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Implementation of patient‐reported outcome measures in a heart transplant recipient registry: First step toward a patient‐centered approach

Heart transplantation (HTX) is a well‐established treatment for suitable patients with end‐stage heart failure, intended to prolong their survival and improve their health‐related quality of life (HR‐QoL). No international consensus exists, however, about the preferred patient‐reported outcomes (PROs) and their measures (PROMs) for heart transplant recipients. The purpose of this study, the first step in a mixed‐method investigation, was to review the PROMs developed and used in this population to identify the instruments for measuring HR‐QoL and adherence to immunosuppressive medications most appropriate for heart transplant patients.