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Longitudinal assessment of health‐related quality of life in an observational cohort of patients with cystic fibrosis

Patient‐reported outcomes (PROs) are increasingly used to evaluate the efficacy of new treatments and the progression of chronic diseases. The Cystic Fibrosis Questionnaire‐Revised (CFQ‐R) is a disease‐specific, PRO measure of health‐related quality of life (HRQOL). We evaluated associations between changes in health status over time and HRQOL in a national CF database.