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Delayed deinstitutionalisation in post-socialism

ABSTRACT A qualitative, mixed and partly covert research of the locally specific characteristics of deinstitutionalisation was carried out in Slovenia in 2015. The research showed that more than 20,000 adults with different disabilities still live in different long stay institutions and that there are not sufficient NGOs that would support community-based living. Deinstitutionalisation is viewed as a change for the worse and is therefore reduced to minor transformations of the existent long stay institutions, described in the study. The state worries that deinstitutionalisation would demand a more costly welfare system and the relatives of disabled people worry that deinstitutionalisation will increase privatisation of welfare and that the burden of care will fall on them, as is the case in many other post-socialist countries. Within the locally specific context of post-socialism, deinstitutionalisation needs to be a top-down social policy decision that will influence professional education in different areas of care work and will provide a re-training of the existing staff. The experiences of people who survived long stay institutions or still live in them need to become public knowledge, as learning from the lived experience might make the process of deinstitutionalisation more vibrant, efficient and useful for everyone. The study captured some of their experiences.