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Translating disability-related research into evidence-based advocacy: the role of people with disabilities

Purpose. The purpose of this article is to make a case for the inclusion of people with disabilities in disability research and in important decisions relating to the utilisation of the research results. Methods. This is a review article, involving extensive review of both international and local published materials, commissioned research, government policy and related official documents, as well as the use of anecdotal evidence based on the author's own previous research work, experience, knowledge and observations. Central argument. For disability research to influence positive changes in their lives, people with disabilities ought to play a central role at all stages of the research process, and in decisions made regarding the dissemination and use of the research results. Conclusions. If properly utilised, research can have positive influence in the lives of people with disabilities. However, this can only be achieved if people with disabilities participate in determining the scope, depth and the conduct of disability research, and the utilisation of the research results. In this way, people with disabilities, in collaboration with their non-disabled counterparts, are likely to ensure that research results have a bearing on the policies and programmes designed for them.