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Thinking around Humility as a Stance for Participatory Design

1 ACKNOWLEDGING POWER IN RESEARCH RELATIONSHIPS Participatory Design has a power problem [3]. Fundamentally, this is the case as we as designers and researchers do not share the intricacies of the life worlds of people we have identified as potential participants. This is amplified in cases where we might additionally not share modes of how we make sense of the world, e.g., when working with disabled participants, particularly the Deaf, blind and neurodivergent communities1 [5]. I recently delineated how technological design for autistic children is in many cases mainly driven by researchers goals and approaches — often with a focus on parents’ and teachers’ or carers’ perspectives [10]. In this context, autistic people are often deemed ‘incapable’ of being involved meaningfully