system
Given the following post, respond as if you're commenting on Reddit:
human
Can an educated patient with a rare disease present and publish self researched interventions?

I am not a scientist or healthcare professional. I do have a very rare genetic disease with no therapy or cure. I am university educated ( arts degrees) and self researched and applied lifestyle interventions that were unexpectedly successful. As I track all data regarding my interventions, my medical team and I, as first author, published an article this Spring.

As I am acting outside the standard of care for someone with my disease, albeit with proven success, my medical team has now backed away from further research collaboration for ethical and liability reasons. As an informed patient, I am not bound by the same ethical or professional constraints of my medical team. Over the past year, I have progressed the interventions, still outside the standard of care, and I would now like to independently present the results as an N=1 study at a Conference in June. 

I am uncertain as to the appropriateness of this effort but feel very strongly that the research would be immensely valuable to other patients suffering with the same disease. Currently, there is no cure or therapy for this progressive and debilitating disease and my research might offer some hope for others. 

Any academic advice on strategies for navigating through the publication process would be very much appreciated.
gpt
Have you, as first author, and your medical team, as co-authors already published a case report in a peer-reviewed journal? Your post appears to indicate that you did so last spring.

If you've already get a paper out, even if it's a case report (that n = 1), then a conference is easier. Read up on the submission guidelines/requirements and prepare an abstract according to the req.