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Knowing Well, Being Well: well-being born of understanding: Addressing the Caregiving Crisis: The Roles for Employers and Policy Makers

There’s a good chance that a friend, colleague, or loved one in your social or professional circle is providing care for another adult in addition to their day-to-day responsibilities. Maybe you are. Shifting demographic trends are almost guaranteed to increase these odds, adding fuel to the fire of what many have deemed a caregiving crisis. The challenges family caregivers face, including sacrifices they make in their own emotional, physical, financial, social, and career well-being have historically been overlooked by employers, policymakers, and society. And as Steven Cohen and colleagues underscore later in this issue, those challenges were exacerbated by the COVID19 pandemic. A recent cross-sectional survey of approximately 575 unpaid caregivers indicates that, compared to non-caregivers in the same geographic region, family caregivers experienced higher anxiety, depression, fatigue, sleep disturbance, increased food insecurity, increased financial worries, lower social participation, and lower financial well-being. There is wide variability in the level and types of support provided by states and employers. Courtney Roman and colleagues highlight some notable positive illustrations of steps New York and Texas have taken to support caregivers. All too often, however, the help available is insufficient and difficult to navigate. The poignant and compelling personal story from Rebekah Azaylia Alexander in this issue—and recent commentaries from AARP—underscore how woefully inadequate long-term care options currently are: