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Toward an Empirical User Taxonomy for Personal Health Records Systems

Personal Health Records systems are envisioned as a user-centric and user-controlled means for individuals to track health status over a lifetime, consistent with the Institute of Medicine’s recommendations for health care improvement in the U.S. These systems represent a new model of information system design in that they are voluntary, longitudinal over long periods, may have varying degrees of affiliation with institution-based records systems, and must be designed to serve all individuals, regardless of the individual’s health status. Deriving and documenting user requirements is essential to systems development. Because user-centered designs are specifically intended to serve the end user’s needs, unlike system designs in which the needs of an organization are served, a priori understanding of the users as fully as possible is even more essential. Using a multi-method approach, this study seeks to systematically classify potential PHR users and describe their attributes.