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Transitional and health issues of adults with neural tube defects.

PURPOSE
To examine past, current, and future developmental and health care issues and concerns of Caucasian, African American, and Mexican American adults, aged 20 to 75 years, with neural tube defects (NTDs).


DESIGN
Naturalistic inquiry.


METHODS
A semi-structured interview was used to obtain information from 16 Caucasian, 11 African American, and 15 Mexican American adults.


FINDINGS
Three themes identified in the analysis were uncertainty about the future, access to health care and information, and advocacy.


CONCLUSIONS
Documenting the adult trajectories of chronic childhood conditions, such as NTDs, is important. Although much is known about such conditions in childhood, additional knowledge about health and developmental concerns across the lifespan enhances provision of appropriate anticipatory guidance and health care.