Hi this is pretty complex In march I was eventually diagnosed with a dvt (after seeing 5 doctors) this then progressed into a PE in which two clots were found on my lungs. I spent 5 days in hospital on high dose of deltaparin and discharged on the lower dose of 15,000 units because I self harm by blood letting.I was again later diagnosed having suffered another PE where three new clots were found and a shodow on my lower left lung.They placed an ivc filter in. I went to have this taken out and they had found that it had dislodged and was filled with clots as well as a large clot sat on the filter estimated to be around 5 cm. Again I was Put on 15,000 units of deltaparin.Last night I was admitted for a transfusion and every professional I saw I explained my concern about having had another PE (same symptoms as before) no one took me seriously because I am on deltaparin. They gave me an X-ray which showed nothing but it never has. Clots have only shown up on a ct scan.They basically said because Im on deltaparin there is nothing more that they would do.My chest pain is worsening (I have been discharged today) Im finding breathing more difficult. What do I do? Do I have to be dead to get help?
Thanks for your question on Chat Doctor. I can understand your situation and problem. You are having recurrent Pulmonary embolism despite optimal anticoagulant treatment. So we need to rule out hypercoagulable states like homocystienemia, protein C and protein S deficiency etc. So better to consult hematologist and distal these. For your present symptoms like chest pain and breathlessness, we need to rule out Pulmonary infarction and recurrence of embolism. So you need to get done CT Pulmonary Angiography to rule out these possibilities. Possibility of hypercoagulable state is more in your case. Hope I have solved your query. Wish you good health. Thanks.