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      • Frequently Asked Questions About Celiac Disease   09/30/2015


    Christine E

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    About Christine E

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    1. Christine E added a post in a topic How Young Was Your Child Diagnosed?   

      My son was diagnosed at age one. He had digestive problems since birth. Gas, cramping, constipation, spitting up. We went through formulas up through Neocate, reflux medicines. By one year old he was eating rice cereal and baby food pears and losing weight. He was diagnosed by positive gene test, and an endoscopy that showed slight changes in the lining. I figure he had an immature digestive system and the failure to heal or mature triggered celiac to develop. So it may be impossible for an infant to be diagnosed, but my son certainly had digestive problems his whole first year. He is now seven and healthy, though small, following his gluten free diet.
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    2. Christine E added a post in a topic What's The Deal With Post's Fruity Pebbles Cereal?   

      My son hasn't had any problems with Pebbles cereals, but FYI the new Marshmallow Pebbles has gluten in it. Also, keep in mind the top 8 allergens do not include barley, rye, or oats. Watch for behavioral changes in your kids too. Melt downs, long tantrums, excessive whining seem to be symptoms of glutening in my child.
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    3. Christine E added a post in a topic Non Gluten Intolerant Kids Won't Eat Bread?   

      Oh, and neither of my kids will eat peanut butter or drink shakes, smooties.
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      My 6 year old son was diagnosed Celiac at 13 months. He is about the size of your 6 year old now, small. He also will not drink milk. I always assumed he was sensitive and knew to avoid it. He drinks OJ with Calcium added, and doesn't have a problem with cheese, pudding, ice cream or yogurt. His nutritionist suggested adding a tablespoon of olive oil to his food, which adds 100 calories, and good fats (good for brain development).

      Also, my 10 year old who is not gluten-free is extremely picky. He eats fewer food items than the gluten-free child, who is limited in diet! He is sensitive to textures of food, even prefering certain brands (of hot dogs, cheese sticks), and will refuse to eat if he doesn't like the smell, look, or feel of a food. People without picky children tend to think this is a parenting issue, but the child gagged when he licked pineapple! And my husband is just about as picky, so I guess I know where it comes from. Good luck
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    5. Christine E added a post in a topic Ever Been Charged Extra For gluten-free Hotel Food?   

      This is on Grand Cayman
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      This is for restaurant food. The chef indicated They cannot heat up or prepare outside food. If they buy bread, cake mix, cookies, they'll apparently charge for the product plus 10 percent (service charge?). If this is actually the case I will look into other options. I'm.quite disappointed since we've generally been well accommodated, even being charged kid meal prices for adult foods (fish).
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    7. Christine E added a topic in Gluten-Free Travel   

      Ever Been Charged Extra For gluten-free Hotel Food?
      I've emailed ahead of a trip to a large chain, high end hotel about gluten-free meals for my 6- year-old son, and have been informed I will be charged extra for any gluten-free products they purchase to feed my son. Has anyone else ever encountered this? I think it's crazy!
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    8. Christine E added a post in a topic Celliac Or Not--Very Confused   

      The pediatrician diagnosed him. He has celiac. You can ask for a genetic test if you want. My son was age one when his endoscopy showed " changes". He's now 6 and has never had a positive blood test (annual). His genetic test was positive. He was severely constipated and also was supposed to have had reflux. All resolved on gluten-free diet. I strongly encourage you to work with your ped who seems to be more up to date on celiac. Waiting 6 months could be disastrous.
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    9. Christine E added a post in a topic Anybody's Kiddo Have Normal Labs?   

      My son was diagnosed at age 1 and is now 6. He has never had a positive blood test. His endoscopy showed slight changes, and his genetic test was positive. With those and his gaining weight once on the gluten-free diet, he was dx with celiac. You can now get a less expensive cheek swab test to see if your son has the genetic marker. I'm not complaining about this, but I have the problem that he doesn't like "normal" tasting food since he's never had it! I made a great gluten-free lasagna and he wouldn't even try it! He has a blood test every year and is under 25percent in height and weight, but my other son is pretty average. He hates the blood test of course, so he said, " why do I have to have the test? You know I never eat gluten!"
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    10. Christine E added a post in a topic False Negative Tests In Children Under 5   

      My son was diagnosed at age 1. His blood screens have always been negative. The doctor diagnosed him based on a positive genetic test and a successful gluten-free diet. He did have an endoscopy that showed slight "changes" but now at the age of almost 6 he has never tested positive on the blood screens.
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    11. Christine E added a post in a topic Infant Reflux (gerd) And Celiac?   

      My son supposedly had GERD his whole first year, on meds, Neocate formula. When he started losing weight at a year, a different ped GI did the biopsy and blood work, both of which were negative. The biopsy showed slight changes, but he did test positive for the gene marker. The diet worked. He has never had a positive blood test. I would assume the gluten and dairy are being transferred through breast milk and eliminate them from your diet, maybe one at a time to see if they make a difference. My son slept in his bouncy seat for 6 months, and never slept more than 3 hours till 15 months, after he had been gluten-free for 5 weeks.
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    12. Christine E added a post in a topic How Do I Know From All The Different Labeling On Packages What Really Is Gluten Free   

      My son has eaten the Honey Rice version with no problems. Wheat free does not mean gluten free, and sometimes gluten free doesn't even mean gluten free. I've noticed a few products that state they are gluten free, but when you read the ingredients, they have malt, or oats, or another gluten-containing product. Not all companies fully understand the definition of gluten. Companies do have standards for cleaning their equipment between processing, but again, human error or negligence may CC.
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    13. Christine E added a post in a topic 13 Months Old, To Biopsy Or Not?   

      My son had a biopsy at 13 months. It showed "changes" in the mucosa lining. The slides were read by pathologists at Children's Memorial in Chicago and University of Chicago Hospital, and the pathologists agreed there were slight changes, but not difinitive for Celiac. His blood tests were negative and have remained so. He is now 4. The GI's confirmed Celiac because he has a genetic marker, and the diet worked. It is not the official way to confirm celiac, but since the biopsy was not clearly positive, they still diagnosed Celiac. I was very fortunate that his doctors took his weight loss and inability to eat very seriously. By the way, he has never had diarhea, but has the symptom of constipation. He is healthy and adheres well to his diet. But what do you say when on his fourth birthday he wishes he could eat what everyone else does??
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