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Identifying and Counting Individuals with Differences of Sex Development Conditions in Population Health Research.

PURPOSE
The study purpose was to examine opinions about a single-item assessment of differences of sex development (DSD) to be used in research.


METHODS
An online survey was conducted with a convenience sample of 111 adults who self-identified as intersex or having a DSD diagnosis. Participants read and provided feedback on the proposed single-item assessment.


RESULTS
The item received general endorsement to represent a population that is often not identified in research; however, participants provided suggestions for improvement.


CONCLUSION
This study represents a first step toward identifying people with DSD conditions in surveys to better understand their needs.