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Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two German studies.

AIM
To understand participants' actual motivations to enroll in cohort studies with biobanks.


METHODS
Participants of two such studies currently ongoing in Germany were invited to fill in a questionnaire about their decision to enroll.


RESULTS
From the 623 questionnaires completed, contributing to scientific knowledge appeared as a main motive for enrollment, followed by learning about personal health status and receiving personal medical advice.


CONCLUSION
Motivating participation as a way to contribute to the common good rather than as a way to obtain personal benefits appears to be particularly appropriate to ensure participants' long-term commitment and should therefore be further investigated in this setting.