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Fatigue in Systemic Lupus Erythematosus: Impact on Occupational Participation and Reported Management Strategies

Purpose: Fatigue is reported by approximately 81 per cent of people with systemic lupus erythematosus, with subsequent lower quality of life. Although standardized measures have been used to examine the prevalence of fatigue, qualitative research is needed to explore how people describe and cope with fatigue in their daily lives. Method: Twelve people completed the Fatigue Impact Scale and were then interviewed using semi-structured interviews. Data were analysed using descriptive statistics and qualitative descriptive guidelines. Findings: Participants were aged 22–62 years with a mean of 14.3 years (SD 10) since diagnosis. Individual interviews identified an unpredictable pattern of fatigue for the study participants and an impact on participation in occupations of productivity and leisure, which resulted in loss of important life roles. Fatigue management strategies were self-developed, with participants reporting no input from health professionals. Conclusion: The unpredictable nature of fatigue makes it difficult to manage. It appears that development of both cognitive and practical strategies is required to reduce the impact of fatigue on valued occupations. Early fatigue management interventions could be beneficial for people with systemic lupus erythematosus in order to manage this symptom. However, a larger study is required to confirm the transferability of these findings.