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Individual Privacy Considerations for Computerized Health Information Systems

Major legal issues in the establishment of future systems of computerized health information are discussed, and considerations are offered for the protection of individual privacy. For the needs of individual health care, information must be identified by name and retrievable on demand. For health planning purposes, a) aggregate information must be obtainable without identification of individuals, and b) a unique identification system must be developed to link individual records in order to reveal disease patterns and outcomes. These are some of the fundamental requirements of a national centralized health information system. While such a system is being established, a network of community health information systems can serve by providing data for the continuity of care of the individual, and a laboratory for designing and testing the safeguards that will protect his privacy. This development of effective administrative and computer system guidelines is recommended, rather than the introduction of new laws at the present time. Guidelines developed for community systems will ultimately serve to enhance the purpose, structure, and safeguards of a national information system.