XXXXX I have been diagnosed with Ehlers-Danlos hypermobility type (at age 64). My major features fall within this class. I also have some vascular (blow blood vessels in palms of hands and soles of feet, no philtrim, thin upper lip, thin velvety skin, high palate and very small blood vessels in the medulla oblongata. Don t have other bleeding issues. (Need a 22 butterfly for blood draws and IV s). My genetist glossed over stroke risk. I am guessing it is significantly increased - if so, any idea how much?. ( I have limited info on biological family.) email:
Hello, The type of Enters Carlos syn Chat Doctor.  The type of Enters Carlos that has a risk for blood vessel wall weakness leading to aneurysms and strokes is the Type IV and Type VI according to the current evidence base. Therefore, you are not at increased risk for these conditions. Your risk for aneurysms or stroke is the same as for any individual. Risk factors for stroke include smoking, increased blood pressure called hypertension, abnormal blood lipids and blood sugar. So rest assured, your type of Enters Carlos does not put you at increased risk of blood vessel related problems and the overall quality of life and general life span are not affected. However, do remember to protect your joints and ligaments from injury. Should you require more information on your condition you may post your queries here. Best regards, 