hi, i have a 21 months old baby girl who is having partial agenesis of corpus callosum & had seizures since she was 4 months old. we have tried gardenal, valproic initially but it didnt work out. we at present giving multiple drugs in a day-lonazep,pacitane,levera,carnisure,thyronorm,vigabatrin,topamac. In addition ACTH has already been tried but seizures didnt stop. We havent tried ketogenic diet and is that useful in controlling seizures. so far baby is not having neck holding
Hi... By what you quote your kid is having intractable seizures and global developmental delay (no neck holding), and all this could be due to the structural defect in her brain which cannot be corrected by surgery or other means. Unfortunately she needs to be on multiple anti seizure medications to keep seizures under control. Regarding development only time has to answer how much she can develop physically and psychologically. She might require physiotherapy. Regards - 