Monday, March 30, 2009







To Be Continued


  1. Luckily(?) my introduction to daily injections came from fertility issues and then the spine got injected for an epidermal at birthing, so my introduction to the progresses had a good and positive outcome - my boy/girl twins. The LP did not bother me at all. Nobody warned before what could happen and maybe that helped. I am PP, Rebif made me feel icky, Novantrone made me vomit and I believe sent me earlier into menopause with hot flashes a little earlier. Nothing worked (I am PP), but if anything comes up for us, I hope I can feel bad for hopefully a good outcome.


  2. I went through all three you have listed. MRI, no big deal. I just thought of Spock being jettisoned into space and then to a new world. Spinal Tap, I got the headache. Now that was unpleasant to put it mildly. And finally, Rebif, no side effects at all but no effectiveness. Doctor said I could stop because I am PP and it was just like shooting water. Aarcyn

  3. The MRI usually has the same affect on me, other then the fact that about 1/2 way through I inevitably have to use the little girls room~and spend the next 30-45 minutes fidgeting. As for the spinal tap, the first one I had did cause the dreaded headache and boy was I sick. The second one I had (cause they messed up the first) I was armed with a bunch of help from others such as lying still longer, drinking caffeine in large amounts, etc. and low and behold no headache.

    As for the so called ABCR drugs, well I have not found one yet that didn't send my body off the deep end. If only I would have the "flu" like symptoms. The last drug I tried sent me to the hospital and darned near killed me. I am in the rarity in this I am told....

  4. I can relate partially to your experiences and that's why your commentary always elicits a giggle or two from me. But my familiarity with the spinal tap has been related to birthing. No familiarity with any of the disease modifying injectables since I am PP. So for it's worth, I've been spared from some of the common treat(ments) and annoyances. (aka centenniel)

  5. MRI- I am claustrophobic, so I get valium before an MRI. This makes me a very happy boy, and so I look forward to MRI's now.

    Spinal Tap- My first two were not painful that day, but resulted in bad headaches the day after. Very debilitating. I learned the tricks since then. Then on my most recent spinal tap the guy was a rookie. He poked and poked and every time came up dry. Each time he poked it sent an electrical shock up my spine. I swore that day that I'd never get another (we'll see, woman say that during each childbirth, and often come back for more).

    Rebif- no, but I did do Copaxone for 6 months. At the time there was a PPMS trial (I am PPMS) for Copaxone, and so I thought it was worth a try. No flue like symptoms, but it is an everyday injection, and hurts like a bee sting. Everyone at MSworld said it would get better with time. It never did. One day the trial results came back negative. I said to myself, "well my personal trial is not over yet, so I'm still going to use it." That night I got ready to inject and could not pull the trigger. That was my last day on Copaxone, and I don't miss it.

    Your list of acquired vocabulary words is quite funny. Until I read your post I had not remembered (not to be confused with mis-remembered) that all these terms are recent additions to my vocab too.

    Good stuff.


  6. Made me add Spinal Tap (the movie) to my Netflix.