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Development and validation of the Japanese version of the Quality of Life Assessment of Spina Bifida in Teenagers (QUALAS‐T‐J)

Spina bifida (SB) is the second‐most common birth defect in Japan. In recent years, health‐related quality of life measurements have been used to assess the psychosocial status of children with SB. The Quality of Life Assessment of Spina Bifida in Teenagers (QUALAS‐T) is a self‐reported questionnaire for subjects aged 13–17 years with SB. It focuses particularly on factors related to independence, bladder and bowel. The purpose of this study was to develop and validate a Japanese version of QUALAS‐T (QUALAS‐T‐J).