I am a 51 yr old female. I have V W D and Factor 5 disorder. I have alot of back pain and pass blood. Headaches and very tiered at times. It is very hard to get a doctor who understands what goes on with me. My blood changes on its own thick to thin. I have been told that i can have no consentrates due to having both . I guess my question is, Will I have to live like this or is there any thing that can be done? I do have a hemotoligist. That is where I got my info from. thank you for your time.
Hi, You have a rather rare condition because VWF causes bleeding because it affects your blood clot formation, but on the other hand you also have Factor V deficiency which causes blood to clot unnecessarily. Having both of these diseases together is well very, very rare. Both diseases have their separate treatment. But since both treatments work against each other, It's very hard to approach your case. So instead of medication I am going to tell you some changes you can make to your lifestyle that may help-Staying active and keeping within normal ranges of Avoiding bruising quit smoking avoid long trips in cars and airplanes, unless you can have a break in between the muse a soft toothbrush be careful with sharp object sand go in for regular check-ups to your hematologist, monitoring your condition is very important as you are a very case. I hope this answered your question.