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The logistical landscape of lay dementia care

In 2018, more than 16 million unpaid caregivers (CG) provided care for people with dementia (PWD), care that is associated with increased caregiver depression, poor health and caregiver burden (Alzheimer’s Association, 2019). This observational, cross‐sectional study examined CGs’ relationships to PWDs, how CGs allot their caregiving time, how caregiving affects their work, and CGs’ mental health. We hypothesized that CGs would be primarily spouses or children of the PWD, that they would provide the majority of unpaid care without an extensive support system and with a significant amount of time spent on caregiving, that would disrupt their employment, and be accompanied by relatively high levels of mental health symptoms.