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People with Spinal Cord Injury in Portugal

EPIDEMIOLOGY OF SPINAL CORD INJURY IN PORTUGAL In Portugal, there are no national data about spinal cord injury (SCI) or about most other health conditions that may cause disabilities. Since the last census (2011), there are general questions about “activity of daily living” (ADL) disabilities related to vision, hearing, mobility, memory/concentration, hygiene and personal arrangement, and to be understood and to understand others. Eighteen percent of the population aged 5 or older mentioned having difficulty performing 1 of these 6 activities; in the population aged 65 or older, this number exceeded 50%. Portugal has no central registry of SCI cases nor has there been a national epidemiologic study on SCI. In 1998, Martins et al. (1998) claimed that the epidemiology of SCI in Portugal’s central region was not representative of the country overall SCI population. They identified 398 cases, with a predominance of males (3.4–1 ratio) and a bimodal age distribution in 2 peaks (15–24 and 55–74 years). Themajor causes of the injurywere traffic accidents (57.3%) and falls (37.4%). The annual incidence rate was estimated at 57.8 per million inhabitants, and the annual survival rate was 25.4 per million inhabitants. We are not aware of new publications regarding the subject. There are some single-center studies on their own SCI population, but they are not representative. One study evaluated 178 paraplegic patients followed for neurogenic sexual dysfunction and found a predominance of males (87.1%) aged between18 and 81 years; traumatic etiologywas the main cause of SCI (79.2%), with a similar number of complete (n = 90) and incomplete lesions (n = 88). Another study analyzed demographic data of patients with nontraumatic SCI admitted for rehabilitation between 2007 and 2009, and 69 patients were included; there was a small predominance of males (55.1%), with a mean age of 58 years; 79.9% were paraplegic and 89.9% had incomplete lesions. One small retrospective study