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Parent Interview Findings Regarding the Impact of Cystic Fibrosis on Families

An assessment of the impact of cystic fibrosis (CF) was conducted with 43 families. Semistructured parental interviews on family functioning, parent-child interactions, sibling and peer relationships, and medical issues were coded by two independent raters to identify “major,” “minor”, or “no” problems. Of the 62 questions presented, only 8 were viewed by more than 10% of parents as “major problems.” The impact of hospitalization upon parents was the most prevalent “major problem.” Parental communication was a “major problem” for 28% of the mothers but for only one father. Ten to 15% of the parents described “major problems” related to: their marital relationship, accepting the illness, feeling they should do more for their child with CF, feeling their other children had been deprived or complained about inattention, or their relationship with the ill child's grandparents. While most families were generally coping successfully, health care professionals should be alert to specific areas of potential problems.