, treatment, and genetic counseling programs. The SCDAA provides program development consultation for its 86 affiliates, raises funds, conducts a national screening program, conducts public educational and staff training programs, and provides patient services and financial aid through its affiliates.
Review Date: Tuesday, August 31, 2010
The principal mission of this Center is to help break the sickle cycle. The Center works towards this goal by providing the sickle cell patient and professional access to education, news, research updates and world wide sickle cell resources via its web site; and offering compassionate care, education, counseling, and research for patients with sickle cell disease.
Review Date: Thursday, May 24, 2012
The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantism, is a neurological brain-based disorder resulting in physical and mental developmental delays in children. The goals of the SSSA are to provide a social support environment for families and individuals with Sotos syndrome; increase public awareness and education about the disorder; and provide opportunites for professionals working with affected individuals to collect and share data for research. The SSSA has members across the United States, Canada and Great Britain, and sponsors an annual conference.
Review Date: Friday, August 13, 2010
The Ehlers-Danlos National Foundation's focus is to provide emotional support to patients and their families, to educate health professionals and researchers about Ehlers-Danlos syndrome (EDS), and to teach patients how to deal with their individual problems. EDNF distributes reprints of articles on EDS and related issues. Call for a newsletter and a telephone network. The Foundation sponsors annual learning conferences.
Review Date: Tuesday, August 26, 2008
The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease. Our goals are to organize, marshal the forces of the scientific community, raise LAM from obscurity, and conquer it in a decade. The Foundation holds an annual research conference in Cincinnati for physicians, scientists and patients. Research pilot projects are funded at $10,000-$25,000 and three-year fellowships are funded from $35,000-$50,000 each year.
Review Date: Thursday, November 04, 2010
The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on six continents.
Review Date: Tuesday, April 12, 2011
The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.
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Just after my last commit, having managed to get gnonlin to work, I was really looking forward to hacking on PiTiVi... but we had more important priorities at Fluendo. Eventually, after doing Flumotion testing and implementing a looper component for Flumotion (something not many streaming servers out there have apparently), I was finally able yesterday to get back to PiTiVi hacking... and it works :)
As i expected, a lot of the code in PiTiVi involved gst-0.8 hacks. So after scraping a lot away in the Discoverer and the Playground, importing files is now fully functionnal (with thumbnails) and way faster than with 0.8
I also re-enabled the SimpleTimelineView and adjusted the Timeline interface for the new gnonlin elements. There's still more code scraping to do, thanks to the higher-level GnlFileSource, and testing for seeking, querying, etc...
Gstreamer Media TestSuite
I hacked a bit on the avi demuxer and gst-ffmpeg in order to have segment seeking working... but after testing it on some files, I realized some fixes made other files break. Therefore, time to make a media testsuite for GStreamer that will enable developpers to figure out what goes wrong with the various files, the common problems, etc...
We have some 15gb of files (over 1700!) at Fluendo (from MPlayer, Xine testsuite, some files Ronald collected, ...) which should be enough to start with.
I've started a wikipage with the ideas here. Everybody is welcome to add their ideas and comments. I've already started implementing parts of it and I will carry on this weekend.
Emma's been working at the French primary school for a week, doing a replacement, and she really enjoyed it. She'll be doing some more replacement next week. There might be a position opening in January... touch wood.
Been going out a lot recently... need to slow down a bit, it's starting to get a bit too expensive. But it's hard to say no to going out :)
Next wednesday, Emma and I are going to see Emir Kusturica & the No Smoking Band, really looking forward to it (Rindji Dindji Bubamara...).


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Save and Track Your Favourite Properties
West Kelowna is situated on the West side of Okanagan Lake with a population of about 30,890. When choosing to purchase West Kelowna real estate in this family friendly community, expect to be surrounded by some of the best scenery in British Columbia including picturesque mountain views, orchards and of course, unparalleled views of Okanagan Lake. As a new home owner on the Westside, you're surrounded by rich history and culture, fabulous restaurants, shopping and plenty of outdoor opportunities like hiking and swimming.
When you choose to purchase a house in West Kelowna, there are plenty of desirable neighbourhoods to choose from including Glenrosa, Rose Valley, Westbank, Casa Loma, Lakeview Heights, and Shannon Lake. There is a wide range of prices for homes in West Kelowna and includes some areas with exquisite luxury real estate.
Glenrosa is a family friendly community situated directly West from historic Westbank. Schools, excellent shopping and delicious restaurants are located just minutes from your new home. When you're wanting to settle down in a comfortable place to call home, Glenrosa is a desirable neighbourhood when purchasing the house of your dreams.
Rose Valley allows residents to live in a rural-like setting while still remaining in close proximity to grocery stores, restaurants, and gas stations. Residents of Rose Valley are provided with a safe and quiet living environment and is an ideal place to raise a family. Rose Valley Regional Park is located in the neighbourhood allowing plenty of hiking opportunities for outdoor enthusiasts. For potential home buyers seeking a peaceful place to purchase, Rose Valley is an exceptional choice.
Westbank is located in the heart of West Kelowna, providing residents with a rich heritage and outstanding amenities for a fulfilling lifestyle. Purchasing a home in Westbank allows residents to enjoy satisfying restaurants, grocery shopping, markets, apparel shopping and more all within immediate proximity from your new house.
Casa Loma is luxury living at its finest. When purchasing a home in this delightful neighbourhood, you will enjoy exceptional scenery and are within walking distance to Okanagan Lake. Casa Loma provides residents with the ability to breathe in the fresh air and enjoy the relaxed feel of lakeside living.
Lakeview Heights provides relaxed rural living for its residents. Choosing to invest in the gorgeous neighbourhood of Lakeview Heights provides home-owners with extravagant views of Lake Okanagan while remaining close to schools, orchards, vineyards, stables and more. Purchasing a home in Lakeview Heights provides exceptional country living that can be enjoyed by the whole family. There are a number of West Kelowna luxury homes in this highly desirable area.
Shannon Lake is an excellent place to buy a home, especially if you enjoy a great game of golf. Situated near Shannon Lake Golf Course, residents of Shannon Lake won't have to travel far when wanting to practice their swing. Shannon Lake also provides families with excellent schools and of course, Shannon Lake itself providing plenty of nature and activities for residents choosing to purchase within the neighbourhood.
Purchasing West Kelowna real estate is an excellent decision in taking an exciting first step towards living a rewarding lifestyle for you and your family. Start building your future and invest in the home you deserve by contacting a trustworthy and knowledgeable West Kelowna real estate agent from Century 21.


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Prostate cancerOverview
Prostate cancer is the most common cancer in men in the UK. It usually develops slowly, so there may be no signs for many years.
Prostate cancer is a type of cancer that affects the prostate, a small gland found near a man's bladder.
There may be no symptoms of prostate cancer at first. Later symptoms include needing to pee more than usual or finding it hard to empty your bladder.
It's not clear what causes prostate cancer. It's more common in men over 50 and men with an African-Caribbean or African family background.
Prostate cancer does not always need to be treated straight away. The main treatments include surgery to remove the prostate and radiotherapy.
Page last reviewed: 12/06/2018
Next review due: 12/06/2021


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2643 South Harper Road, Corinth, Mississippi 38834
Total inspections: 10
Last inspection: Nov. 25, 2008
Classification: Sewerage Systems
This facility's fine amount includes at least one case involving multiple facilities, each of which has the total fine amount applied to it.
Last enforcement: Aug. 7, 2008
Formal enforcement: 2
Informal enforcement: 13
This facility has been out of regulatory compliance 8 of the past 12 quarters.
View detailed information from the Environmental Protection Agency. Note: There are no mandated limits for power plant discharges into waterways for many common chemicals such as arsenic, lead and mercury. However some facilities are monitored for these pollutants by state regulators and report the findings to the E.P.A.


