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DEBRA Australia

DEBRA Australia is a voluntary non-government funded support group that helps individuals and their families with Epidermolysis Bullosa, more commonly known as EB. An EB person has skin that is as fragile as butterflies’ wings so they are affectionately known as “Butterfly Children”. This rare genetically inherited skin disorder is incurable and requires painful 3 hour dressing changes every second day.
DEBRA Australia works to provide financial and emotional support to families with EB as well as advocating and providing vital funding to research for a cure.


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