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GP34 Quality of life in cardiopathic children and adolescents

Introduction The concept of quality of life is broad and multidimensional. The temporal dimension of its evaluation is very important because the quality of life is not a stable and defined condition, but changes over time. Heart disease is classified among the most severe chronic disabilities in children and as more and more children and adolescents with severe cardiac defects survive into adulthood, the quality of their life becomes increasingly important. The quality of life in cardiopaths may vary depending on various factors, ranging from the intake of a drug therapy, to the possible prohibition of performing sports, to the results of surgery as scars, a possible source of shame. Parents of children with heart disease may experience higher stress levels than normal parental function and may feel very stressed about issues related to accountability and social integration. Methods This research aims to investigate the quality of life in pediatric age both in terms of purely cardiological aspects (CardioPeds) and of general quality of life (PedsQL), also evaluating, starting from 12 years, the possible presence of depressive symptoms (PHQ-9) or anxious symptoms (GAD-7). These tests were administered both to the children and the parents, with the addition for these last ones of the compilation of the PSI, to investigate the parental distress. The research allowed to divide the sample of 500 patients into 6 predominant pathologies, in order to compare the quality of life of children in different diseases and to understand if a specific pathology is associated or not with a lower quality of life. Results Through an adequate statistical analysis it was found that the quality of life perceived by the subjects included in the study is significantly better than that perceived by the parents about the same children and adolescents. Conclusions This study was one of the first to investigate the quality of life in congenital and/or acquired pediatric heart disease. However, the results obtained require further studies, in order to deepen what has emerged.