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Well this is surprising. After 10 years at the helm, Chris Anderson is leaving WIRED Magazine to focus on his startup, 3D Robotics.
Here's the official note sent out by Conde Nast CEO Chuck Townsend:
We've reached out for an official comment, but the likely move would be for Executive Editor Thomas Goetz to take the reigns while Conde Nast does a wide search for the next Fearless Leader. That said, Goetz has been extremely silent on twitter since the news broke.
We'll keep you posted.
UPDATE: not leaving just yet
We reached out to Chris, and it turns out he's not leaving sooooo imminently:
We'll let you know more as we hear it.


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Glass Half Full For Fonterra Fund
The debut of dairy giant Fonterra 500 million New Zealand dollar (US$412 million) Shareholders Fund will loom large this week with the institutional bookbuild underway and pricing expected to be set Tuesday.
Fonterra, the world's largest dairy exporter, is establishing a fund that will give outside investors the opportunity to buy non-voting units in the cooperative. Fonterra is owned by a club of about 10,500 farmer shareholders. Investors will gain access to a dividend as well as the company's potential earnings growth, which is closely tied to demand for dairy from China.


text: Once the light grey was dry, which didn't take long, I sanded the edges with 80 grit sand paper. I like a really rough sand paper for this step, because it leaves great scratches in the paint. I also like to do this step by hand. It's harder on the biceps, but I have more control and it looks more natural than an electric palm sander. Instead of rubbing the sand paper back and forth, rub it across the surface in one long stroke, while applying hard pressure to the sandpaper.


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Before Ariel Winter revealed to fans that she had breast reduction surgery, she knew some people may not understand.
The actress had accomplished great success over the years thanks to her role in "Modern Family." And yes, she is a growing 17-year-old.
But during her candid interview with Glamour.com, the Hollywood star admitted that she couldn't ignore the constant chatter in the media about her cleavage.
U.S. & World
"That's pretty much all I was known for and that upset me. It made me feel really uncomfortable, because as women in the industry, we are totally oversexualized and treated like objects," she shared. "Every article that has to do with me on a red carpet had to do with 'Ariel Winter's Crazy Cleavage!' or 'Ariel Winter Shows Huge Boobs at an Event!'"
PHOTOS: Craziest moments from "Modern Family"
She added, "That's all people would recognize me by–not, 'Oh, she does great work on 'Modern Family.'"
While Winter thought long and hard about the surgery including the pros and cons, she received an extra push while trying on swimsuits.
"I went to a swimsuit store with my cousin a few months ago and couldn't find a bathing suit that fit me. I really felt bad about myself. I didn't feel happy," she confessed. "I just kept saying, 'What am I going to wear? There's nothing for me to wear at the beach, at the pool.' I can't go to a party with my friends and wear the same thing as them. I have to be completely covered up otherwise I'll look a certain way that I'm not intending to look."
She ultimately decided to reduce the size of her breasts from a 32F to a 34D and underwent surgery in early June. It's a decision that has already proven to have positive effects.
"It's amazing to finally feel right," she shared. "This is how I was supposed to be."


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Letterhead reads:
Christ reached out to us in love so we could reach out to him and live.
For God so loved the world, that he gave his only begotten Son. – John 3:16
Stargazer Lilies and pastel colors bring a freshness and light to the cover of this bulletin. The bulletin and its matching pieces will help your congregation celebrate the risen Christ on Easter. It is blank inside and back cover onto which the order of the service, song lyrics and other important information can be copied. The letterhead is 8 ½" x 11".
Find the matching pieces to the bulletin in the Related Products Section below.
Did you know . . .
One of the most famous Biblical references is in the Sermon on the Mount, when Christ told his listeners: "Consider the lilies of the field, how they grow: they toil not, neither do they spin; and yet...Solomon in all his glory was not arrayed like one of these."
Often called the "white-robed apostles of hope," lilies were found growing in the Garden of Gethsemane after Christ's agony. Tradition has it that the beautiful white lilies sprung up where drops of Christ's sweat fell to the ground in his final hours of sorrow and deep distress. Churches continue this tradition at Easter time by banking their altars and surrounding their crosses with masses of Easter Lilies, to commemorate the resurrection of Jesus Christ and hope of life everlasting.
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