children s health issues
Rett Syndrome
Treatment of Rett Syndrome
Medical team support Special education support Management of symptoms Treatment of seizures and hand behavior problems with antiseizure and behavioral medications Possiblytrofinetide There is no cure for Rett syndrome. The most helpful treatment of Rett syndrome is with a medical team approach that includes physical, occupational, and speech/language therapists. Most people with Rett syndrome need extensive support and specialized educational programs. Doctors may give medications to control seizures and hand behavior problems, help relieve breathing problems, or to help problems with movement. Trofinetideis a medication available for the treatment of Rett syndrome in adults and children who are 2 years of age and older. Regular medical re-evaluations are needed to monitor the progression of scoliosis and to monitor heart problems. Nutrition support may be needed to help affected children maintain their weight. The federalIndividuals with Disabilities Education Act (IDEA)requires public schools to provide free and appropriate education to children and adolescents with Rett syndrome. Education must be provided in the least restrictive, most inclusive setting possible—that is, a setting where the children have every opportunity to interact with nondisabled peers and have equal access to community resources. TheAmericans with Disability ActandSection 504 of the Rehabilitation Actalso provide for accommodations in schools and other public settings. 