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Patient beliefs and behaviors concerning clinical trials for blood cancers: Outcomes from live-online education.

226 Background: Finding a clinical trial can be overwhelming for patients and caregivers, generating more questions than answers. The Leukemia & Lymphoma Society (LLS) and PlatformQ Health produced a live-online education activity for patients and caregivers to elevate knowledge of clinical trials and competency discussing the topic with their healthcare providers (HCPs). Methods: A 1-hour web-based education launched on April 18, 2018 and made available on-demand for 18 months on www.cancercoachlive.com and www.LLS.org . Topics included the role and benefits of clinical trials for blood cancers, when it is a viable option, and LLS resources. The program featured a MD, LLS clinical trial navigator, patient and caregiver as speakers, and patient-friendly graphics, videos, slides, interactive polling, and live Q&A. Knowledge questions were administered at 3 time points (pre-, immediate post-, 2 mos. post). Responses from these questions, live polls and Q&A were analyzed to determine engagement, lessons learned, and continuing gaps. McNemar test compared matched pair responses (pre/post & pre/2 mos.). Effect size was computed using Cohen’s d. Results: As of May 2019, 1,040 learners participated in the education. At 2 mos. follow-up, 63% reported feeling more in control of their health care decisions, 47% stated they were more willing to participate in a clinical trial, 42% reported the education had a positive impact on communication with their HCPs about clinical trials, and 31% stated their health-related behavior had improved (n = 107, 103, 111, 103). 65 qualitative written entries were shared by learners as examples of feeling more “in control” of their health care decisions. Data from 4 knowledge questions all showed improvements over baseline at both posttest points, with an average pre to post effect size of d = 0.349. Conclusions: Education on clinical trials for patients and caregivers affected by blood cancers, including breaking down barriers of misinformation and fear, can lead to changes in understanding of the benefits and trustworthiness of clinical trials. Interactive live-online education can be a strong tool in reaching patients and caregivers who could benefit from clinical trials.