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The National Electronic Library for Health Controlled Clinical Trials website: a website about clinical trials for patients and the public

The rigorous evaluation of new health-care interventions requires potential users of these to participate in trials to assess their effectiveness. Three significant areas of concern relate to this: the ways in which people are recruited to participate in randomized-controlled trials (RCTs); the low acceptance rates among people invited to participate, and the experiences of participants. Inadequate information provision is an persistent feature of these concerns. For example, some people who are invited to participate in RCTs do not think they have enough information or understanding to make a decision to accept. People who agree to participate in trials may nonetheless struggle to make sense of their participation and may identify questions during the course of the trial. Some of these problems could be overcome through development of an information resource about on-going clinical trials, designed for current and potential participants including the general public. This could serve as a source of additional, semiindependent information. In 2003, the National Electronic Library for Health (NeLH) addressed this issue, and commissioned the development of a website for patients and the public in the UK, about clinical trials. This review describes the pilot website that was launched in November 2004 (http:// www.nelh.nhs.uk/clinicaltrials).