Table 4


Main Themes

Theme questions

Description of the course of disease

Who participated?

What happened?

How were you involved?

What was your influence on decisions?

Who asked you to participate?

Who helped you?

Feelings connected to active involvement in care giving

What were your positive/negative feelings?

What were your personal limits?

Death and bereavement

What was the implication on bereavement?

Would you do it again?

What were good/bad experiences?

What is your advice to others?

Themes in topic guide

Weibull et al. BMC Palliative Care 2008 7:15   doi:10.1186/1472-684X-7-15

Open Data