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Nurses' Interpretation of Feelings Toward Outings Among Patients With Amyotrophic Lateral Sclerosis on Home Mechanical Ventilation and Support Provided to Patients

This study aimed to elucidate nurses’ interpretation of the feelings toward outings among patients with amyotrophic lateral sclerosis on home mechanical ventilation (ALS/HMV patients), as well as the support provided by nurses enabling these patients to go out. Semi-structured interviews were conducted with 5 nurses who had helped ALS/HMV patients make their first outing since starting HMV, and results were analyzed inductively. As interpreted by the nurses, there were 9 categories of feelings toward outings among ALS/HMV patients who had no prior experience of outings, such as “desire to go out”, “concerns about postural maintenance and physical pain”, and “concerns about mechanical troubles”. There were 7 categories of support provided by nurses to enable ALS/HMV patients to go out, such as “predicting and preparing for danger”, “persuading ALS/HMV patients to include outings in their lives”, and “finding the best timing for outings”. These results indicate that nurses grasped ALS/HMV patients’ positive and negative feelings toward outings, and supported them to expand their lives by ensuring their safety, motivating them, alleviating their concerns, and enhancing their independence.