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Do women with breast cancer report treatment after-effects to healthcare professionals, and who provides the intervention?

There is a gap between the need for and referral to rehabilitation in women with breast cancer who have ongoing treatment-related problems. The objectives of this study were to determine whether nonreporting of health issues is a contributing factor towards the referral gap and to map the range of professionals who offer intervention. A postal questionnaire based on the International Classification of Functioning Disability and Health core set for breast cancer was sent to healthcare professionals working in all centres of excellence for the treatment of breast cancer in Ireland. Thirty-one per cent responded (n=96). Changes in ‘Body Functions’ were reported widely and those in ‘Body Structures’ were limited, and the ‘Activities and Participation’ section had the most unreported categories. Reporting of categories in the ‘Environmental’ section was not widespread. Intervention is provided for most categories of altered function and advice for difficulties with tasks/participation is limited. Psychologists and social workers are clearly identified with environmental factors. This study identified the issues that women report and described the professional response. Lack of reporting of issues may play a role in symptom perseverance. The International Classification of Functioning Disability and Health list of categories could be used to facilitate reporting, enhance communication and encourage self-management.