I didn't know where to post this so I thought here would be the best.

At the end of my dad's fight with this horrible cancer, he was vomiting bile all of the time.  Is this a normal for the ending of this cancer?

Also my dad was diagnosed with Myleoprolific Disease.  Has anyone had this with this cancer?


(51 replies, posted in General Discussion)


Your post moves me.  I am reminded of my dad passing away from this horrible cancer.

NOBODY should have to go through this but we play the hand we are dealt.

My thoughts are with you.

Your courage is admirable.  You are a pillar of strength to us all.


(14 replies, posted in General Discussion)

My dad was treated at Mayo.  Palliative care means they don't think they can cure the cancer.  That is what they think or have experienced.

The doctors told my dad that he would have 6 month without chemo and 1 yr with chemo.  He did have to get his stent replaced about every 2-3 months and he did not have surgery.  They were correct with his diagnosis although they could not really determine if he had leukemia also...I guess in the end they decided he did also have chemo.

My dad had mets to the omentum.  That was not good at all.  They will probably start with gem/cis.


(3 replies, posted in General Discussion)

I don't understand why any new cancer treatment coming out isn't tried for cholangiocarcinoma.

It makes me so mad.  My dad has been gone a year after this horrible cancer and it would have been his 68th birthday this month.  I am so bitter about this.

Go to

they have studies that are ongoing


(11 replies, posted in General Discussion)

They didn't even discuss surgery with my dad and there are people on the site that seem they were about the same as him and they had surgery.

I don't know how they decide.

This just makes me angry.


(3 replies, posted in Grief Management)

My dad passed away in April of 2014 went through 6 months of chemo.  My husband's dad had bladder cancer in Apr of 2013 never went through chemo, has a neobladder, and continuously has issues.  He just lays around doesn't listen to when we say to go to the doctor and supposedly is cancer free.

I am at odds.  My dad would have given anything to be alive but he is just what I call sucking the life out of me.  He is not greatful....doesn't listen...and gets no cancer??? 

I am so upset it is so unfair.

My husband and his sister are all about him....seeing him and trying to help.  I am so resentful.


(19 replies, posted in General Discussion)

Toward the end my dad was like that.  He would vomit all of the time but couldn't eat.  The anti nausea meds did not help....he would vomit bile.  He would get exhausted really fast but couldn't sleep.


(7 replies, posted in General Discussion)

My father had results after 3 months after gem/cis.  HIs tumors had shrunk at that time.


(8 replies, posted in General Discussion)

I think it depends on how long it was since she had it drained and how her vitals are.  My dad had ascites and had it drained weekly until the end.  At the end he had it drained then died 3 days later.  He was vomiting a lot and could not eat.


(12 replies, posted in Introductions!)

Hi Sam

My dad was in the same place.  He was diagnosed and was told 6 months with and 1 year with chemo.  Sadly he passed away this year...1 year after diagnosis.

Please feel free to ask me any questions.


(12 replies, posted in General Discussion)

I think that is too early to see any effect.  My dad had his first CT scan after treatment at 3 months.  His ended up shrinking but he never had an ultrasound done.

My dad did gem/cis treatment.  It gave him a year.  He was diagnosed at stage IV.

He tolerated the chemo very well.

When I talked to my dad's nurse she said he had Myleoprolferative Disorder also.  He had talked about also being diagnosed with leukemia.

Is this very common?

Well I finally got to talk to my dad's nurse.  He passed in April.

He had extrahepatic bile duct cancer stage IV.  The doc gave him a year with chemo....it was almost a year to the date of diagnosis that he passed.

They think it came from the gallbladder but can't be sure.  He had physicals each year for his employment and nothing ever came up.  The nurse said that even when he passed his liver enzymes were not abnormal.

This cancer is my enemy now.  I have asked my company to donate to this organization.

I don't know if this helps....

My dad died from this cancer in April of this year.  At the end he didn't describe it as "pain" but as discomfort.  He used to say I know pain...I have had kidney stones.  This isn't pain it is more like discomfort...having the flu.

Now saying that he was on a very high dose of morphine.  He just was not able to sleep.  Once they got the morphine dose almost figured out he passed away.  Now he also had ascites and wasn't eating.

I hear you.  I am 45 and my father died from this a couple of months ago at 66.  I don't think they would give you a cancer screening.  One of my dad's nurses said to get my liver enzymes checked yearly but some people have normal enzymes then find out they have stage IV CC.

Should I not drink at all (I like a glass a wine per day).....should I not ever take any medications.....I don't know.  It seems like people are healthy and get this cancer.  My dad smoked but he wasn't overweight.  He was on BP meds but overall looked great and had a physical every year (although I don't think they drew a liver panel).

I don't know.  I am having a problem coming to terms with this myself.  I am just thinking at 66 I will die.


(5 replies, posted in General Discussion)

Hi Heather...I am in Round Rock Tx.  My father passed away in April of this year.  His CT scan showed tumors on his oementum and then he began having ascites.  He turned quickly after that.  I would say it was about a month.  He was not eating and would projectile vomit bile.  His body was basically shutting down at that point. 
Originally they didn't think the ascites was a big deal but once drained it came back again quickly.  He was probably drained 3-4 times before he passed.  I don't think the ascites was a "sign" but I do think that the oementum tumors and his lack of appetite were.

I absolutely hate this cancer.

Does anyone know if Bile Duct Cancer is a primary cancer or if it develops from a primary cancer within the body?


(6 replies, posted in General Discussion)

My father died from CC April of this year.  I can't stop thinking about how I may only have 20 or so years left until I get the cancer.  How do others deal with this?


(23 replies, posted in General Discussion)

So basically there are no "set" symptoms.  Even drawing liver enzymes doesn't seem to be conclusive as some have normal levels.

I am so paranoid about this since my dad just passed from it.  I know it is a maybe maybe not but I am an analytical mind that can't deal with that.

I am just curious about this cancer.  How were those of you with cc diagnosed?  Was it via liver bloodwork, biopsy, etc?  What caused you to go to the doctor prior to your diagnosis?

My dad went to the doctor due to the terrible itching he had and dark urine.  It was then he had liver enzymes done and it was diagnosed by a process of elimination...no biopsy.


(8 replies, posted in Introductions!)

I can tell you what happened to my dad.  After the gem/cis stopped working he was waiting for his new chemo.  That is when he started to get ascites.  They drained it then it came back a week later; drained it again.  He was vomiting (projectile) and not able to eat or sleep.  This continued and was hospitalized many times.  This happened over the course of a month until he passed.  He described it not as pain but as discomfort.  Like having the flu 10 times over.  He was not eating and dropped a lot of weight.  He was very aware of what was happening and could continue conversations.  The last week I think he was having some hallucinations but that could have been from the morphine.  Along with the throwing up his kidney function went caput.  Slowly his organ systems were shutting down.