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The accuracy of using ICD‐9‐CM codes to determine genotype and fever status of patients with sickle cell disease

To the Editor: ICD-9-CM codes are commonly used by health services researchers and administrators investigating quality metrics to identify patients, but no study has determined their accuracy for classifying patients with sickle cell disease (SCD) by genotype and fever status [1–4]. We conducted a retrospective chart review to compare ICD-9-CM codes to manual chart review for patients 3 months to 21 years old with SCD who presented to the Emergency Department (ED) at a Midwest urban children’s hospital between January 1, 2004 and December 31, 2012. Charts were reviewed from all 6,286 visits with a discharge diagnosis of SCD or SCD with crisis (i.e., 282.41, 282.42, 282.6X), whether the visit resulted in ED