{'fraction_non_alphanumeric': 0.02349206349206349, 'fraction_numerical': 0.0, 'mean_word_length': 4.794117647058823, 'pattern_counts': {'":': 0, '<': 0, '<?xml version=': 0, '>': 0, 'https://': 0, 'lorem ipsum': 0, 'www.': 0, 'xml': 0}, 'pii_count': 0, 'substrings_counts': 0, 'word_list_counts': {'cursed_substrings.json': 0, 'profanity_word_list.json': 0, 'sexual_word_list.json': 0, 'zh_pornsignals.json': 0}}
Ethical Engagement of Communities, Institutions, and Providers in Research: Lessons From the Community

This is the story of the Bronx Research Review Board, or as I affectionately called it, the CRAB. It is told from my perspective with honor and credit duly given to the men and women who helped to bring the dream of a community research board to fruition. This is written to provide guidance to those who plan to create community research review boards in neighborhoods, cities, and communities where there is a need to take action to control what, how, when, and for the benefit of who, research is conducted. We wanted more than just an alternative to the institutional review board (IRB) . . . we wanted to create a platform for the education of community residents, staff, and researchers where all could engage in a “problem-posing” approach to research. By creating this critical pedagogy, we wanted to link knowledge to action so that we would all actively work to change our community—by street, neighborhood, and beyond. What follows is the story of how we tried this novel approach to community development and education, where participants are not passive recipients of knowledge but become true and empowered partners in a process of change. This commentary is offered as an alternate, more personal account of the Bronx Community Research Review Board. The CRAB became my mission, my passion, and ultimately my saving grace because it created a space where it was possible to imagine the possibilities for something much better for my most beloved community.