How is a Ben's Friends Community Different from Social Media and other Support Sites?

Are you wondering how a Ben’s Friends community is different from social media and other support sites?

The Ben’s Friends community for this rare disease is interested in only one thing: you. You as a person, and you and your struggles as a patient. We’re not interested in knowing your name or where you live. We won’t even allow you to use your real name when you register for one of our communities. Because when it comes to your medical business in our googly universe, your privacy is important. Your information is never shared, and your activity is never tracked by adware. Very different from social media sites and most support sites!

Why, then, does the Ben’s Friends’ community sign-up ask for the country and region in which you live? That’s in case your fellow members can recommend local resources and help, and so they will know what kind of medical system there is where you live. That’s important when it comes to giving and getting support.


The clickable link to the real, interactive, truly private Ben’s Friends community is in the “About” section on this page. Why not join us?

Ben’s Friends: Safe and Supportive. And anonymous to keep it that way.