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Fears and Concerns Expressed by Families in the Donation Discussion

Progress in Transplantation, Vol 10, No. 1, March 2000 sign donor cards, concluded that the most common concerns that the general public has about donation are being declared dead prematurely and the fear of mutilation. Additionally, he found a growing concern about the fairness of the distribution system. A 1993 Gallup Poll of the general public also found that respondents objected to donation out of fear of mutilation and because they were worried about organs being removed before the donor is really dead. Another survey of the general public done by Sanner in Sweden found that respondents who were negative toward or undecided about donation were uncomfortable with the body being cut up (78%), with body parts being taken away (68%), and with the fear of disrespect (54%). Our own research on hospital personnel asked to think about organs or tissues they were least likely to want to donate and the reasons for those choices indicated that needing eyes or corneas and hearts in the afterlife inhibited their desire to make those specific donations. That same research also indicated that the fear of mutilation and/or dismemberment inhibits skin, bone, eye or cornea, and heart donation and that the belief that there is a link between the soul (or personhood) and the heart inhibits the desire to donate that organ. A similar link was found to inhibit the desire to donate eyes or corneas, while the fear of pain inhibits bone donation. None of the above research, however, attempted to investigate what families actually say about their Fears and concerns expressed by families in the donation discussion