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#PGADFacts: Results from a 12-month knowledge translation campaign on persistent genital arousal disorder/genito-pelvic dysesthesia (PGAD/GPD)

Abstract:Persistent genital arousal disorder/genito-pelvic dysesthesia (PGAD/GPD) is a distressing condition characterized by unwanted, persistent sensations of genital arousal that occur in the absence of corresponding subjective sexual arousal or desire. PGAD/GPD is associated with significant negative impacts on psychosocial well-being and daily functioning; however, PGAD/GPD remains largely unknown by both healthcare providers and the general public. This lack of awareness is a barrier to receiving healthcare and may lead to greater stigma associated with the condition. This project sought to develop and evaluate an empirically informed 12-month social media-based knowledge translation campaign on PGAD/GPD, titled #PGADFacts. One research-supported fact about PGAD/GPD was posted weekly to three social media platforms from November 2019 to December 2020. Social media analytics indicated that the campaign had significant reach (111,587 total views across platforms). An anonymous online feedback survey indicated that respondents who had seen the campaign reported greater knowledge about PGAD/GPD as compared to those who had not seen it. Responses also indicated high acceptance and appropriateness. Adoption rates (e.g., sharing information learned on or off social media), however, were low with negative emotions (e.g., embarrassment) being a common barrier. Results indicated that the #PGADFacts campaign was successful, however, additional strategies (e.g., paid ads, partnerships with influencers) may increase adoption and reach a broader audience. Greater awareness of PGAD/GPD is needed to increase recognition of the condition and access to care as well as to reduce associated stigma.