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CARE V Series: Integrating Patient Viewpoints Into Health Care Practice and Research

Data now demonstrate that patients and providers view outcomes of care differently.1 Patients tend to view outcomes in a broad and socially relevant context,2–4 whereas providers tend to view outcomes from a biomedical perspective. There is a growing recognition of patients as active members of the health care team and, in some countries, as integral members of clinical research study groups. This recognition has led to a shift in priorities in clinical practice and research.5

In April 2008, the CARE V Conference was held in Oslo, Norway, to foster international collaboration and provide a forum for key stakeholders, patients, and researchers in the field of rheumatology who are interested in advancing nonpharmacologic care. This 3-day conference built on the work of pioneers in arthritis research and care—on the collaborations that began in 2002 at the first CARE conference.6 In 2008, the fifth conference addressed key areas in nonpharmacologic arthritis care and included the identification of patient-oriented core outcomes, measurement challenges, models of care delivery, and effectiveness of interventions for arthritis. In addition, the conference included discussions that focused on ethical issues and strategies to integrate patient perspectives into care. In this issue, PTJ publishes the first in a series of papers that were presented at CARE V. In 2010, the series will explore ethical issues specific to the implementation of qualitative research and international perspectives on patient roles in health care, research, and professional education. …